CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56958 Pelvic traction type

The participant/subject's capability of pelvic traction

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22425 Gestation other text

Text describing the other form of gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22262 Reflex deep tendon reflex finger flexor response score

The response score related to deep tendon reflex testing of finger flexor (median/ulnar:c6-t1)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22210 Sensory upper extremity numbness tingling symptom indicator

The indicator related to numbness/tingling in the upper extremities

Supplemental Sensory Symptoms Chiari I Malformation Chiari I Malformation
C22555 Symptom weakness pre surgical procedure score

Score related to the symptom scale of the subject's weakness pre-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C58515 Greatest transverse spinal cord diameter measurement

Greatest transverse diameter of spinal cord on T2-WI as measured on MRI in the axial plane (in mm)

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22028 Motor strength testing right bicep scale

The amount of movement in the right bicep muscle

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22734 Skin change indicator

Indicator of whether the patient/participant has experienced a skin change

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22563 Symptom activity daily life surgical procedure change score

Score related to the change in the subject's activities of daily life (ADLs) scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22036 Motor strength testing right wrist flexion scale

The amount of movement in the flexion of the right wrist muscles

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22742 Excessive urination frequency indicator

Indicator of whether the patient/participant's urination frequency has been excessive

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22392 Imaging pre surgical procedure anatomical site

Anatomical site of the pre-surgical imaging

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22774 Hoarseness assessment indicator

The indicator related to hoarseness which describes abnormal voice changes

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22366 Chiari malformation tethered spinal cord urine hold trouble indicator

The indicator related to trouble holding your urine

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C21693 Chiari I malformation position change dizzy symptom indicator

The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22571 Surgical procedure complication hematoma indicator

Indicator related to the complication of a hematoma

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22401 Spina bifida myelomeningocele diagnosis indicator

The indicator related to myelomeningocele which is when before birth, the baby's backbone, spinal cord and the structure they float in (spinal canal) do not form or close normally

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22046 Motor strength testing left hamstring scale

The amount of movement in the left hamstring

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22750 Celiac disease gluten sensitivity diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with celiac disease or gluten sensitivity

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22514 Cerebrospinal fluid Magendie patency change measurement

Measurement related to the change in the patency of the foramen on Magendie

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21735 Imaging syrinx lowest level spinal segment number

The number as related to the lowest level of syrinx, reported in terms of most inferior spinal segment along syrinx

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22381 Chiari malformation tethered spinal cord occasional fecal incontinence indicator

The indicator related to the occasional incontinence (in context of stool)

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22665 Medical history chronic constipation indicator

Indicator of whether the participant/subject has/had chronic constipation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C55647 Eye visual fixation primary position type

The type as related to the primary position during visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22409 Skin abnormality stretch mark indicator

The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 101 - 125 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.