CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 651 - 675 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21842 Headache aggravating pain factor type

The type as related to factor aggravating headache pain

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C56993 Spinal percussion type

Type of spinal percussion

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21870 Medical history Lyme disease indicator

The indicator related to personal medical history of Lyme disease

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22296 Reflex superficial reflex bulbocavernosus response status

The response status of superficial reflex testing of bulbocavernosus (pudendal: S3-S4)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C22241 Surgical procedure wound healing assessment other text

The free-text field related to other wound healing assessment from surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C21731 Imaging cerebellar tonsil shape type

The type as related to the relative tonsil shape reported

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22182 Chiari malformation I neurological examination dysphasia absent indicator

The indicator related to not having dysphasia

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22511 Shunt valve manufacturer type

Manufacturer of valve

Exploratory Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22433 Medical history aortic root enlargement indicator

The indicator related to any medical history of the enlargement of the subject's aortic root

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C55640 Neck Disability Index - headaches type

The element related to the type of headaches the participant/subject has as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22405 Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22355 Reflex autonomic reflex sweat status

The response status as related to autonomic reflexes sweating status

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21739 Imaging posterior cranial fossa pB-C2 measurement

The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22197 Chiari malformation neurological examination corneal reflex present indicator

The indicator related to corneal reflexes being present

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22535 Shunt valve in place indicator

Shunt valve currenting in place

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21769 Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator

The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C21763 Temporal artery tenderness absent assessment text

The free text field related to not having any tenderness in temporal arteries which supply blood to the head and brain

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C56969 Phalens sign type

The reading of the participant/subject's Phalen's signs

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22413 Pneumothorax hernia organ prolapse indicator

The indicator related to any clinical history of pneumothorax, hernias, or organ prolapse

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22302 Chiari malformation headache onset important symptom scale

The scale as related to headache at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C21747 Imaging posterior cranial fossa supraoccipital length measurement

The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22209 Chiari malformation neurological examination muscle strength bulk intact indicator

The indicator related to muscle strength and bulk being intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22543 Shunt valve functional assessment type

Shunt valve functional assessment type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22469 Medical history tuberculosis condition indicator

The indicator related to medical history of the condition tuberculosis (TB)

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 651 - 675 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.