CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 351 - 375 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55656 Nystagmus valsalva emergence indicator

The indicator related to emergence or worsening of nystagmus with valsalva maneuver

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22315 Chiari malformation auditory symptoms onset important symptom scale

The scale as related to auditory symptoms at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22257 Spine range of motion neck extension degree value

The value in degrees related to range in motion of neck extension (50) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C21771 Chiari malformation screening wound prolong heal separation indicator

The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22183 Chiari malformation neurological examination funduscopic exam benign indicator

The indicator related to funduscopic exam being benign and discs flat

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21772 Carotid radial pulse intact text

The free text field related to an intact carotid and radial pulse

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C56959 Truncal flexion type

The participant/subject's truncal flexion capability

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22335 Chiari malformation imbalance dizziness onset symptom severity scale

The scale as related to imbalance/dizziness at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22359 Reflex autonomic reflex lacrimate status

Describe observed response (the secretion of excess tears)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C58516 Greatest transverse thecal sac diameter measurement

Greatest transverse diameter of thecal sac on T2-WI as measured on MRI in the axial plane (in mm)

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C21783 Headache focal point extension radiation type

The type of extension from the focal point of the headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22199 Chiari malformation neurological examination tongue palate pharynx intact indicator

The indicator related to tongue, palate and pharynx being intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21789 Cutaneous stigma absent indicator

The indicator related to an absence of cutaneous stigma

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22356 Imaging diagnostic method type other text

The free text field related to the imaging method utilized for diagnosis

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C13523 Dizziness or vertigo indicator

Indicator of whether the participant/subject experienced dizziness or vertigo

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C16046 Pregnancy labor delivery complication indicator

Indicator of whether there were complications during labor/delivery

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22232 Surgical procedure anatomic site

The anatomic site related to surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C21835 Headache temporal association type

The type as related to time of occurrence of consistent headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22211 Chiari malformation neurological examination pronator drift absent indicator

The indicator related to not having pronator drift

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22274 Surgical procedure type

The type of surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22515 Syrinx anatomic change indicator

Indicator related to the anatomic change in the syrinx

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
Displaying 351 - 375 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.