CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22470	C22470	Diamond blackfan anemia disorder indicator	The indicator related to the presence of the disorder Diamond-Blackfan anemia (DBA), in which the bone marrow malfunctions and fails to produce enough red blood cells	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2139-C21687	C21687	Beighton Score - Motion knee hyperextend score	Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2148-C21844	C21844	Headache assessment total score	The total score of headache assessment	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2165-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22725	C22725	Vocal hoarseness increase indicator	Indicator of whether the patient/participant has experienced an increase in vocal hoarseness	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22360	C22360	Assessment post surgical procedure date	Date related to post operative evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2151-C22102	C22102	Modified Ashworth Scale - Limb tone testing right wrist scale	The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22260	C22260	Reflex deep tendon reflex brachioradialis response score	The response score related to deep tendon reflex testing of brachioradialis (radial:c5-6)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55642	C55642	Neck Disability Index - work indicator	The work pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22773	C22773	Precipitating cause test date	Date on which the selected Precipitating Cause Test Type was performed	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22478	C22478	Attention deficit hyperactivity disorder indicator	The indicator related to the disorders of attention deficit disorder (ADD) and attention deficit hyperactivity disorder (ADHD)	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2140-C21718	C21718	Cardiac arrhythmia finding text	The free-text field to explain the findings of the cardiac arrhythmia	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2149-C19761	C19761	Medical history glaucoma diagnosis indicator	Indicator of history of Glaucoma	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2165-C22027	C22027	Motor strength testing left deltoid scale	The amount of movement in the left deltoid muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56962	C56962	Cervical extraction type	Type of cervical extraction (sitting)	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22733	C22733	Extremity specific area pain decreased sensation indicator	Indicator of whether the patient/participant has experienced pain or decreased sensation in a specific area of his or her extremities	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2155-C22303	C22303	Reflex pyramidal frontal release sign hand grasp status	The response status as related to pyramidal/frontal release sign hand grasp reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22569	C22569	Surgical procedure complication infection indicator	Indicator relating to the complication of infection	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2147-C21774	C21774	Chiari malformation screening bruise stretch mark skin hernia prolapse scar formation indicator	The indicator related to easy bruising, stretch marks, stretchy skin, hernias, prolapses, or unusual scar formation in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22185	C22185	Chiari malformation neurological examination visual field full indicator	The indicator related to visual fields being full to confrontation	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22399	C22399	Spina bifida diagnosis indicator	The indicator related to diagnosis of spina bifida	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22245	C22245	Surgical procedure hardware anatomic site other text	The free-text field related to other anatomic site of hardware in surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22398	C22398	Cerebrospinal fluid ventral space change measurement	Measurement related to the change in width of the ventral cerebrospinal fluid (CSF) space at the foramen magnum	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2145-C21776	C21776	Chest clear text	The free text field related to a clear chest	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21733	C21733	Imaging syrinx length spinal segment count	The number of spinal segments for length of syrinx as measure on sagittal MRI scan	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.