CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2194-C56968	C56968	Tinels sign negative side type	The side on which the participant/subject's Tinel's signs read negative	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22739	C22739	Extremity stiffness indicator	Indicator of whether the patient/participant has experienced stiffness in his or her extremities	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22436	C22436	Inferior vena caval pressure abnormality indicator	The indicator related to the presence of any abnormality in the value of the subject's inferior vena caval (IVC) pressure	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22357	C22357	Chiari malformation identify speciality diagnosis type	The type of specialty of the individual responsible for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2142-C21700	C21700	Coordination gait assessment scale	The scale related to assessment of manner of person's walking	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2138-C21673	C21673	Allergy medication antibiotic reaction type	Type related to allergic reaction to antibiotic medication	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2150-C22015	C22015	Ocular movement disorder type	The type as related to ocular movement disorder	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2148-C21844	C21844	Headache assessment total score	The total score of headache assessment	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2183-C22482	C22482	Surgical procedure tonsillar reduction type	The type of tonsillar reduction utilized	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22041	C22041	Motor strength testing left quadricep scale	The amount of movement in the left quadricep	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56976	C56976	Adsons maneuver internal side type	The side on which the participant/subject lost his/her pulse in internal rotation	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22747	C22747	Current diarrhea indicator	Indicator of whether the patient/participant currently experiences diarrhea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22445	C22445	Micrognathia condition indicator	The indicator related to the condition of micrognathia, in which the subject has a small receding jaw	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2164-C22378	C22378	Chiari malformation tethered spinal cord urinate incomplete indicator	The indicator related to incomplete urination	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22200	C22200	Neck shoulder pain radiate indicator	The indicator related to pain radiating to the neck or shoulders	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2142-C21708	C21708	Coordination heel to shin right lower extremity assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (right lower extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2138-C21681	C21681	Allergy reaction acrylic indicator	Indicator related to allergic reaction to acrylic	Exploratory	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2151-C22102	C22102	Modified Ashworth Scale - Limb tone testing right wrist scale	The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2149-C19761	C19761	Medical history glaucoma diagnosis indicator	Indicator of history of Glaucoma	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22490	C22490	Valsalva challenge perform indicator	The indicator related to whether a valsalva challenge was performed in order to assess the integrity of the closure	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22051	C22051	Motor strength testing right ehl scale	The amount of movement in the right ehl	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56984	C56984	Range of motion at hip external side type	The hip that the participant/subject feels pain on during external range of motion	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22755	C22755	Sexual dysfunction indicator	Indicator of whether the patient/participant experiences sexual dysfunction such as inability to attain orgasm, erectile dysfunction, inability to ejaculate	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22453	C22453	Medical history dysautonomia indicator	The indicator related to any reported history of POTS (postural orthostatic tachycardia syndrome), NMH (Neurally mediated Hypotension) or fainting	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2164-C22386	C22386	Chiari malformation tethered spinal cord restless leg syndrome indicator	The indicator related to restless leg syndrome	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.