CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22243 Surgical procedure hardware anatomic site

The anatomic site related to hardware of surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22397 Cerebrospinal fluid ventral space measurement

Measurement related to the minimal cerebrospinal fluid (CSF) space ventral to the spinal canal (SC) at the foramen magnum

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21839 Headache pain relief factor type

The type as related to pain relief factor for headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22216 Chiari malformation neurological examination tone normal indicator

The indicator related to tone being normal, no abnormal movements or tremors are noted

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21732 Imaging syrinx present indicator

The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging

Supplemental-Highly Recommended Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22512 Shunt function valve anatomic site type

Site/location

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22038 Motor strength testing left wrist flexion scale

The amount of movement in the flexion of the left wrist muscles

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22576 Parenchymal morphology post surgical procedure tonsil change measurement

Measurement related to the change in the patient's tonsil shape, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22406 Cutaneous stigmata occult tethered spinal cord lipoma indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for lipoma

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22519 Syrinx width change measurement

Measurement of the change in the maximum width of the patient's spinal syrinx after the operation

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22250 Reflex deep tendon reflex biceps response score

The response score related to deep tendon reflex testing of biceps (musculocutaneous:c5-6)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C21740 Imaging posterior cranial fossa basion axial interval measurement

The measurement as related to distance from tip of basion to posterior axial line

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22536 Shunt valve set type

setting type (confirmation, mechanical, electronic)

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22046 Motor strength testing left hamstring scale

The amount of movement in the left hamstring

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22757 Short-term memory loss indicator

Indicator of whether the patient/participant is experiencing a loss of short-term memory

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22456 Pregnancy miscarriage medical termination still birth count

The count related to the number of abortions, miscarriages, and/or still births the mother has had

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22105 Modified Ashworth Scale - Limb tone testing left knee scale

The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22388 Chiari malformation tethered spinal cord knee bent sleep back pain indicator

The indicator related to knees bent at night to relieve back or leg discomfort

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22717 Stand unsteady indicator

Indicator of whether the patient/participant feels unsteady when standing

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21722 Oculomotor saccadic pursuit assessment indicator

Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21869 Medical history coronary artery disease indicator

The indicator related to personal medical history of coronary artery disease

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core Demographics Chiari I Malformation Chiari I Malformation
C22501 Cranioplasty cerebelloplasty performed six month plus type

The type of cranioplasty/cerebelloplasty perfomed at 6 months plus post Chiari decompression

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22104 Modified Ashworth Scale - Limb tone testing right knee scale

The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
Displaying 176 - 200 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.