CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 51 - 75 of 861
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C56995 Sacroiliac joint dysfunction palpitation pain type

Type of palpitation in sacroiliac joint dysfunction pain

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C21925 Balance falls frequency

The frequency as related to falls

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22470 Diamond blackfan anemia disorder indicator

The indicator related to the presence of the disorder Diamond-Blackfan anemia (DBA), in which the bone marrow malfunctions and fails to produce enough red blood cells

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22748 Occasional bowel incontinence current indicator

Indicator of whether the patient/participant currently experiences occasional bowel incontinence

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21837 Headache duration type

The type as related to duration of headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22399 Spina bifida diagnosis indicator

The indicator related to diagnosis of spina bifida

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22205 Cough cry laugh sneeze pain worse indicator

The indicator related to pain worsened by coughing, crying, laughing, sneezing, orgasms, bowel movements

Core Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22245 Surgical procedure hardware anatomic site other text

The free-text field related to other anatomic site of hardware in surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C21733 Imaging syrinx length spinal segment count

The number of spinal segments for length of syrinx as measure on sagittal MRI scan

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22523 Shunt valve manufacturer other text

The free-text related to shunt valve manufacturer; specifying other text

Exploratory Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C55642 Neck Disability Index - work indicator

The work pain indicator of the subject/participant as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22058 Modified Ashworth Scale - Limb tone testing right shoulder scale

The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22478 Attention deficit hyperactivity disorder indicator

The indicator related to the disorders of attention deficit disorder (ADD) and attention deficit hyperactivity disorder (ADHD)

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C56962 Cervical extraction type

Type of cervical extraction (sitting)

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22756 Genital pelvic sensation loss indicator

Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22429 Motor vehicle accident injury indicator

The indicator relating to any previous or current injuries due to a motor vehicle accident (MVA)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22407 Cutaneous stigmata occult thread spinal cord appendage indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22716 Ear pressure indicator

Indicator of whether the patient/participant has pressure in his or her ears

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21741 Imaging posterior cranial fossa basion axial interval extension measurement

The measurement as related to distance from tip of basion to posterior axial line while in extension

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22537 Shunt valve reservoir refill sit not collect reason

Reason the time to refill after compression with the subject/participant sitting down was not collected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22104 Modified Ashworth Scale - Limb tone testing right knee scale

The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22461 Cervical laminectomy anatomic site

The anatomic site or location related to the cervical laminectomy

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56971 Phalens sign positive side type

The side of the body that the participant/subject's Phalen's signs read positive

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22764 Joint hypermobility indicator

Indicator of whether the patient/participant is experiencing or exhibits hypermobility of one or more joints

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C19806 Medical history endocrine diabetes indicator

Indicator of diabetes

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
Displaying 51 - 75 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.