CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22514 Cerebrospinal fluid Magendie patency change measurement

Measurement related to the change in the patency of the foramen on Magendie

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22219 Chiari malformation neurological examination sensation intact indicator

The indicator related to sensation being intact to touch, vibration, position sense, pin and temperature

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21735 Imaging syrinx lowest level spinal segment number

The number as related to the lowest level of syrinx, reported in terms of most inferior spinal segment along syrinx

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21685 Beighton Score - Motion finger bend back score

Score/Assessment of Motion to bend finger back as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22527 Shunt valve other text

The free-text related to shunt valve; specifying other text

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22041 Motor strength testing left quadricep scale

The amount of movement in the left quadricep

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C55647 Eye visual fixation primary position type

The type as related to the primary position during visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22409 Skin abnormality stretch mark indicator

The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C21770 Chiari malformation screening gastrointestinal gastric reflux irritable bowel syndrome malabsorption diagnosis indicator

The indicator related to diagnosis of gastric reflux, irritable bowel syndrome, or malabsorption in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22522 Surgical procedure complication pseudomeningocele indicator

Indicator related to the presence of a pseudomeningocele complication post-surgery

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22262 Reflex deep tendon reflex finger flexor response score

The response score related to deep tendon reflex testing of finger flexor (median/ulnar:c6-t1)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21743 Imaging posterior cranial fossa basion dens interval measurement

The measurement as related to distance from basion to tip of odontoid

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21768 Carotid radial pulse intact indicator

The indicator related to an intact carotid and radial pulse

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22539 Shunt valve reservoir refill lying not collect reason

Reason the time to refill after compression with the subject/participant lying down was not collected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22496 Surgical procedure wound revision requirement indicator

The indicator related to whether surgical wound revision was required

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22099 Modified Ashworth Scale - Limb tone testing left elbow scale

The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56990 Heel walking weakness type

Type of heel walking weakness

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21696 Chiari I malformation headache strain activity worsen symptom indicator

The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation

Supplemental-Highly Recommended Chiari List of 10 Chiari I Malformation Chiari I Malformation
C22760 Word selection anomia indicator

Indicator of whether the patient/participant is experiencing or exhibits problems with recalling words

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22459 Medical history Menieres disease indicator

The indicator related to medical history of Meniere's disease, an inner ear disease that causes vertigo, hearing problems, and a ringing sound in the ear

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Chiari I Malformation Chiari I Malformation
C22720 Tremor indicator

Indicator of whether the patient/participant has tremors

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21872 Medical history visual impairment indicator

The indicator related to personal medical history of visual impairment or legally blind

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22504 Cervical fusion indicator

The indicator related to cervical fusion

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22107 Modified Ashworth Scale - Limb tone testing left ankle scale

The scale of limb tone testing for the left ankle, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
Displaying 226 - 250 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.