CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22189 Chiari malformation neurological examination facial sensation normal indicator

The indicator related to having normal facial sensation to touch and pin

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21784 Peripheral edema clubbing cyanosis absence text

The free text field related to identifying an absence of peripheral edema, clubbing or cyanosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22026 Motor strength testing right deltoid scale

The amount of movement in the right deltoid muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22735 Balance difficulty absent visual cue indicator

Indicator of whether the patient/participant has experienced difficulty with balance in the absence of visual cues

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21703 Coordination Romberg maintain stance eye close assessment scale

The scale related to assessment of Romberg's test of neurological function of maintaining way of standing with eyes closed

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21676 Allergy medication reaction type

Type of allergic reaction to medication

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C22463 Imaging intra-operative type

The type of intra-operative imaging utilized (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22034 Motor strength testing right wrist extension scale

The amount of movement in the extension of the right wrist muscles

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C56973 Muscle spasm tenderness type

Type of muscle spasm tenderness

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22743 Inability empty bladder single attempt indicator

Indicator of whether the patient/participant is unable to empty his or her bladder in a single urination attempt

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22442 Medical history correction high arched palate abnormality indicator

The indicator related to medical history of or correction of an abnormality in the subject's high arched palate

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C21711 Coordination heel to shin left lower extremity tap assessment scale

The scale related to assessment of the ability to complete the motion of heel to shin (lower level extremity) tap

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21944 Dizziness motion related duration type

The duration as related to the motion related dizziness

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22369 Chiari malformation tethered spinal cord frequent urinate indicator

Indicator related to frequency of urination

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C21771 Chiari malformation screening wound prolong heal separation indicator

The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22487 Obex plug indicator

The indicator related to the plugging of the obex

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56981 Range of motion at hip result type

The result and findings from the participant/subject's range of motion at his/her hips

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22751 Crohns disease colitis diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with Crohn's disease or colitis

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22099 Modified Ashworth Scale - Limb tone testing left elbow scale

The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22382 Chiari malformation tethered spinal cord decrease pelvic sensation indicator

The indicator related to a decrease of sensation in the pelvic region

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22711 Pain pressure behind eyes indicator

Indicator of whether the patient/participant feels pressure or pain behind his or her eyes

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21715 Tongue function deviation assessment status

Status as related to tongue function deviation

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C18150 Thyroid disease indicator

Indicator for thyroid disease

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22495 Surgical procedure syrinx performed type

The type of direct surgical treatment of syrinx (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56989 Heel walking type

Type of heel walking

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
Displaying 301 - 325 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.