CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 861
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22561 Symptom activity daily life pre surgical procedure score

Score related to the symptom scale of the subject's activities of daily life (ADLs) pre-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22238 Headache associate symptom type

The type related to the associated symptoms that the subject is experiencing during his/her headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C22377 Tonsil right cerebellar measurement

Measurement related to the lowest position of the patient's right cerebellar tonsil

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21791 Headache frequency score

The score relating to the rate at which the patient's headache occurs over a period of time

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22206 Chiari malformation neurological examination heel toe walking normal indicator

The indicator related to heel and toe walking being normal

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22301 Reflex pyramidal frontal release sign snout status

The response status as related to pyramidal/frontal release sign snout reflex

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22227 Sensory abnormal burning pain indicator

The indicator related to abnormal burning pain

Supplemental Sensory Symptoms Chiari I Malformation Chiari I Malformation
C21797 Upper lower limb pulse intact indicator

The indicator related to intact upper and lower limbs

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22031 Motor strength testing right triceps scale

The amount of movement in the right triceps muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21724 Nausea vomit assessment status

The status as related to nausea and vomiting

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22569 Surgical procedure complication infection indicator

Indicator relating to the complication of infection

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22399 Spina bifida diagnosis indicator

The indicator related to diagnosis of spina bifida

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22245 Surgical procedure hardware anatomic site other text

The free-text field related to other anatomic site of hardware in surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22398 Cerebrospinal fluid ventral space change measurement

Measurement related to the change in width of the ventral cerebrospinal fluid (CSF) space at the foramen magnum

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22217 Chiari malformation neurological examination coordination rapid alternating movement intact indicator

The indicator related to coordination and rapid alternating movements being intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21733 Imaging syrinx length spinal segment count

The number of spinal segments for length of syrinx as measure on sagittal MRI scan

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22523 Shunt valve manufacturer other text

The free-text related to shunt valve manufacturer; specifying other text

Exploratory Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22039 Motor strength testing right quadricep scale

The amount of movement in the right quadricep

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22071 Modified Ashworth Scale - Limb tone testing right elbow scale

The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22381 Chiari malformation tethered spinal cord occasional fecal incontinence indicator

The indicator related to the occasional incontinence (in context of stool)

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22665 Medical history chronic constipation indicator

Indicator of whether the participant/subject has/had chronic constipation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22494 Ventral decompression type

The type of ventral decompression utilitized (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22062 Modified Ashworth Scale - Limb tone testing left shoulder scale

The scale of limb tone testing for the left shoulder, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56988 Lumbar posture type

Type of lumbar posture

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22758 Long-term memory loss indicator

Indicator of whether the patient/participant is experiencing a decline in long-term memory

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
Displaying 226 - 250 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.