CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 351 - 375 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22399	C22399	Spina bifida diagnosis indicator	The indicator related to diagnosis of spina bifida	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22245	C22245	Surgical procedure hardware anatomic site other text	The free-text field related to other anatomic site of hardware in surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22398	C22398	Cerebrospinal fluid ventral space change measurement	Measurement related to the change in width of the ventral cerebrospinal fluid (CSF) space at the foramen magnum	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21841	C21841	Headache pain relief factor score	The score related to pain relief factor for headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22217	C22217	Chiari malformation neurological examination coordination rapid alternating movement intact indicator	The indicator related to coordination and rapid alternating movements being intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21733	C21733	Imaging syrinx length spinal segment count	The number of spinal segments for length of syrinx as measure on sagittal MRI scan	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22523	C22523	Shunt valve manufacturer other text	The free-text related to shunt valve manufacturer; specifying other text	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22039	C22039	Motor strength testing right quadricep scale	The amount of movement in the right quadricep	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22577	C22577	Parenchymal morphology post surgical procedure brainstem change measurement	Measurement of the change in the patient's brainstem shape, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2182-C22407	C22407	Cutaneous stigmata occult thread spinal cord appendage indicator	The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22520	C22520	Parenchymal morphology post surgical procedure tonsil shape type	Type of the shape of the patient's cerebellar tonsils post surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22258	C22258	Reflex deep tendon reflex triceps response score	The response score related to deep tendon reflex testing of triceps (radial:c7-8)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21741	C21741	Imaging posterior cranial fossa basion axial interval extension measurement	The measurement as related to distance from tip of basion to posterior axial line while in extension	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22537	C22537	Shunt valve reservoir refill sit not collect reason	Reason the time to refill after compression with the subject/participant sitting down was not collected	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C22402	C22402	Hereditary disorder connective tissue diagnosis indicator	The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22047	C22047	Motor strength testing right ankle df scale	The amount of movement in the right ankle df	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2193-C55653	C55653	Head shake thrust status	The status related to head shake/thrust	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2182-C22415	C22415	Chiari malformation family history indicator	The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22309	C22309	Chiari malformation numbness tingling onset important symptom scale	The scale as related to numbness/tingling at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22534	C22534	Surgical procedure complication fluid collection type	Type of fluid collection in the patient's brain post operation, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22289	C22289	Reflex superficial reflex plantar response status	The response status of superficial reflex testing of plantar (tibial: S1)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21749	C21749	Imaging posterior cranial fossa superior posterior fossa length measurement	The measurement as related to distance from dorsum sella to internal occipital protuberance	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22545	C22545	Shunt valve scan date	Date of shunt valve scan	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21767	C21767	Chiari malformation screening orthopedic joint hip dislocation unusual pain screen indicator	The indicator related to any kind of hip or any other joint dislocation, unusual joint pain, or susceptibility to joint injury in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22180	C22180	Chiari malformation neurological examination normal mood indicator	The indicator related to mood and affect being normal	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.