CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 701 - 725 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2172-C21730	C21730	Imaging cerebellar tonsil left position measurement	The measurement related to left tonsillar position relative to foramen magnum	Core	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2138-C21674	C21674	Allergy medication antibiotic name	Name to indicate the antibiotic causing the allergy	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2156-C22761	C22761	Irritability indicator	Indicator of whether the patient/participant is experiencing or exhibits irritability	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22721	C22721	Hearing very sensitive indicator	Indicator of whether the patient/participant has very sensitive hearing	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22574	C22574	Surgical procedure complication mechanic displacement type	Type of mechanical displacement the subject has, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2153-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22404	C22404	Cutaneous stigmata occult tethered spinal cord dimple indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for skin dimple	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2142-C21709	C21709	Coordination heel to shin right lower extremity tap assessment scale	The scale related to assessment of completing the motion of heel to shin (right lower extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2190-C22517	C22517	Syrinx length change measurement	Measurement of the change in the longitudinal length of the patient's spinal syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2149-C21887	C21887	Injury whiplash indicator	The indicator relating to injury in the form of whiplash	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2172-C21738	C21738	Imaging posterior cranial fossa bone clivo-axial angle (CXA) measurement	The measurement as related to bone clivo-axial angle (CXA)	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2138-C21682	C21682	Allergy reaction other source text	Free-text field to specify other source of allergy	Exploratory	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2156-C22769	C22769	Unexpected breast milk production indicator	Indicator of whether the patient/participant is experiencing unexpected breast milk production	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22729	C22729	Pain touch sensitivity increase indicator	Indicator of whether the patient/participant has experienced an increase in sensitivity to pain or touch	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2193-C55650	C55650	Eye visual fixation left lateral gaze type	The type as related to left lateral gaze in visual fixation	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2153-C22032	C22032	Motor strength testing left triceps scale	The amount of movement in the left triceps muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22412	C22412	Arachnodactyly presence indicator	The indicator for arachnodactyly ("spider fingers") or achromachia is a condition in which the fingers and toes are abnormally long and slender, in comparison to the palm of the hand and arch of the foot	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2160-C22229	C22229	Headache pain anatomic site	The anatomic site relating to the subject's headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2154-C22201	C22201	Chiari malformation neurological examination hearing intact indicator	The indicator related to hearing being intact to 128 Hz TF, and the Weber is midline	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22499	C22499	Hydrocephalus diagnosis required intervention six month indicator	The indicator related to required intervention on a Hydrocephalus diagnosed six months post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22102	C22102	Modified Ashworth Scale - Limb tone testing right wrist scale	The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56993	C56993	Spinal percussion type	Type of spinal percussion	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2148-C21841	C21841	Headache pain relief factor score	The score related to pain relief factor for headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2182-C22467	C22467	Medical history sarcoidosis condition indicator	The indicator related to medical history of the condition sarcoidosis, the growth of many tiny inflammatory cells throughout the body	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C19247	C19247	Subject ID	Subject identification ID	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.