CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22213 Reflex deep tendon reflex jaw response score

The response score related to deep tendon reflex testing of jaw (trigeminal: cn v)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C22532 Shunt valve removal date

Date shunt valve was removed

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22044 Motor strength testing atrophy indicator

The indicator relating to atrophy in a muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C01581 Weight unit of measure

Unit of measure for the weight numerical value

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22295 Chiari malformation precipitate factor type

The type related to any precipitating factors that may have contributed to the patient's Chiari Malformation

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22528 Surgical procedure complication cerebrospinal fluid disorder indicator

Indicator related to the complication of a cerebrospinal fluid (CSF) disorder

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22272 Reflex deep tendon reflex achilles response score

The response score related to deep tendon reflex testing of achilles (tibial:s1)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C21746 Imaging posterior cranial fossa clivus length measurement

The measurement as related to distance from dorsum sella to basion on midsagittal MRI

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21764 Chiari malformation screening ocular lens problem indicator

The indicator related to optic or ocular lens problems

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22052 Motor strength testing left ehl scale

The amount of movement in the left EHL

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21688 Beighton Score - Motion palm flat leg straight score

Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55658 Strabismus indicator

The indicator related to strabismu (esotropia/exotropia/skew deviation)

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22250 Reflex deep tendon reflex biceps response score

The response score related to deep tendon reflex testing of biceps (musculocutaneous:c5-6)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55640 Neck Disability Index - headaches type

The element related to the type of headaches the participant/subject has as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22771 Snoring indicator

Indicator of whether the patient/participant snores during sleep

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C56960 Truncal extension type

The participant/subject's truncal extension capability

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C22437 Suboccipital craniectomy size superior inferior measurement

The measurement related to the size of the suboccipital craniectomy superiorly or inferiorly

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22030 Motor strength testing left iliopsoas scale

The amount of movement in the left iliopsoas

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22739 Extremity stiffness indicator

Indicator of whether the patient/participant has experienced stiffness in his or her extremities

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21707 Coordination finger to nose left upper extremity tap assessment scale

The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity) tap

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21923 Balance unsteady stand walk indicator

The indicator related to feelings of unsteadiness when standing or walking

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22357 Chiari malformation identify speciality diagnosis type

The type of specialty of the individual responsible for diagnosis

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
Displaying 251 - 275 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.