CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2151-C22106	C22106	Modified Ashworth Scale - Limb tone testing right ankle scale	The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2164-C22389	C22389	Chiari malformation tethered spinal cord low back leg pain urinary symptom stair walk indicator	The indicator related to low back pain, leg pain, or urinary symptoms while walking up stairs	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2138-C21676	C21676	Allergy medication reaction type	Type of allergic reaction to medication	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2156-C22718	C22718	Walk unsteady indicator	Indicator of whether the patient/participant feels unsteady when walking	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2149-C21870	C21870	Medical history Lyme disease indicator	The indicator related to personal medical history of Lyme disease	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22502	C22502	Spinal deformity indicator	The indicator related to a new spinal deformity or progression of an existing deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22105	C22105	Modified Ashworth Scale - Limb tone testing left knee scale	The scale of limb tone testing for the left knee, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56996	C56996	Palpitation SI joint local pain text	Text field related to local pain within palpitation of SI joints	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2142-C21711	C21711	Coordination heel to shin left lower extremity tap assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (lower level extremity) tap	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2156-C22766	C22766	Pituitary problem diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with a pituitary gland problem	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2182-C22471	C22471	Methylenetetrahydrofolate reductase genetic defect indicator	The indicator related to the absence of the methylenetetrahydrofolate reductase (MTHFR) gene, a gene essential in converting vitamin B9 into a usable form and the body's growth and metabolism	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C21714	C21714	Gag reflect status	Status as related to gag reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2139-C21684	C21684	Beighton Score - Motion thumb forearm assessment score	Score/Assessment of the motion thumb to forearm as part of the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2156-C22726	C22726	Palpitations indicator	Indicator of whether the patient/participant has experienced palpitations	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2194-C56957	C56957	Cranio-cervical junction axial loading status	The status for cranio-cervical junction axial loading	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22424	C22424	Gestation other indicator	The indicator related to another form of gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22333	C22333	Chiari malformation neck pain onset symptom severity scale	The scale as related to neck pain at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22554	C22554	Symptom sensory deficit surgical procedure change score	Score related to the change in the subject's sensory deficit scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22326	C22326	Reflex pyramidal frontal release sign foot grasp status	The response status as related to pyramidal/frontal release sign foot grasp reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C58514	C58514	Empty sella turcica present indicator	The indicator related to presence of empty sella turcica	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2159-C22267	C22267	Spine range of motion trunk right lateral bend degree value	The value in degrees related to range in motion of trunk right lateral bend (25) in assessment of spine	Exploratory	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21780	C21780	Headache primary laterality anatomic site	The location related to the lateral site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22189	C22189	Chiari malformation neurological examination facial sensation normal indicator	The indicator related to having normal facial sensation to touch and pin	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21784	C21784	Peripheral edema clubbing cyanosis absence text	The free text field related to identifying an absence of peripheral edema, clubbing or cyanosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22351	C22351	Chiari malformation bowel bladder onset symptom severity scale	The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.