CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Chiari I Malformation Chiari I Malformation
C19833 Psychiatric depression indicator

Indicator of history of depression

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C19831 Psychiatric anxiety indicator

Indicator of anxiety

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22454 Pseudotumor papilledema family history condition indicator

The indicator related to personal or family history of pseudotumors or papilledema

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C18495 Protocol ID number

The designated number used to identify the protocol or study to which participants/subjects will be enrolled

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22456 Pregnancy miscarriage medical termination still birth count

The count related to the number of abortions, miscarriages, and/or still births the mother has had

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C16046 Pregnancy labor delivery complication indicator

Indicator of whether there were complications during labor/delivery

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22738 Precision grip difficulty indicator

Indicator of whether the patient/participant has experienced difficulty with his or her precision grip

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22772 Precipitating cause test type

Type of test(s) performed to identify the precipitating cause of the neurological disorder

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22773 Precipitating cause test date

Date on which the selected Precipitating Cause Test Type was performed

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22413 Pneumothorax hernia organ prolapse indicator

The indicator related to any clinical history of pneumothorax, hernias, or organ prolapse

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22766 Pituitary problem diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with a pituitary gland problem

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C56969 Phalens sign type

The reading of the participant/subject's Phalen's signs

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56971 Phalens sign positive side type

The side of the body that the participant/subject's Phalen's signs read positive

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56972 Phalens sign negative side type

The side of the body that the participant/subject's Phalen's signs read negative

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21784 Peripheral edema clubbing cyanosis absence text

The free text field related to identifying an absence of peripheral edema, clubbing or cyanosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C21781 Peripheral edema clubbing cyanosis absence indicator

The indicator related to identifying an absence of peripheral edema, clubbing or cyanosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C56958 Pelvic traction type

The participant/subject's capability of pelvic traction

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22520 Parenchymal morphology post surgical procedure tonsil shape type

Type of the shape of the patient's cerebellar tonsils post surgery

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22576 Parenchymal morphology post surgical procedure tonsil change measurement

Measurement related to the change in the patient's tonsil shape, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22525 Parenchymal morphology post surgical procedure brainstem shape type

Type of the shape of the patient's brainstem post surgery

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22577 Parenchymal morphology post surgical procedure brainstem change measurement

Measurement of the change in the patient's brainstem shape, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22726 Palpitations indicator

Indicator of whether the patient/participant has experienced palpitations

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C56996 Palpitation SI joint local pain text

Text field related to local pain within palpitation of SI joints

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
Displaying 251 - 275 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.