CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 861

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2145-C21684	C21684	Beighton Score - Motion thumb forearm assessment score	Score/Assessment of the motion thumb to forearm as part of the Beighton Score	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22502	C22502	Spinal deformity indicator	The indicator related to a new spinal deformity or progression of an existing deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22105	C22105	Modified Ashworth Scale - Limb tone testing left knee scale	The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56996	C56996	Palpitation SI joint local pain text	Text field related to local pain within palpitation of SI joints	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22766	C22766	Pituitary problem diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with a pituitary gland problem	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22471	C22471	Methylenetetrahydrofolate reductase genetic defect indicator	The indicator related to the absence of the methylenetetrahydrofolate reductase (MTHFR) gene, a gene essential in converting vitamin B9 into a usable form and the body's growth and metabolism	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2147-C21769	C21769	Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator	The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2165-C21714	C21714	Gag reflect status	Status as related to gag reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22726	C22726	Palpitations indicator	Indicator of whether the patient/participant has experienced palpitations	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2145-C21763	C21763	Temporal artery tenderness absent assessment text	The free text field related to not having any tenderness in temporal arteries which supply blood to the head and brain	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55643	C55643	Neck Disability Index - driving indicator	The driving pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2157-C22210	C22210	Sensory upper extremity numbness tingling symptom indicator	The indicator related to numbness/tingling in the upper extremities	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2182-C22479	C22479	Spinal cord tethered lipoma indicator	The indicator related to having lipoma as the condition of tethered spinal cord (low lying conus medullaris)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2148-C21780	C21780	Headache primary laterality anatomic site	The location related to the lateral site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2165-C22028	C22028	Motor strength testing right bicep scale	The amount of movement in the right bicep muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56963	C56963	Straight leg raising leg pain leg type	The leg(s) that the patient has pain in from straight leg raising	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22734	C22734	Skin change indicator	Indicator of whether the patient/participant has experienced a skin change	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22430	C22430	Brain injury unspecified indicator	The indicator relating to any unspecified brain injuries the subject has had	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2145-C21784	C21784	Peripheral edema clubbing cyanosis absence text	The free text field related to identifying an absence of peripheral edema, clubbing or cyanosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22345	C22345	Chiari malformation brain fog onset symptom severity scale	The scale as related to brain fog at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2183-C22462	C22462	Cervical laminotomy indicator	The indicator related to cervical laminotomy performed	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21833	C21833	Headache symptom association type	The type as related to symptoms consistently associated with headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2165-C22036	C22036	Motor strength testing right wrist flexion scale	The amount of movement in the flexion of the right wrist muscles	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56972	C56972	Phalens sign negative side type	The side of the body that the participant/subject's Phalen's signs read negative	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22742	C22742	Excessive urination frequency indicator	Indicator of whether the patient/participant's urination frequency has been excessive	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.