CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21688 Beighton Score - Motion palm flat leg straight score

Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55658 Strabismus indicator

The indicator related to strabismu (esotropia/exotropia/skew deviation)

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22320 Chiari malformation brain fog onset important symptom scale

The scale as related to brain fog at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21774 Chiari malformation screening bruise stretch mark skin hernia prolapse scar formation indicator

The indicator related to easy bruising, stretch marks, stretchy skin, hernias, prolapses, or unusual scar formation in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22185 Chiari malformation neurological examination visual field full indicator

The indicator related to visual fields being full to confrontation

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21776 Chest clear text

The free text field related to a clear chest

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22340 Chiari malformation auditory symptoms onset symptom severity scale

The scale as related to auditory symptoms at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22364 Reflex autonomic reflex RR interval response variation status

The response status as related to autonomic reflexes RR interval response variation status

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22230 Headache duration

The duration of the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C22372 Imaging pre surgical procedure date

Date of pre-surgical imaging

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21786 Headache combination quality type

The quality of the patient's headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22202 Chiari malformation neurological examination gag reflex bilateral present indicator

The indicator related to gag reflex being present bilaterally

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21793 Joint mobility normal indicator

The indicator related to normal joint mobility

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22239 Surgical procedure wound healing status

The status related to wound healing after surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22395 Cerebrospinal fluid dorsal space measurement

Measurement related to the minimal cerebrospinal fluid (CSF) space dorsal to the tonsils at the craniomandibular joint (CMJ)

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22214 Chiari malformation neurological examination abdominal reflex present indicator

The indicator related to abdominal reflexes being present

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22510 Shunt valve present indicator

Valve present

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22574 Surgical procedure complication mechanic displacement type

Type of mechanical displacement the subject has, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22517 Syrinx length change measurement

Measurement of the change in the longitudinal length of the patient's spinal syrinx

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22213 Reflex deep tendon reflex jaw response score

The response score related to deep tendon reflex testing of jaw (trigeminal: cn v)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C22532 Shunt valve removal date

Date shunt valve was removed

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
Displaying 301 - 325 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.