CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2190-C22522	C22522	Surgical procedure complication pseudomeningocele indicator	Indicator related to the presence of a pseudomeningocele complication post-surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2158-C22539	C22539	Shunt valve reservoir refill lying not collect reason	Reason the time to refill after compression with the subject/participant lying down was not collected	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C01565	C01565	Blood pressure systolic measurement	Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22034	C22034	Motor strength testing right wrist extension scale	The amount of movement in the extension of the right wrist muscles	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22743	C22743	Inability empty bladder single attempt indicator	Indicator of whether the patient/participant is unable to empty his or her bladder in a single urination attempt	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2193-C55655	C55655	Nystagmus rebound indicator	The indicator related to nystagmus rebound or assessment for presence of nystagmus in primary after persistent eccentric gaze	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2150-C21944	C21944	Dizziness motion related duration type	The duration as related to the motion related dizziness	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2156-C21771	C21771	Chiari malformation screening wound prolong heal separation indicator	The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22313	C22313	Chiari malformation visual symptoms onset important symptom scale	The scale as related to visual symptoms at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2159-C22256	C22256	Spine range of motion neck left rotation degree value	The value in degrees related to range in motion of neck to the left (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2146-C21687	C21687	Beighton Score - Motion knee hyperextend score	Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22751	C22751	Crohns disease colitis diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with Crohn's disease or colitis	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2145-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56958	C56958	Pelvic traction type	The participant/subject's capability of pelvic traction	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2151-C22099	C22099	Modified Ashworth Scale - Limb tone testing left elbow scale	The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22711	C22711	Pain pressure behind eyes indicator	Indicator of whether the patient/participant feels pressure or pain behind his or her eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22334	C22334	Chiari malformation numbness tingling onset symptom severity scale	The scale as related to numbness/tingling at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2149-C18150	C18150	Thyroid disease indicator	Indicator for thyroid disease	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2172-C58515	C58515	Greatest transverse spinal cord diameter measurement	Greatest transverse diameter of spinal cord on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2147-C21764	C21764	Chiari malformation screening ocular lens problem indicator	The indicator related to optic or ocular lens problems	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2194-C56966	C56966	Jugular compression type	Type of jugular compression	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2154-C22182	C22182	Chiari malformation I neurological examination dysphasia absent indicator	The indicator related to not having dysphasia	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22464	C22464	Surgical procedure dural technique type	The type of dural technique (surgical approach to the dura) used	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56974	C56974	Muscle spasm induration type	Type of muscle spasm induration	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22443	C22443	Medical history correction cleft palate abnormality indicator	The indicator related to medical history of or correction of an abnormality in the subject's cleft palate	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.