CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Chiari I Malformation	Chiari I Malformation
F2172-C58514	C58514	Empty sella turcica present indicator	The indicator related to presence of empty sella turcica	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F0016-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F1807-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F0016-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F0016-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2156-C22742	C22742	Excessive urination frequency indicator	Indicator of whether the patient/participant's urination frequency has been excessive	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22733	C22733	Extremity specific area pain decreased sensation indicator	Indicator of whether the patient/participant has experienced pain or decreased sensation in a specific area of his or her extremities	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22739	C22739	Extremity stiffness indicator	Indicator of whether the patient/participant has experienced stiffness in his or her extremities	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22736	C22736	Extremity weakness indicator	Indicator of whether the patient/participant has experienced weakness of his or her extremities	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2193-C55648	C55648	Eye absent visual fixation primary position type	The type as related to the primary position in absence of visual fixation	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2193-C55646	C55646	Eye convergence retraction indicator	The indicator related to eye convergence and retraction	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2193-C55650	C55650	Eye visual fixation left lateral gaze type	The type as related to left lateral gaze in visual fixation	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2193-C55647	C55647	Eye visual fixation primary position type	The type as related to the primary position during visual fixation	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2193-C55649	C55649	Eye visual fixation right lateral gaze type	The type as related to right lateral gaze in visual fixation	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2193-C55651	C55651	Eye visual fixation vertical downgaze type	The type as related to vertical downgaze in visual fixation	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2193-C55652	C55652	Eye visual fixation vertical upgaze type	The type as related to vertical upgaze in visual fixation	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2182-C22477	C22477	Family history allergy multiple mast cell disease activation disorder indicator	The indicator relating to personal or family history of allergy or multiple sensitivities, Mast Cell Disease, or Mast Cell Activation Disorder	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22455	C22455	Family history cranial synostosis condition type	The type related to personal or family history of the condition of cranial synostosis	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22427	C22427	Fetal alcohol syndrome condition indicator	The indicator related to the condition of fetal alcohol syndrome, which the group of signs and symptoms of birth defects caused by a woman drinking alcohol during pregnancy	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22728	C22728	Frequent nausea indicator	Indicator of whether the patient/participant has experienced frequent nausea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2165-C21714	C21714	Gag reflect status	Status as related to gag reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2140-C21714	C21714	Gag reflect status	Status as related to gag reflex	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2150-C11061	C11061	Gait assessment result	Result of the gait assessment	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F0016-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation

Displaying 251 - 275 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.