CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F0016-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Chiari I Malformation	Chiari I Malformation
F2182-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22756	C22756	Genital pelvic sensation loss indicator	Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22422	C22422	Gestation breech indicator	The indicator related to a breech gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22424	C22424	Gestation other indicator	The indicator related to another form of gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22425	C22425	Gestation other text	Text describing the other form of gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22420	C22420	Gestation singleton indicator	The indicator related to a single gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22423	C22423	Gestation triplet indicator	The indicator related to a triplet gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22421	C22421	Gestation twin indicator	The indicator related to a twin gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22426	C22426	Gestational diabetes condition indicator	The indicator related to the condition of gestational diabetes, which develops when women are not able to make enough insulin during pregnancy	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2172-C58515	C58515	Greatest transverse spinal cord diameter measurement	Greatest transverse diameter of spinal cord on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2172-C58516	C58516	Greatest transverse thecal sac diameter measurement	Greatest transverse diameter of thecal sac on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2145-C01520	C01520	Head circumference measurement	Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2193-C55653	C55653	Head shake thrust status	The status related to head shake/thrust	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2182-C22439	C22439	Head shape dolichocephaly indicator	The indicator related to head shape dolicocephaly, in which the subject's head is longer that would be expected, relative to its width	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22438	C22438	Head shape plagiocephaly indicator	The indicator related to head shape plagiocephaly, in which one side of the subject's head is flat	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22440	C22440	Head shape trigonocephaly indicator	The indicator related to head shape trigonocephaly, in which the subject has a triangular shaped forehead	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2148-C21843	C21843	Headache aggravating pain factor score	The score related to factor aggravating headache pain	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2148-C21842	C21842	Headache aggravating pain factor type	The type as related to factor aggravating headache pain	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2148-C21844	C21844	Headache assessment total score	The total score of headache assessment	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2160-C22238	C22238	Headache associate symptom type	The type related to the associated symptoms that the subject is experiencing during his/her headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation

Displaying 276 - 300 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.