CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 861
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22321 Reflex pyramidal frontal release sign palmomental status

The response status as related to pyramidal/frontal release sign palmomental reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21757 Imaging hydrocephalus ventriculomegaly finding indicator

The indicator related to presence of hydrocephalus/ventriculomegaly

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22266 Spine range of motion trunk forward flexion estimate degree value

The value in degrees related to range in motion of trunk forward flexion (100) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C22508 Spinal deformity stabilization text

The free-text field related to the highest/lowest level of surgical stabilization of the spinal deformity

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C21778 Headache primary anatomic site

The location related to the anatomic site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22188 Chiari malformation neurological examination facial asymmetry weakness absent indicator

The indicator related to not having facial asymmetry or weakness

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21781 Peripheral edema clubbing cyanosis absence indicator

The indicator related to identifying an absence of peripheral edema, clubbing or cyanosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22561 Symptom activity daily life pre surgical procedure score

Score related to the symptom scale of the subject's activities of daily life (ADLs) pre-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22238 Headache associate symptom type

The type related to the associated symptoms that the subject is experiencing during his/her headache

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C22377 Tonsil right cerebellar measurement

Measurement related to the lowest position of the patient's right cerebellar tonsil

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21791 Headache frequency score

The score relating to the rate at which the patient's headache occurs over a period of time

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22206 Chiari malformation neurological examination heel toe walking normal indicator

The indicator related to heel and toe walking being normal

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22301 Reflex pyramidal frontal release sign snout status

The response status as related to pyramidal/frontal release sign snout reflex

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22227 Sensory abnormal burning pain indicator

The indicator related to abnormal burning pain

Supplemental Sensory Symptoms Chiari I Malformation Chiari I Malformation
C21797 Upper lower limb pulse intact indicator

The indicator related to intact upper and lower limbs

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22031 Motor strength testing right triceps scale

The amount of movement in the right triceps muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22742 Excessive urination frequency indicator

Indicator of whether the patient/participant's urination frequency has been excessive

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22441 Medical history cranial vault remodel indicator

The indicator related to medical history in which the subject has any history of cranial vault remodeling

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C21710 Coordination heel to shin left lower extremity assessment scale

The scale related to assessment of the ability to complete the motion of heel to shin (lower extremity)

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21931 Dizziness motion related indicator

The indicator related to motion related dizziness

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22366 Chiari malformation tethered spinal cord urine hold trouble indicator

The indicator related to trouble holding your urine

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C21693 Chiari I malformation position change dizzy symptom indicator

The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21683 Allergy reaction other source indicator

Indicator related to other source of allergic reaction

Exploratory Allergy Chiari I Malformation Chiari I Malformation
C21839 Headache pain relief factor type

The type as related to pain relief factor for headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22486 Surgical procedure arachnoid veil finding type

The type of finding in context of the arachnoid veil

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
Displaying 126 - 150 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.