CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 776 - 800 of 855

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2152-C02024	C02024	Medication prior or concomitant indication text	Text describing reason for administration of a prior/concomitant (nonstudy) agent or measure. This is not the pharmacologic classification of an agent (antibiotic, analgesic, etc.), but the reason for its administration to the participant/subject	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2149-C18150	C18150	Thyroid disease indicator	Indicator for thyroid disease	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F0016-C00020	C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2156-C06020	C06020	Urinary incontinence past three months indicator	Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2165-C18495	C18495	Protocol ID number	The designated number used to identify the protocol or study to which participants/subjects will be enrolled	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2152-C02003	C02003	Medication prior or concomitant ongoing indicator	Indicator of or description that the prior/concomitant medication usage is ongoing	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2152-C18035	C18035	Medication prior name	Name of the prior/concomitant agent or drug administered	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2163-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F0016-C00021	C00021	Ethnicity USA paternal category	Ethnicity the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2156-C13523	C13523	Dizziness or vertigo indicator	Indicator of whether the participant/subject experienced dizziness or vertigo	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2150-C11061	C11061	Gait assessment result	Result of the gait assessment	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F0016-C00022	C00022	Ethnicity USA maternal category	Ethnicity the participant/subject's mother most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2155-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C01058	C01058	Traumatic Brain Injury symptom indicator	Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Chiari I Malformation	Chiari I Malformation
F2150-C17277	C17277	Modified Romberg test result	The result of the Modified Romberg test	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F0016-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2164-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2145-C01581	C01581	Weight unit of measure	Unit of measure for the weight numerical value	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F0016-C00032	C00032	Race USA paternal category	Race(s) the participant/subject's father most closely identifies with	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2182-C11063	C11063	Parity maternal value	Number of live born children the participant's/subject's mother has delivered	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2152-C02011	C02011	Medication prior or concomitant dose frequency	Frequency of use of a prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation

Displaying 776 - 800 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.