CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C22411 Skin abnormality peizogenic papule indicator

The indicator related to evaluation of the presence of skin abnormality of peizogenic papule consistent with connective tissue disorders

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22292 Chiari malformation associate problem diagnosis type

The type related to any associated problems found at the patient's diagnosis of Chiari Malformation

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22525 Parenchymal morphology post surgical procedure brainstem shape type

Type of the shape of the patient's brainstem post surgery

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22270 Reflex deep tendon reflex adductor response score

The response score related to deep tendon reflex testing of adductor (obturator:l2-4)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C21745 Imaging posterior cranial basion dens axial interval flexion measurement

The measurement as related to distance from basion to tip of odontoid in flexion

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22541 Shunt valve reservoir refill lying duration

Time to refill after compression, with the subject/participant lying down

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21761 Chiari malformation screening hypermobility family indicator

The indicator related to family members having joint hypermobility syndrome which is a condition that features joints that easily move beyond the normal range. Expected for that particular joint in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22051 Motor strength testing right ehl scale

The amount of movement in the right ehl

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55657 Nystagmus neck flexion emergence indicator

The indicator related to emergence or worsening of nystagmus with neck flexion

Exploratory Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22419 Birth delivery Caesarian section indicator

The indicator related to birth presentation at delivery being a Caesarian section

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22317 Chiari malformation fatigue onset important symptom scale

The scale as related to fatigue at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22549 Symptom general pain pre surgical procedure score

Score related to the symptom scale of the subject's general pain pre-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22301 Reflex pyramidal frontal release sign snout status

The response status as related to pyramidal/frontal release sign snout reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21753 Imaging spine anomaly other craniocervical present indicator

The indicator related to presence of other craniocervical abnormalities on the imaging spinal anomalies

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22259 Spine range of motion flexion degree value

The value in degrees related to range in motion of neck flexion (60) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C21773 Chiari malformation screening chronic edema varicose vein fatty skin tumor diagnosis indicator

The indicator related to fatty skin tumors or bumps, bluish hands or feet, varicose veins, or chronic edema (swelling) in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22184 Chiari malformation neurological examination venous pulsation visible indicator

The indicator related to venous pulsations being seen

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21775 Chest clear indicator

The indicator related to a clear chest

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C56960 Truncal extension type

The participant/subject's truncal extension capability

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22427 Fetal alcohol syndrome condition indicator

The indicator related to the condition of fetal alcohol syndrome, which the group of signs and symptoms of birth defects caused by a woman drinking alcohol during pregnancy

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22337 Chiari malformation visual symptoms onset symptom severity scale

The scale as related to visual symptoms at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22557 Symptom weakness surgical procedure change score

Score related to the change in the subject's weakness scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22363 Reflex autonomic reflex axon reflex status

The response status as related to autonomic reflexes axon reflexes status

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
Displaying 51 - 75 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.