CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 201 - 225 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22187 Chiari malformation I neurological examination nystagmus absent indicator

The indicator related to not having nystagmus

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21779 Abdomen soft non tender text

The free text field related to identifying a soft and non-tender abdomen

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22430 Brain injury unspecified indicator

The indicator relating to any unspecified brain injuries the subject has had

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22345 Chiari malformation brain fog onset symptom severity scale

The scale as related to brain fog at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22560 Symptom cranial nerve surgical procedure change score

Score related to the change in the subject's cranial nerves scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22367 Reflex autonomic reflex cold pressor test status

The response status as related to autonomic reflexes cold pressor test status

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C22236 Headaches factor aggravate type

The type related to what aggravates the subject's headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C22376 Tonsil lowest position measurement

Measurement of the lowest position of the patient's tonsils

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21790 Headache frequency type

The rate at which a headache occurs over a period of time

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22204 Chiari malformation neurological examination gait station normal indicator

The indicator related to gait and station being normal

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21796 Limb length discrepancy absent indicator

The indicator related to limb length discrepancy absence

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22568 Surgical procedure complication transdermal cerebrospinal fluid leak etiology type

Type related to the etiology of the trans-dermal cerebrospinal fluid (CSF) leak, if present

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21887 Injury whiplash indicator

The indicator relating to injury in the form of whiplash

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22243 Surgical procedure hardware anatomic site

The anatomic site related to hardware of surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22397 Cerebrospinal fluid ventral space measurement

Measurement related to the minimal cerebrospinal fluid (CSF) space ventral to the spinal canal (SC) at the foramen magnum

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21839 Headache pain relief factor type

The type as related to pain relief factor for headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22216 Chiari malformation neurological examination tone normal indicator

The indicator related to tone being normal, no abnormal movements or tremors are noted

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21732 Imaging syrinx present indicator

The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging

Supplemental-Highly Recommended Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22512 Shunt function valve anatomic site type

Site/location

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22038 Motor strength testing left wrist flexion scale

The amount of movement in the flexion of the left wrist muscles

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22576 Parenchymal morphology post surgical procedure tonsil change measurement

Measurement related to the change in the patient's tonsil shape, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22406 Cutaneous stigmata occult tethered spinal cord lipoma indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for lipoma

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22519 Syrinx width change measurement

Measurement of the change in the maximum width of the patient's spinal syrinx after the operation

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22250 Reflex deep tendon reflex biceps response score

The response score related to deep tendon reflex testing of biceps (musculocutaneous:c5-6)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C21740 Imaging posterior cranial fossa basion axial interval measurement

The measurement as related to distance from tip of basion to posterior axial line

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
Displaying 201 - 225 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.