CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21747 Imaging posterior cranial fossa supraoccipital length measurement

The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22543 Shunt valve functional assessment type

Shunt valve functional assessment type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C55659 Cervical posture type

The type as related to cervical posture

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22203 Chiari malformation neurological examination dysarthria dysphonia absent indicator

The indicator related to not having dysarthria or dysphonia

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22323 Chiari malformation cardiac onset important symptom scale

The scale as related to cardiac at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22263 Spine range of motion trunk extension degree value

The value in degrees related to range in motion of trunk extension (30) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C21692 Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator

The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21761 Chiari malformation screening hypermobility family indicator

The indicator related to family members having joint hypermobility syndrome which is a condition that features joints that easily move beyond the normal range. Expected for that particular joint in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22215 Chiari malformation neurological examination plantar flexor response indicator

The indicator related to plantar responses are flexor

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22343 Chiari malformation fatigue onset symptom severity scale

The scale as related to fatigue at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22037 Motor strength testing gluteus left scale

The amount of movement in the left gluteus

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C00035 Gender type

Self-reported gender of the participant/subject

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22234 Headache quality type

The type related to the quality of the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C21773 Chiari malformation screening chronic edema varicose vein fatty skin tumor diagnosis indicator

The indicator related to fatty skin tumors or bumps, bluish hands or feet, varicose veins, or chronic edema (swelling) in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22567 Surgical procedure complication transdermal cerebrospinal fluid leak indicator

Indicator related to the complication of a trans-dermal cerebrospinal fluid (CSF) leak in the patient's brain

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21775 Chest clear indicator

The indicator related to a clear chest

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22045 Motor strength testing fasciculation indicator

The indicator relating to fasciculations in a muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22104 Modified Ashworth Scale - Limb tone testing right knee scale

The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22484 Chiari decompression verification decompression lateral cervicomedullary junction cranial spinal nerve rootlet indicator

The indicator related to the verification of decompression within the lateral cervicomedullary junction/cranial or spinal nerve rootlets

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Chiari I Malformation Chiari I Malformation
C19806 Medical history endocrine diabetes indicator

Indicator of diabetes

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22748 Occasional bowel incontinence current indicator

Indicator of whether the patient/participant currently experiences occasional bowel incontinence

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
Displaying 276 - 300 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.