CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C01058 Traumatic Brain Injury symptom indicator

Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C21887 Injury whiplash indicator

The indicator relating to injury in the form of whiplash

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22406 Cutaneous stigmata occult tethered spinal cord lipoma indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for lipoma

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core Demographics Chiari I Malformation Chiari I Malformation
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

Core General Core Chiari I Malformation Chiari I Malformation
C22448 Hydrocephalus family history treated indicator

The indicator related to any personal or immediate family history of treated hydrocephalus

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22407 Cutaneous stigmata occult thread spinal cord appendage indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22415 Chiari malformation family history indicator

The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22431 Neck injury unspecified indicator

The indicator relating to any unspecified neck injuries the subject has had

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22399 Spina bifida diagnosis indicator

The indicator related to diagnosis of spina bifida

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core Demographics Chiari I Malformation Chiari I Malformation
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core Demographics Chiari I Malformation Chiari I Malformation
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

Core General Core Chiari I Malformation Chiari I Malformation
C22479 Spinal cord tethered lipoma indicator

The indicator related to having lipoma as the condition of tethered spinal cord (low lying conus medullaris)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22408 Cutaneous stigmata occult tethered spinal cord meningocele manque indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

Core Demographics Chiari I Malformation Chiari I Malformation
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Chiari I Malformation Chiari I Malformation
C22480 Spinal cord tethered myelomeningocele indicator

The indicator related to having myelomeningocele as the condition of tethered spinal cord (low lying conus medullaris)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22450 Hydrocephalus family history aqueductal stenosis indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically aqueductal stenosis, or the narrowing of the aqueducts in the brain causing the blockage of the flow of cerebrospinal fluid (CSF)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22409 Skin abnormality stretch mark indicator

The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22099 Modified Ashworth Scale - Limb tone testing left elbow scale

The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21725 Strabismus assessment indicator

The indicator related to strabismus which is a condition that interferes with binocular vision because it prevents a person from directing both eyes simultaneously towards the same fixation point

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22107 Modified Ashworth Scale - Limb tone testing left ankle scale

The scale of limb tone testing for the left ankle, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22030 Motor strength testing left iliopsoas scale

The amount of movement in the left iliopsoas

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22433 Medical history aortic root enlargement indicator

The indicator related to any medical history of the enlargement of the subject's aortic root

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 26 - 50 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.