CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 176 - 200 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22276 Reflex deep tendon reflex hamstring response score

The response score related to deep tendon reflex testing of hamstring (sciatic/tibial:l4-s2)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21747 Imaging posterior cranial fossa supraoccipital length measurement

The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22543 Shunt valve functional assessment type

Shunt valve functional assessment type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21765 Chiari malformation screening dental development poor enamel temporomandibular joint problem indicator

The indicator related to having any developmental problems with teeth, poor dental enamel or temporomandibular joint disorder in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22176 Chiari malformation neurological examination alert orient indicator

The indicator related to patient being alert and oriented to person, place and time

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55659 Cervical posture type

The type as related to cervical posture

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22421 Gestation twin indicator

The indicator related to a twin gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22323 Chiari malformation cardiac onset important symptom scale

The scale as related to cardiac at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22551 Symptom general pain surgical procedure change score

Score related to the change in the subject's general pain scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22310 Reflex pyramidal frontal release sign sucking status

The response status as related to pyramidal/frontal release sign sucking reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21755 Imaging spine anomaly spinal dysraphism present indicator

In this context, we define spina bifida occulta as non-fusion of the posterior spinal elements without evidence of any other abnormality of the spinal cord or dura

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22263 Spine range of motion trunk extension degree value

The value in degrees related to range in motion of trunk extension (30) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C22186 Chiari malformation I neurological examination ptosis absent extraocular muscles intact pupils equal round light reaction indicator

The indicator related to extraocular muscles (EOMs) are intact, intact pupils equal round react light (PERRL), and no ptosis

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21777 Abdomen soft non tender indicator

The indicator related to identifying a soft and non tender abdomen

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22732 Burning pain abnormal extremity indicator

Indicator of whether the patient/participant has experienced an abnormal burning pain in his or her extremeties

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22428 Material infection condition indicator

The indicator related to the condition of a maternal infection developing during pregnancy

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C21886 Injury Head Indicator

The indicator relating to traumatic head injury

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

Supplemental-Highly Recommended Beighton Score Chiari I Malformation Chiari I Malformation
C22460 Suboccipital craniectomy size left right measurement range

The range of measurement related to the size of the suboccipital craniectomy left or right

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22034 Motor strength testing right wrist extension scale

The amount of movement in the extension of the right wrist muscles

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56970 Muscle spasm type

Type of muscle spasm

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22740 Urination urge control difficulty indicator

Indicator of whether the patient/participant has experienced difficulty controlling the urge to urinate

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22439 Head shape dolichocephaly indicator

The indicator related to head shape dolicocephaly, in which the subject's head is longer that would be expected, relative to its width

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C21925 Balance falls frequency

The frequency as related to falls

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
Displaying 176 - 200 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.