CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2148-C21843	C21843	Headache aggravating pain factor score	The score related to factor aggravating headache pain	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2140-C21717	C21717	Sleep disorder finding type	Type as related to sleep disorder	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2182-C22451	C22451	Hydrocephalus family history ventricle variant indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically any ventricular variants, such as cavum septum pellucidum and cavum vergi	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2158-C22538	C22538	Shunt valve reservoir refill sit time	Shunt valve reservoir refill sitting time	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21771	C21771	Chiari malformation screening wound prolong heal separation indicator	The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2155-C22291	C22291	Reflex superficial reflex anal response status	The response status of superficial reflex testing of anal (inf. Hemorrhoidal: S2-S4)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C21772	C21772	Carotid radial pulse intact text	The free text field related to an intact carotid and radial pulse	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2151-C22101	C22101	Modified Ashworth Scale - Limb tone testing left wrist scale	The scale of limb tone testing for the left wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2154-C22181	C22181	Chiari malformation neurological examination speech fluent comprehension intact indicator	The indicator related to speech being fluent and comprehension intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22496	C22496	Surgical procedure wound revision requirement indicator	The indicator related to whether surgical wound revision was required	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2272-C55645	C55645	Neck Disability Index - recreation indicator	The recreation indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2149-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22311	C22311	Chiari malformation imbalance dizziness onset important symptom scale	The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2140-C22774	C22774	Hoarseness assessment indicator	The indicator related to hoarseness which describes abnormal voice changes	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2182-C22459	C22459	Medical history Menieres disease indicator	The indicator related to medical history of Meniere's disease, an inner ear disease that causes vertigo, hearing problems, and a ringing sound in the ear	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56966	C56966	Jugular compression type	Type of jugular compression	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2159-C22255	C22255	Spine range of motion neck right rotation degree value	The value in degrees related to range in motion of neck to the right (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21783	C21783	Headache focal point extension radiation type	The type of extension from the focal point of the headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2182-C22418	C22418	Birth delivery forceps use indicator	The indicator related to birth presentation at delivery requiring the use of forceps	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22106	C22106	Modified Ashworth Scale - Limb tone testing right ankle scale	The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22767	C22767	Bleeding clotting disorder indicator	Indicator of whether the patient/participant has ever had a bleeding or blood clotting disorder	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22548	C22548	Symptom headache surgical procedure change score	Score related to the change in the subject's headache scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21752	C21752	Imaging spine anomaly atlas assimilation present indicator	The indicator related to the atlas assimilation on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2165-C21715	C21715	Tongue function deviation assessment status	Status as related to tongue function deviation	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22727	C22727	Breath shortness indicator	Indicator of whether the patient/participant has experienced shortness of breath	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.