CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21786 Headache combination quality type

The quality of the patient's headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22230 Headache duration

The duration of the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C21838 Headache duration score

The score related to type of duration of headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21837 Headache duration type

The type as related to duration of headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21785 Headache focal point extension radiation score

The score relating to the extension from the focal point of a headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21783 Headache focal point extension radiation type

The type of extension from the focal point of the headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21791 Headache frequency score

The score relating to the rate at which the patient's headache occurs over a period of time

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21790 Headache frequency type

The rate at which a headache occurs over a period of time

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22229 Headache pain anatomic site

The anatomic site relating to the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C21841 Headache pain relief factor score

The score related to pain relief factor for headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21839 Headache pain relief factor type

The type as related to pain relief factor for headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21778 Headache primary anatomic site

The location related to the anatomic site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21780 Headache primary laterality anatomic site

The location related to the lateral site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21782 Headache primary laterality anatomic site score

The score relating to the anatomic site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21788 Headache quality score

The score related to the quality of the patient's headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22234 Headache quality type

The type related to the quality of the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C21834 Headache symptom association score

The score related to symptoms consistently associated with headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21833 Headache symptom association type

The type as related to symptoms consistently associated with headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21836 Headache temporal association score

The score related to time of occurrence of consistent headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21835 Headache temporal association type

The type as related to time of occurrence of consistent headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C22236 Headaches factor aggravate type

The type related to what aggravates the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C22721 Hearing very sensitive indicator

Indicator of whether the patient/participant has very sensitive hearing

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C01521 Heart rate

The participant's pulse or number of contractions (heart beats) per minute

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
Displaying 301 - 325 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.