CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2190-C22373	C22373	Imaging pre surgical procedure type	Type of pre-surgical imaging	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21788	C21788	Headache quality score	The score related to the quality of the patient's headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22203	C22203	Chiari malformation neurological examination dysarthria dysphonia absent indicator	The indicator related to not having dysarthria or dysphonia	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21795	C21795	TMJ intact indicator	The indicator related to an intact TMJ	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22567	C22567	Surgical procedure complication transdermal cerebrospinal fluid leak indicator	Indicator related to the complication of a trans-dermal cerebrospinal fluid (CSF) leak in the patient's brain	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2156-C21692	C21692	Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator	The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C21870	C21870	Medical history Lyme disease indicator	The indicator related to personal medical history of Lyme disease	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22241	C22241	Surgical procedure wound healing assessment other text	The free-text field related to other wound healing assessment from surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22396	C22396	Cerebrospinal fluid dorsal space change measurement	Measurement related to the change in the width of the dorsal cerebrospinal fluid (CSF) spaces	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21838	C21838	Headache duration score	The score related to type of duration of headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22215	C22215	Chiari malformation neurological examination plantar flexor response indicator	The indicator related to plantar responses are flexor	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21731	C21731	Imaging cerebellar tonsil shape type	The type as related to the relative tonsil shape reported	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22511	C22511	Shunt valve manufacturer type	Manufacturer of valve	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22037	C22037	Motor strength testing gluteus left scale	The amount of movement in the left gluteus	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22575	C22575	Surgical procedure performed date	Date the surgical procedure was performed on the subject	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2182-C22405	C22405	Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22518	C22518	Syrinx width measurement	Measurement of the maximum width of the patient's spinal syrinx after the operation	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2183-C22492	C22492	Blood estimate loss measurement	The measurement related to the estimated amount of blood loss	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22052	C22052	Motor strength testing left ehl scale	The amount of movement in the left EHL	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56986	C56986	Trigger point trapezius type	Type of trapezius trigger point	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22756	C22756	Genital pelvic sensation loss indicator	Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22455	C22455	Family history cranial synostosis condition type	The type related to personal or family history of the condition of cranial synostosis	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2151-C22104	C22104	Modified Ashworth Scale - Limb tone testing right knee scale	The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22387	C22387	Chiari malformation tethered spinal cord sole numbness indicator	The indicator related to numbness in the soles of an individual's feet	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22716	C22716	Ear pressure indicator	Indicator of whether the patient/participant has pressure in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.