CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2165-C22310	C22310	Reflex pyramidal frontal release sign sucking status	The response status as related to pyramidal/frontal release sign sucking reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21796	C21796	Limb length discrepancy absent indicator	The indicator related to limb length discrepancy absence	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22400	C22400	Spina bifida occulta diagnosis indicator	The indicator related to spina bifida in which there is a defect in the bony spinal canal without protrusion of the cord or meninges	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2148-C21839	C21839	Headache pain relief factor type	The type as related to pain relief factor for headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2161-C22253	C22253	Surgical procedure muscle spasm status	The status related to muscle spasms in surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22513	C22513	Cerebrospinal fluid Magendie patency measurement	Measurement of the foramen of Magendie, which drains cerebrospinal fluid (CSF) from the fourth ventrical to the cistema magna	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2154-C22218	C22218	Chiari malformation neurological examination Romberg negative indicator	The indicator related to Romberg (Std) negative	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21734	C21734	Imaging syrinx highest level spinal segment number	The number as related to the highest level of syrinx, reported in terms of most superior spinal segment along syrinx	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2146-C10724	C10724	Echocardiogram perform date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2158-C22526	C22526	Shunt valve type	Type of Shunt Valve	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22040	C22040	Motor strength testing intrinsic right hand scale	The amount of movement in the intrinsic muscles of the right hand	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2193-C55646	C55646	Eye convergence retraction indicator	The indicator related to eye convergence and retraction	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2163-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22521	C22521	Assessment pre surgical procedure date	Date of the patient's pre-surgery evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2158-C22538	C22538	Shunt valve reservoir refill sit time	Shunt valve reservoir refill sitting time	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22048	C22048	Motor strength testing left ankle df scale	The amount of movement in the left ankle df	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C10515	C10515	Scoliosis diagnosis indicator	The indicator of whether the participant/subject has been diagnosed with scoliosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22311	C22311	Chiari malformation imbalance dizziness onset important symptom scale	The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2172-C21750	C21750	Imaging posterior cranial fossa tentorial angle measurement	The measurement as related to the angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion; Alternative measurement: angle between line drawn paralell to clivus and line drawn paralell to tentorium, independent of orientation of occipital bone	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2147-C21766	C21766	Chiari malformation screening echocardiogram mitral valve prolapse aortic aneurysm diagnosis indicator	The indicator related to ever having a echocardiogram reveal mitral valve prolapse (MVP) or aortic aneurysm (or enlargement) in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2159-C22255	C22255	Spine range of motion neck right rotation degree value	The value in degrees related to range in motion of neck to the right (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2154-C22181	C22181	Chiari malformation neurological examination speech fluent comprehension intact indicator	The indicator related to speech being fluent and comprehension intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21758	C21758	Normocephalic assessment indicator	The indicator related to person whose head and all major organs of the head are in a normal condition and without significant abnormalities	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56957	C56957	Cranio-cervical junction axial loading status	The status for cranio-cervical junction axial loading	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22333	C22333	Chiari malformation neck pain onset symptom severity scale	The scale as related to neck pain at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.