CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2159-C22259	C22259	Spine range of motion flexion degree value	The value in degrees related to range in motion of neck flexion (60) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2147-C21773	C21773	Chiari malformation screening chronic edema varicose vein fatty skin tumor diagnosis indicator	The indicator related to fatty skin tumors or bumps, bluish hands or feet, varicose veins, or chronic edema (swelling) in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22184	C22184	Chiari malformation neurological examination venous pulsation visible indicator	The indicator related to venous pulsations being seen	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21775	C21775	Chest clear indicator	The indicator related to a clear chest	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56960	C56960	Truncal extension type	The participant/subject's truncal extension capability	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22427	C22427	Fetal alcohol syndrome condition indicator	The indicator related to the condition of fetal alcohol syndrome, which the group of signs and symptoms of birth defects caused by a woman drinking alcohol during pregnancy	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22337	C22337	Chiari malformation visual symptoms onset symptom severity scale	The scale as related to visual symptoms at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22557	C22557	Symptom weakness surgical procedure change score	Score related to the change in the subject's weakness scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22363	C22363	Reflex autonomic reflex axon reflex status	The response status as related to autonomic reflexes axon reflexes status	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2160-C22229	C22229	Headache pain anatomic site	The anatomic site relating to the subject's headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2148-C21785	C21785	Headache focal point extension radiation score	The score relating to the extension from the focal point of a headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22201	C22201	Chiari malformation neurological examination hearing intact indicator	The indicator related to hearing being intact to 128 Hz TF, and the Weber is midline	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21792	C21792	Cutaneous stigma absent text	The free text field related to an absence of cutaneous stigma	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22565	C22565	Symptom depression post surgical procedure score	Score related to the symptom scale of the subject's depression post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2156-C19833	C19833	Psychiatric depression indicator	Indicator of history of depression	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C19831	C19831	Psychiatric anxiety indicator	Indicator of anxiety	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22237	C22237	Surgical procedure anatomic site other text	The free text field related to other anatomic site of surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22394	C22394	Tonsil position change measurement	Measurement related to the change in the position of the patient's lowest tonsil between pre surgical and post surgical images	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21836	C21836	Headache temporal association score	The score related to time of occurrence of consistent headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22212	C22212	Chiari malformation neurological examination deep tendon reflex symmetrical indicator	The indicator related to deep tendon reflexes (DTRs) 1-2+ and symmetrical	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21729	C21729	Imaging cerebellar tonsil right position measurement	The measurement related to right tonsillar position relative to foramen magnum	Core	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22509	C22509	Shunt type	Shunt type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2183-C22482	C22482	Surgical procedure tonsillar reduction type	The type of tonsillar reduction utilized	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22040	C22040	Motor strength testing intrinsic right hand scale	The amount of movement in the intrinsic muscles of the right hand	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56976	C56976	Adsons maneuver internal side type	The side on which the participant/subject lost his/her pulse in internal rotation	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation

Displaying 76 - 100 of 855

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.