CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 861

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2183-C22490	C22490	Valsalva challenge perform indicator	The indicator related to whether a valsalva challenge was performed in order to assess the integrity of the closure	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56984	C56984	Range of motion at hip external side type	The hip that the participant/subject feels pain on during external range of motion	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22754	C22754	Attain orgasm difficulty indicator	Indicator of whether the patient/participant experiences difficulty attaining orgasm	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22453	C22453	Medical history dysautonomia indicator	The indicator related to any reported history of POTS (postural orthostatic tachycardia syndrome), NMH (Neurally mediated Hypotension) or fainting	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2151-C22102	C22102	Modified Ashworth Scale - Limb tone testing right wrist scale	The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22385	C22385	Chiari malformation tethered spinal cord leg pain indicator	The indicator related to leg pain	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22714	C22714	Vision doubled indicator	Indicator of whether the patient/participant has double vision	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2149-C19761	C19761	Medical history glaucoma diagnosis indicator	Indicator of history of Glaucoma	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F0016-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	Demographics	0	Chiari I Malformation	Chiari I Malformation
F2183-C22498	C22498	Cranioplasty cerebelloplasty performed six month type	The type of cranioplasty/ cerebelloplasty performed post Chiari decompression at the 6 month point	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22762	C22762	Chronic fatigue indicator	Indicator of whether the patient/participant is experiencing or exhibits chronic fatigue	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2152-C02008	C02008	Medication prior or concomitant end date and time	The date (and time, if applicable and known) the administration of the prior/concomitant medication ended	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2165-C18495	C18495	Protocol ID number	The designated number used to identify the protocol or study to which participants/subjects will be enrolled	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2141-C21690	C21690	Chiari I malformation headache pressure daily occurrence indicator	Indicator related to headache pain/pressure at the back or base of your head in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2183-C22506	C22506	Thoracolumbar brace text	The free-text field related to how long the brace was utilized	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22248	C22248	Reflex deep tendon reflex pectoralis response score	The response score related to deep tendon reflex testing of pectoralis (ant. thoracic: c5-t1)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55639	C55639	Neck Disability Index - reading indicator	The pain indicator of reading as it relates to the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22770	C22770	Need urinate multiple times while sleep indicator	Indicator of whether the patient/participant experiences the need to urinate more than once while sleeping	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22475	C22475	Medical history spinal stenosis indicator	The indicator related to any medical history of spinal stenosis in the subject, in which the subject's spine narrows	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2152-C18737	C18737	Medication prior or concomitant route type other text	The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2165-C21725	C21725	Strabismus assessment indicator	The indicator related to strabismus which is a condition that interferes with binocular vision because it prevents a person from directing both eyes simultaneously towards the same fixation point	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56959	C56959	Truncal flexion type	The participant/subject's truncal flexion capability	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text. Gender identity self-identified by the participant. Gender type may or may not match sex assigned at birth	Supplemental	General Core	False	Chiari I Malformation	Chiari I Malformation
F2183-C22434	C22434	Chiari malformation conservative management duration	Duration of conservative management from time of initial imaging diagnosis	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22029	C22029	Motor strength testing left bicep scale	The amount of movement in the left bicep muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.