CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22333 Chiari malformation neck pain onset symptom severity scale

The scale as related to neck pain at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21692 Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator

The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C19256 Study protocol name

Name of study protocol

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22258 Reflex deep tendon reflex triceps response score

The response score related to deep tendon reflex testing of triceps (radial:c7-8)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21700 Coordination gait assessment scale

The scale related to assessment of manner of person's walking

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C55641 Neck Disability Index - Concentration

The pain indicator of the participant/subject's concentration as it relates to the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C21673 Allergy medication antibiotic reaction type

Type related to allergic reaction to antibiotic medication

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C22228 Sensory abnormal dull ache pain indicator

The indicator related to abnormal dull ache pain

Supplemental Sensory Symptoms Chiari I Malformation Chiari I Malformation
C21708 Coordination heel to shin right lower extremity assessment scale

The scale related to assessment of the ability to complete the motion of heel to shin (right lower extremity)

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C22460 Suboccipital craniectomy size left right measurement range

The range of measurement related to the size of the suboccipital craniectomy left or right

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22253 Surgical procedure muscle spasm status

The status related to muscle spasms in surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C56970 Muscle spasm type

Type of muscle spasm

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22526 Shunt valve type

Type of Shunt Valve

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22358 Chiari malformation identify specialty diagnosis type text

The free text field related to identifying the specialty of the individual responsible for diagnosis

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22484 Chiari decompression verification decompression lateral cervicomedullary junction cranial spinal nerve rootlet indicator

The indicator related to the verification of decompression within the lateral cervicomedullary junction/cranial or spinal nerve rootlets

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22538 Shunt valve reservoir refill sit time

Shunt valve reservoir refill sitting time

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22379 Chiari malformation tethered spinal cord reoccur bladder kidney indicator

The indicator related to recurring urinary bladder or kidney infection

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22492 Blood estimate loss measurement

The measurement related to the estimated amount of blood loss

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22311 Chiari malformation imbalance dizziness onset important symptom scale

The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21720 Vertigo assessment indicator

Indicator as related to assessment of vertigo

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C56986 Trigger point trapezius type

Type of trapezius trigger point

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22455 Family history cranial synostosis condition type

The type related to personal or family history of the condition of cranial synostosis

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22255 Spine range of motion neck right rotation degree value

The value in degrees related to range in motion of neck to the right (80) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
Displaying 301 - 325 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.