CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2183-C22502	C22502	Spinal deformity indicator	The indicator related to a new spinal deformity or progression of an existing deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2163-C22302	C22302	Chiari malformation headache onset important symptom scale	The scale as related to headache at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2139-C21684	C21684	Beighton Score - Motion thumb forearm assessment score	Score/Assessment of the motion thumb to forearm as part of the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2155-C22310	C22310	Reflex pyramidal frontal release sign sucking status	The response status as related to pyramidal/frontal release sign sucking reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2273-C56956	C56956	Numerical Pain Rating Scale - Neck pain scale	The Numeric Scale - Neck Pain is a patient-reported outcome instrument used to assess neck pain in daily life	Supplemental	Numeric Rating Scale - Neck Pain	False	Chiari I Malformation	Chiari I Malformation
F2182-C22471	C22471	Methylenetetrahydrofolate reductase genetic defect indicator	The indicator related to the absence of the methylenetetrahydrofolate reductase (MTHFR) gene, a gene essential in converting vitamin B9 into a usable form and the body's growth and metabolism	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2158-C22543	C22543	Shunt valve functional assessment type	Shunt valve functional assessment type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2154-C22186	C22186	Chiari malformation I neurological examination ptosis absent extraocular muscles intact pupils equal round light reaction indicator	The indicator related to extraocular muscles (EOMs) are intact, intact pupils equal round react light (PERRL), and no ptosis	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56967	C56967	Tinels sign positive side type	The side of the body that the participant/subject's Tinel's signs read positive	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22361	C22361	Assessment post surgical procedure type	Type of post operative evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2163-C22323	C22323	Chiari malformation cardiac onset important symptom scale	The scale as related to cardiac at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2140-C21715	C21715	Tongue function deviation assessment status	Status as related to tongue function deviation	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2155-C22365	C22365	Reflex autonomic reflex valsalva maneuver status	The response status as related to autonomic reflexes valsalva maneuver status	Supplemental-Highly Recommended	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22479	C22479	Spinal cord tethered lipoma indicator	The indicator related to having lipoma as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2159-C22263	C22263	Spine range of motion trunk extension degree value	The value in degrees related to range in motion of trunk extension (30) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2156-C22759	C22759	Indecisiveness indicator	Indicator of whether the patient/participant is experiencing or exhibits difficulty making decisions	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2165-C22258	C22258	Reflex deep tendon reflex triceps response score	The response score related to deep tendon reflex testing of triceps (radial:c7-8)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22719	C22719	Tinnitus indicator	Indicator of whether the patient/participant has tinnitus or a high-pitched ringing in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2165-C22026	C22026	Motor strength testing right deltoid scale	The amount of movement in the right deltoid muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22573	C22573	Surgical procedure complication mechanic displacement indicator	Indicator related to the complication of mechanical displacement	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2147-C21766	C21766	Chiari malformation screening echocardiogram mitral valve prolapse aortic aneurysm diagnosis indicator	The indicator related to ever having a echocardiogram reveal mitral valve prolapse (MVP) or aortic aneurysm (or enlargement) in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2151-C22105	C22105	Modified Ashworth Scale - Limb tone testing left knee scale	The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22516	C22516	Syrinx length measurement	Measurement of the longitudinal length of the subject's spinal syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22310	C22310	Reflex pyramidal frontal release sign sucking status	The response status as related to pyramidal/frontal release sign sucking reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21758	C21758	Normocephalic assessment indicator	The indicator related to person whose head and all major organs of the head are in a normal condition and without significant abnormalities	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.