CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 126 - 150 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C55653 Head shake thrust status

The status related to head shake/thrust

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22415 Chiari malformation family history indicator

The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22309 Chiari malformation numbness tingling onset important symptom scale

The scale as related to numbness/tingling at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22534 Surgical procedure complication fluid collection type

Type of fluid collection in the patient's brain post operation, if any

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21749 Imaging posterior cranial fossa superior posterior fossa length measurement

The measurement as related to distance from dorsum sella to internal occipital protuberance

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22545 Shunt valve scan date

Date of shunt valve scan

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22298 Reflex pyramidal frontal release sign glabellar status

The response status as related to pyramidal/frontal release sign glabellar reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C22183 Chiari malformation neurological examination funduscopic exam benign indicator

The indicator related to funduscopic exam being benign and discs flat

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21722 Oculomotor saccadic pursuit assessment indicator

Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22745 Interstitial cystitis diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with interstitial cystitis

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21770 Chiari malformation screening gastrointestinal gastric reflux irritable bowel syndrome malabsorption diagnosis indicator

The indicator related to diagnosis of gastric reflux, irritable bowel syndrome, or malabsorption in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core Demographics Chiari I Malformation Chiari I Malformation
C22195 Base head pressure indicator

The indicator related to pressure at the base of head

Core Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21768 Carotid radial pulse intact indicator

The indicator related to an intact carotid and radial pulse

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C21872 Medical history visual impairment indicator

The indicator related to personal medical history of visual impairment or legally blind

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C22361 Assessment post surgical procedure type

Type of post operative evaluation

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22262 Reflex deep tendon reflex finger flexor response score

The response score related to deep tendon reflex testing of finger flexor (median/ulnar:c6-t1)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55643 Neck Disability Index - driving indicator

The driving pain indicator of the subject/participant as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22479 Spinal cord tethered lipoma indicator

The indicator related to having lipoma as the condition of tethered spinal cord (low lying conus medullaris)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22028 Motor strength testing right bicep scale

The amount of movement in the right bicep muscle

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56963 Straight leg raising leg pain leg type

The leg(s) that the patient has pain in from straight leg raising

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21693 Chiari I malformation position change dizzy symptom indicator

The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation

Supplemental Chiari List of 10 Chiari I Malformation Chiari I Malformation
C22753 Sexual arousal difficulty maintain indicator

Indicator of whether the patient/participant is experiencing difficulty maintaining sexual arousal

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21782 Headache primary laterality anatomic site score

The score relating to the anatomic site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22713 Vision blurred indicator

Indicator of whether the patient/participant has blurred vision

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
Displaying 126 - 150 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.