CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2159-C22266	C22266	Spine range of motion trunk forward flexion estimate degree value	The value in degrees related to range in motion of trunk forward flexion (100) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2154-C22188	C22188	Chiari malformation neurological examination facial asymmetry weakness absent indicator	The indicator related to not having facial asymmetry or weakness	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2142-C21702	C21702	Coordination stance assessment scale	The scale related to assessment of way someone stands	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2183-C22498	C22498	Cranioplasty cerebelloplasty performed six month type	The type of cranioplasty/ cerebelloplasty performed post Chiari decompression at the 6 month point	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2138-C21675	C21675	Allergy medication name	Name related to the medication causing allergic reaction	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2194-C56992	C56992	Toe walking weakness type	Type of toe walking weakness	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22466	C22466	Medical history infectious disease central nervous system implication indicator	The indicator related to the history of an infectious disease with central nervous system (CNS) implications	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22431	C22431	Neck injury unspecified indicator	The indicator relating to any unspecified neck injuries the subject has had	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22347	C22347	Chiari malformation cardiac onset symptom severity scale	The scale as related to cardiac at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2160-C22238	C22238	Headache associate symptom type	The type related to the associated symptoms that the subject is experiencing during his/her headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2154-C22206	C22206	Chiari malformation neurological examination heel toe walking normal indicator	The indicator related to heel and toe walking being normal	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22301	C22301	Reflex pyramidal frontal release sign snout status	The response status as related to pyramidal/frontal release sign snout reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2142-C21710	C21710	Coordination heel to shin left lower extremity assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (lower extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2183-C22506	C22506	Thoracolumbar brace text	The free-text field related to how long the brace was utilized	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2138-C21683	C21683	Allergy reaction other source indicator	Indicator related to other source of allergic reaction	Exploratory	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2272-C55639	C55639	Neck Disability Index - reading indicator	The pain indicator of reading as it relates to the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22475	C22475	Medical history spinal stenosis indicator	The indicator related to any medical history of spinal stenosis in the subject, in which the subject's spine narrows	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56961	C56961	Straight leg raising pain type	The participant/subject's capability of straight leg raising	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2147-C21767	C21767	Chiari malformation screening orthopedic joint hip dislocation unusual pain screen indicator	The indicator related to any kind of hip or any other joint dislocation, unusual joint pain, or susceptibility to joint injury in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22558	C22558	Symptom cranial nerve pre surgical procedure score	Score related to the symptom scale of the subject's cranial nerves pre surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2145-C21762	C21762	Temporal artery tenderness absent assessment indicator	The indicator related to not having any tenderness in temporal arteries which supply blood to the head and brain	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22372	C22372	Imaging pre surgical procedure date	Date of pre-surgical imaging	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2165-C22046	C22046	Motor strength testing left hamstring scale	The amount of movement in the left hamstring	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2149-C21879	C21879	Surgical history prosthetic implantation indicator	The indicator related to surgical history of prosthetic implantation	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22750	C22750	Celiac disease gluten sensitivity diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with celiac disease or gluten sensitivity	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

Displaying 176 - 200 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.