CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 351 - 375 of 861

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2150-C21925	C21925	Balance falls frequency	The frequency as related to falls	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2163-C22358	C22358	Chiari malformation identify specialty diagnosis type text	The free text field related to identifying the specialty of the individual responsible for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2183-C22484	C22484	Chiari decompression verification decompression lateral cervicomedullary junction cranial spinal nerve rootlet indicator	The indicator related to the verification of decompression within the lateral cervicomedullary junction/cranial or spinal nerve rootlets	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22748	C22748	Occasional bowel incontinence current indicator	Indicator of whether the patient/participant currently experiences occasional bowel incontinence	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2151-C22058	C22058	Modified Ashworth Scale - Limb tone testing right shoulder scale	The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22379	C22379	Chiari malformation tethered spinal cord reoccur bladder kidney indicator	The indicator related to recurring urinary bladder or kidney infection	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2149-C12875	C12875	Echocardiogram mitral valve prolapse indicator	Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22492	C22492	Blood estimate loss measurement	The measurement related to the estimated amount of blood loss	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56986	C56986	Trigger point trapezius type	Type of trapezius trigger point	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22756	C22756	Genital pelvic sensation loss indicator	Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22455	C22455	Family history cranial synostosis condition type	The type related to personal or family history of the condition of cranial synostosis	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2151-C22104	C22104	Modified Ashworth Scale - Limb tone testing right knee scale	The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22387	C22387	Chiari malformation tethered spinal cord sole numbness indicator	The indicator related to numbness in the soles of an individual's feet	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22716	C22716	Ear pressure indicator	Indicator of whether the patient/participant has pressure in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21720	C21720	Vertigo assessment indicator	Indicator as related to assessment of vertigo	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2149-C19806	C19806	Medical history endocrine diabetes indicator	Indicator of diabetes	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22307	C22307	Chiari malformation Neck pain onset important symptom scale	The scale as related to neck pain at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22533	C22533	Surgical procedure complication fluid collection indicator	Indicator related to the complication of a fluid collection within the brain	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21748	C21748	Imaging posterior cranial fossa foramen magnum diameter measurement	The measurement as related to distance from basion to opisthion	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22544	C22544	Shunt valve scan type	Shunt valve scan type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21766	C21766	Chiari malformation screening echocardiogram mitral valve prolapse aortic aneurysm diagnosis indicator	The indicator related to ever having a echocardiogram reveal mitral valve prolapse (MVP) or aortic aneurysm (or enlargement) in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22179	C22179	Chiari malformation neurological examination attention short-term memory intact indicator	The indicator related to attention and short-term memory being intact as part of neurological examination form made for Chiari Malformation	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21758	C21758	Normocephalic assessment indicator	The indicator related to person whose head and all major organs of the head are in a normal condition and without significant abnormalities	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C55660	C55660	Cervical compression surgical site status	The status of compression at the surgical site	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22324	C22324	Chiari malformation bowel bladder onset important symptom scale	The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.