CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 861
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22567 Surgical procedure complication transdermal cerebrospinal fluid leak indicator

Indicator related to the complication of a trans-dermal cerebrospinal fluid (CSF) leak in the patient's brain

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22719 Tinnitus indicator

Indicator of whether the patient/participant has tinnitus or a high-pitched ringing in his or her ears

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21870 Medical history Lyme disease indicator

The indicator related to personal medical history of Lyme disease

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22396 Cerebrospinal fluid dorsal space change measurement

Measurement related to the change in the width of the dorsal cerebrospinal fluid (CSF) spaces

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21777 Abdomen soft non tender indicator

The indicator related to identifying a soft and non tender abdomen

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C21731 Imaging cerebellar tonsil shape type

The type as related to the relative tonsil shape reported

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22767 Bleeding clotting disorder indicator

Indicator of whether the patient/participant has ever had a bleeding or blood clotting disorder

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21944 Dizziness motion related duration type

The duration as related to the motion related dizziness

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22575 Surgical procedure performed date

Date the surgical procedure was performed on the subject

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22727 Breath shortness indicator

Indicator of whether the patient/participant has experienced shortness of breath

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21841 Headache pain relief factor score

The score related to pain relief factor for headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21788 Headache quality score

The score related to the quality of the patient's headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22405 Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22518 Syrinx width measurement

Measurement of the maximum width of the patient's spinal syrinx after the operation

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21795 TMJ intact indicator

The indicator related to an intact TMJ

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C21739 Imaging posterior cranial fossa pB-C2 measurement

The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22492 Blood estimate loss measurement

The measurement related to the estimated amount of blood loss

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22334 Chiari malformation numbness tingling onset symptom severity scale

The scale as related to numbness/tingling at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22052 Motor strength testing left ehl scale

The amount of movement in the left EHL

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22303 Reflex pyramidal frontal release sign hand grasp status

The response status as related to pyramidal/frontal release sign hand grasp reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C56986 Trigger point trapezius type

Type of trapezius trigger point

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22455 Family history cranial synostosis condition type

The type related to personal or family history of the condition of cranial synostosis

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22268 Spine range of motion trunk left lateral bend degree value

The value in degrees related to range in motion of trunk left lateral bend (25) in assessment of spine

Exploratory Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C22387 Chiari malformation tethered spinal cord sole numbness indicator

The indicator related to numbness in the soles of an individual's feet

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22185 Chiari malformation neurological examination visual field full indicator

The indicator related to visual fields being full to confrontation

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
Displaying 176 - 200 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.