CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22401	C22401	Spina bifida myelomeningocele diagnosis indicator	The indicator related to myelomeningocele which is when before birth, the baby's backbone, spinal cord and the structure they float in (spinal canal) do not form or close normally	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22254	C22254	Surgical procedure trigger point anatomic site	The anatomic site as related to trigger points in surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22514	C22514	Cerebrospinal fluid Magendie patency change measurement	Measurement related to the change in the patency of the foramen on Magendie	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21735	C21735	Imaging syrinx lowest level spinal segment number	The number as related to the lowest level of syrinx, reported in terms of most inferior spinal segment along syrinx	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22527	C22527	Shunt valve other text	The free-text related to shunt valve; specifying other text	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2156-C22763	C22763	Nipple discharge indicator	Indicator of whether the patient/participant is experiencing or exhibits discharge from one or both nipples	Exploratory	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22723	C22723	Throat tight indicator	Indicator of whether the patient/participant has throat tightness	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2141-C21691	C21691	Chiari I malformation neck pain stiff radiate shoulder symptom indicator	The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2193-C55647	C55647	Eye visual fixation primary position type	The type as related to the primary position during visual fixation	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2149-C21875	C21875	Surgical history cardiac bypass stent indicator	The indicator related to surgical history of cardiac bypass/stent	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22409	C22409	Skin abnormality stretch mark indicator	The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22522	C22522	Surgical procedure complication pseudomeningocele indicator	Indicator related to the presence of a pseudomeningocele complication post-surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21743	C21743	Imaging posterior cranial fossa basion dens interval measurement	The measurement as related to distance from basion to tip of odontoid	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22539	C22539	Shunt valve reservoir refill lying not collect reason	Reason the time to refill after compression with the subject/participant lying down was not collected	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2156-C22771	C22771	Snoring indicator	Indicator of whether the patient/participant snores during sleep	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2152-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22731	C22731	Sensation loss extremities indicator	Indicator of whether the patient/participant has experienced a partial or complete loss of sensation in his or her extremities	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2141-C21699	C21699	Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator	The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2193-C55655	C55655	Nystagmus rebound indicator	The indicator related to nystagmus rebound or assessment for presence of nystagmus in primary after persistent eccentric gaze	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2149-C21885	C21885	Pain general leg indicator	The indicator relating to general leg pain	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22417	C22417	Birth delivery breech indicator	The indicator related to birth presentation at delivery being a breech birth	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22313	C22313	Chiari malformation visual symptoms onset important symptom scale	The scale as related to visual symptoms at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22547	C22547	Symptom headache post surgical procedure score	Score related to the symptom scale of the subject's headache post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21751	C21751	Imaging spine anomaly congenital fusion cervical vertebrae present indicator	The indicator related to the congenital fusion of cervical vertebrate on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2159-C22256	C22256	Spine range of motion neck left rotation degree value	The value in degrees related to range in motion of neck to the left (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.