CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22390 Imaging post surgical procedure anatomical site

Anatomical site of the post operative imaging

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21833 Headache symptom association type

The type as related to symptoms consistently associated with headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22207 Chiari malformation neurological examination tandem standing walking not difficult indicator

The indicator related to not having difficulty with tandem standing and walking

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22310 Reflex pyramidal frontal release sign sucking status

The response status as related to pyramidal/frontal release sign sucking reflex

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22570 Surgical procedure complication infection type

Type of infection the subject has, if any

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22400 Spina bifida occulta diagnosis indicator

The indicator related to spina bifida in which there is a defect in the bony spinal canal without protrusion of the cord or meninges

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22253 Surgical procedure muscle spasm status

The status related to muscle spasms in surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22513 Cerebrospinal fluid Magendie patency measurement

Measurement of the foramen of Magendie, which drains cerebrospinal fluid (CSF) from the fourth ventrical to the cistema magna

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21842 Headache aggravating pain factor type

The type as related to factor aggravating headache pain

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22218 Chiari malformation neurological examination Romberg negative indicator

The indicator related to Romberg (Std) negative

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21734 Imaging syrinx highest level spinal segment number

The number as related to the highest level of syrinx, reported in terms of most superior spinal segment along syrinx

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22526 Shunt valve type

Type of Shunt Valve

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22040 Motor strength testing intrinsic right hand scale

The amount of movement in the intrinsic muscles of the right hand

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C55646 Eye convergence retraction indicator

The indicator related to eye convergence and retraction

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22408 Cutaneous stigmata occult tethered spinal cord meningocele manque indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for meningocele manque

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22521 Assessment pre surgical procedure date

Date of the patient's pre-surgery evaluation

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22260 Reflex deep tendon reflex brachioradialis response score

The response score related to deep tendon reflex testing of brachioradialis (radial:c5-6)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21742 Imaging posterior cranial fossa basion axial interval flexion measurement

The measurement as related to distance from tip of basion to posterior axial line while in flexion

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22538 Shunt valve reservoir refill sit time

Shunt valve reservoir refill sitting time

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22433 Medical history aortic root enlargement indicator

The indicator related to any medical history of the enlargement of the subject's aortic root

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22048 Motor strength testing left ankle df scale

The amount of movement in the left ankle df

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55654 Saccadic pursuit indicator

The indicator related to saccadic pursuit

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22416 Birth delivery normal indicator

The indicator related to birth presentation at delivery being normal

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22311 Chiari malformation imbalance dizziness onset important symptom scale

The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
Displaying 101 - 125 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.