CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 76 - 100 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2153-C22047	C22047	Motor strength testing right ankle df scale	The amount of movement in the right ankle df	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2183-C22487	C22487	Obex plug indicator	The indicator related to the plugging of the obex	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2272-C55627	C55627	Neck Disability Index (NDI) - Pain intensity type	The element related to the intensity of the participant/subject's pain as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2140-C21716	C21716	Tongue function atrophy assessment status	Status as related to tongue function atrophy	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2182-C22450	C22450	Hydrocephalus family history aqueductal stenosis indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically aqueductal stenosis, or the narrowing of the aqueducts in the brain causing the blockage of the flow of cerebrospinal fluid (CSF)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2158-C22537	C22537	Shunt valve reservoir refill sit not collect reason	Reason the time to refill after compression with the subject/participant sitting down was not collected	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21770	C21770	Chiari malformation screening gastrointestinal gastric reflux irritable bowel syndrome malabsorption diagnosis indicator	The indicator related to diagnosis of gastric reflux, irritable bowel syndrome, or malabsorption in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2155-C22289	C22289	Reflex superficial reflex plantar response status	The response status of superficial reflex testing of plantar (tibial: S1)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C21768	C21768	Carotid radial pulse intact indicator	The indicator related to an intact carotid and radial pulse	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2151-C22100	C22100	Modified Ashworth Scale - Limb tone testing right hip scale	The scale of limb tone testing for the right hip, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2154-C22180	C22180	Chiari malformation neurological examination normal mood indicator	The indicator related to mood and affect being normal	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22495	C22495	Surgical procedure syrinx performed type	The type of direct surgical treatment of syrinx (if any)	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2272-C55644	C55644	Neck Disability Index - sleeping indicator	The sleeping pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22309	C22309	Chiari malformation numbness tingling onset important symptom scale	The scale as related to numbness/tingling at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2140-C21725	C21725	Strabismus assessment indicator	The indicator related to strabismus which is a condition that interferes with binocular vision because it prevents a person from directing both eyes simultaneously towards the same fixation point	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2182-C22458	C22458	Birth delivery anesthesia type	The type of anesthesia used to deliver the offspring	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56965	C56965	Tinels sign type	The reading of the participant/subject's Tinel's signs	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22545	C22545	Shunt valve scan date	Date of shunt valve scan	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F0016-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	Demographics	False	Chiari I Malformation	Chiari I Malformation
F2148-C21782	C21782	Headache primary laterality anatomic site score	The score relating to the anatomic site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2155-C22321	C22321	Reflex pyramidal frontal release sign palmomental status	The response status as related to pyramidal/frontal release sign palmomental reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22547	C22547	Symptom headache post surgical procedure score	Score related to the symptom scale of the subject's headache post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21751	C21751	Imaging spine anomaly congenital fusion cervical vertebrae present indicator	The indicator related to the congenital fusion of cervical vertebrate on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2165-C21714	C21714	Gag reflect status	Status as related to gag reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22726	C22726	Palpitations indicator	Indicator of whether the patient/participant has experienced palpitations	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.