CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2190-C22361	C22361	Assessment post surgical procedure type	Type of post operative evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22262	C22262	Reflex deep tendon reflex finger flexor response score	The response score related to deep tendon reflex testing of finger flexor (median/ulnar:c6-t1)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55643	C55643	Neck Disability Index - driving indicator	The driving pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2157-C22210	C22210	Sensory upper extremity numbness tingling symptom indicator	The indicator related to numbness/tingling in the upper extremities	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2153-C22025	C22025	Motor strength testing iliopsoas right scale	The amount of movement in the right iliopsoas	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22734	C22734	Skin change indicator	Indicator of whether the patient/participant has experienced a skin change	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2142-C21702	C21702	Coordination stance assessment scale	The scale related to assessment of way someone stands	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2138-C21675	C21675	Allergy medication name	Name related to the medication causing allergic reaction	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2158-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2183-C22462	C22462	Cervical laminotomy indicator	The indicator related to cervical laminotomy performed	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22033	C22033	Motor strength testing right gluteus scale	The amount of movement in the right gluteus	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22742	C22742	Excessive urination frequency indicator	Indicator of whether the patient/participant's urination frequency has been excessive	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2142-C21710	C21710	Coordination heel to shin left lower extremity assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (lower extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2150-C21931	C21931	Dizziness motion related indicator	The indicator related to motion related dizziness	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2164-C22366	C22366	Chiari malformation tethered spinal cord urine hold trouble indicator	The indicator related to trouble holding your urine	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C21693	C21693	Chiari I malformation position change dizzy symptom indicator	The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22513	C22513	Cerebrospinal fluid Magendie patency measurement	Measurement of the foramen of Magendie, which drains cerebrospinal fluid (CSF) from the fourth ventrical to the cistema magna	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2154-C22218	C22218	Chiari malformation neurological examination Romberg negative indicator	The indicator related to Romberg (Std) negative	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21734	C21734	Imaging syrinx highest level spinal segment number	The number as related to the highest level of syrinx, reported in terms of most superior spinal segment along syrinx	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22526	C22526	Shunt valve type	Type of Shunt Valve	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22040	C22040	Motor strength testing intrinsic right hand scale	The amount of movement in the intrinsic muscles of the right hand	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C01521	C01521	Heart rate	The participant's pulse or number of contractions (heart beats) per minute	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2193-C55646	C55646	Eye convergence retraction indicator	The indicator related to eye convergence and retraction	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2163-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22521	C22521	Assessment pre surgical procedure date	Date of the patient's pre-surgery evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation

Displaying 251 - 275 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.