CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 226 - 250 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22756 Genital pelvic sensation loss indicator

Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22455 Family history cranial synostosis condition type

The type related to personal or family history of the condition of cranial synostosis

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22104 Modified Ashworth Scale - Limb tone testing right knee scale

The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22387 Chiari malformation tethered spinal cord sole numbness indicator

The indicator related to numbness in the soles of an individual's feet

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22716 Ear pressure indicator

Indicator of whether the patient/participant has pressure in his or her ears

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21720 Vertigo assessment indicator

Indicator as related to assessment of vertigo

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C19806 Medical history endocrine diabetes indicator

Indicator of diabetes

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22500 Surgical procedure wound revision requirement six month indicator

The indicator related to a surgical wound revision required at 6 months post Chiari decompression

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22103 Modified Ashworth Scale - Limb tone testing left hip scale

The scale of limb tone testing for the left hip, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56994 Spinal percussion local pain text

Text field related to the spinal percussion local pain

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22764 Joint hypermobility indicator

Indicator of whether the patient/participant is experiencing or exhibits hypermobility of one or more joints

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22469 Medical history tuberculosis condition indicator

The indicator related to medical history of the condition tuberculosis (TB)

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C19256 Study protocol name

Name of study protocol

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22724 Speech difficulty indicator

Indicator of whether the patient/participant has difficulty with speech

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21692 Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator

The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21876 Surgical history pacemaker indicator

The indicator related to surgical history of a pacemaker

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22265 Spine range of motion trunk forward flexion position anatomic site

The anatomic site relating to the position of range of motion of trunk forward flexion in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C22187 Chiari malformation I neurological examination nystagmus absent indicator

The indicator related to not having nystagmus

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21779 Abdomen soft non tender text

The free text field related to identifying a soft and non-tender abdomen

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22430 Brain injury unspecified indicator

The indicator relating to any unspecified brain injuries the subject has had

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22345 Chiari malformation brain fog onset symptom severity scale

The scale as related to brain fog at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22560 Symptom cranial nerve surgical procedure change score

Score related to the change in the subject's cranial nerves scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22367 Reflex autonomic reflex cold pressor test status

The response status as related to autonomic reflexes cold pressor test status

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C22236 Headaches factor aggravate type

The type related to what aggravates the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C22376 Tonsil lowest position measurement

Measurement of the lowest position of the patient's tonsils

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
Displaying 226 - 250 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.