CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22769 Unexpected breast milk production indicator

Indicator of whether the patient/participant is experiencing unexpected breast milk production

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C21722 Oculomotor saccadic pursuit assessment indicator

Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21883 Surgical history other text

The free-text field related to other past surgery

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Chiari I Malformation Chiari I Malformation
C22272 Reflex deep tendon reflex achilles response score

The response score related to deep tendon reflex testing of achilles (tibial:s1)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56956 Numerical Pain Rating Scale - Neck pain scale

The Numeric Scale - Neck Pain is a patient-reported outcome instrument used to assess neck pain in daily life

Supplemental Numeric Rating Scale - Neck Pain Chiari I Malformation Chiari I Malformation
C22223 Sensory point sensory vibration deficit indicator

The indicator related to sensory deficits in point sensory and/or vibrations

Supplemental Sensory Symptoms Chiari I Malformation Chiari I Malformation
C22432 Chiari malformation conservative management indicator

The indicator related to conservative management with no surgical treatment offered

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22028 Motor strength testing right bicep scale

The amount of movement in the right bicep muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21705 Coordination finger to nose right upper extremity tap assessment scale

The scale related to assessment of the ability to complete the motion of finger to nose (right upper extremity) tap

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C11061 Gait assessment result

Result of the gait assessment

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C21678 Allergy food reaction type

Type of reaction caused by food allergy

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C22468 Surgical procedure arachnoid manuever type

The type of surgical procedure performed on arachnoid

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22036 Motor strength testing right wrist flexion scale

The amount of movement in the flexion of the right wrist muscles

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22745 Interstitial cystitis diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with interstitial cystitis

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22444 Medical history correction bifid uvula abnormality indicator

The indicator related to medical history of or correction of an abnormality in the subject's bifid uvula

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C21726 Karnofsky modified performance status score

Score identifying current level of functioning favoring the highest level estimate

Supplemental Functional Status Karnofsky Score Chiari I Malformation Chiari I Malformation
C22013 Ataxia lower extremity indicator

The indicator related to lower extremities having ataxia

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22374 Chiari malformation tethered spinal cord urinary dribble incontinence indicator

The indicator related to dribbling (in the context of urinary incontinence)

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22489 Dural additional closure agent type

The type of dural closure supplements used (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56983 Range of motion at hip internal side type

The hip that the participant/subject feels pain on during internal range of motion

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22753 Sexual arousal difficulty maintain indicator

Indicator of whether the patient/participant is experiencing difficulty maintaining sexual arousal

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22101 Modified Ashworth Scale - Limb tone testing left wrist scale

The scale of limb tone testing for the left wrist, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22384 Chiari malformation tethered spinal cord persistent low back pain indicator

The indicator related to persistent or unexplained low back pain

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
Displaying 276 - 300 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.