CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 855

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Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C01058	Traumatic Brain Injury symptom indicator	Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C21887	Injury whiplash indicator	The indicator relating to injury in the form of whiplash	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22406	Cutaneous stigmata occult tethered spinal cord lipoma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for lipoma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22448	Hydrocephalus family history treated indicator	The indicator related to any personal or immediate family history of treated hydrocephalus	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
C22431	Neck injury unspecified indicator	The indicator relating to any unspecified neck injuries the subject has had	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22399	Spina bifida diagnosis indicator	The indicator related to diagnosis of spina bifida	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22407	Cutaneous stigmata occult thread spinal cord appendage indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22415	Chiari malformation family history indicator	The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22479	Spinal cord tethered lipoma indicator	The indicator related to having lipoma as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
C22408	Cutaneous stigmata occult tethered spinal cord meningocele manque indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22480	Spinal cord tethered myelomeningocele indicator	The indicator related to having myelomeningocele as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22450	Hydrocephalus family history aqueductal stenosis indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically aqueductal stenosis, or the narrowing of the aqueducts in the brain causing the blockage of the flow of cerebrospinal fluid (CSF)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
C22409	Skin abnormality stretch mark indicator	The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22195	Base head pressure indicator	The indicator related to pressure at the base of head	Core	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
C22481	Spinal cord tethered thick filum indicator	The indicator related to having thickened filum as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22451	Hydrocephalus family history ventricle variant indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically any ventricular variants, such as cavum septum pellucidum and cavum vergi	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
C22050	Motor strength testing left ankle pf scale	The amount of movement in the left ankle pf	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
C22564	Symptom depression pre surgical procedure score	Score related to the symptom scale of the subject's depression pre-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22101	Modified Ashworth Scale - Limb tone testing left wrist scale	The scale of limb tone testing for the left wrist, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
C21780	Headache primary laterality anatomic site	The location related to the lateral site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
C22572	Surgical procedure complication hematoma type	Type of hematoma the subject has, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation

Displaying 26 - 50 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.