CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 326 - 350 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22370 Imaging post surgical procedure type

Type of post surgical imaging

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22270 Reflex deep tendon reflex adductor response score

The response score related to deep tendon reflex testing of adductor (obturator:l2-4)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55645 Neck Disability Index - recreation indicator

The recreation indicator of the subject/participant as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22222 Sensory pain temperature deficit indicator

The indicator related to a sensory deficit related to pain and/or temperature

Supplemental Sensory Symptoms Chiari I Malformation Chiari I Malformation
C22481 Spinal cord tethered thick filum indicator

The indicator related to having thickened filum as the condition of tethered spinal cord (low lying conus medullaris)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22027 Motor strength testing left deltoid scale

The amount of movement in the left deltoid muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22030 Motor strength testing left iliopsoas scale

The amount of movement in the left iliopsoas

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56966 Jugular compression type

Type of jugular compression

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22736 Extremity weakness indicator

Indicator of whether the patient/participant has experienced weakness of his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22433 Medical history aortic root enlargement indicator

The indicator related to any medical history of the enlargement of the subject's aortic root

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C21890 Medical history test sedation require indicator

The indicator relating to the requirement of sedation for testing

Exploratory Past History (on intake) Chiari I Malformation Chiari I Malformation
C21713 Swallow function problem type

Type as related to problem with function of swallowing

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22393 Tonsil left cerebellar measurement

Measurement related to the lowest position of the patient's left cerebellar tonsil

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21835 Headache temporal association type

The type as related to time of occurrence of consistent headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22211 Chiari malformation neurological examination pronator drift absent indicator

The indicator related to not having pronator drift

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21728 Imaging cerebellar tonsil lowest position measurement

The measurement related to lowest tonsillar position relative to foramen magnum

Core Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22572 Surgical procedure complication hematoma type

Type of hematoma the subject has, if any

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22402 Hereditary disorder connective tissue diagnosis indicator

The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22274 Surgical procedure type

The type of surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22515 Syrinx anatomic change indicator

Indicator related to the anatomic change in the syrinx

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22221 Chiari malformation neurological examination secondary sensory modalities intact indicator

The indicator related to secondary sensory modalities being intact (e.g. limb localization, DSS, graphesthesia)

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21736 Imaging syrinx width measurement

Greatest transverse diameter of hydrosyringomyelia on T2-WI as measured on MRI in the axial plane (in mm)

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22529 Shunt valve surgical implantation date

Date of surgical implantation

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21685 Beighton Score - Motion finger bend back score

Score/Assessment of Motion to bend finger back as part of the Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22042 Motor strength testing intrinsic left hand scale

The amount of movement in the intrinsic muscles of the left hand

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
Displaying 326 - 350 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.