CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 301 - 325 of 861
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22245 Surgical procedure hardware anatomic site other text

The free-text field related to other anatomic site of hardware in surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22398 Cerebrospinal fluid ventral space change measurement

Measurement related to the change in width of the ventral cerebrospinal fluid (CSF) space at the foramen magnum

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22217 Chiari malformation neurological examination coordination rapid alternating movement intact indicator

The indicator related to coordination and rapid alternating movements being intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21733 Imaging syrinx length spinal segment count

The number of spinal segments for length of syrinx as measure on sagittal MRI scan

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22523 Shunt valve manufacturer other text

The free-text related to shunt valve manufacturer; specifying other text

Exploratory Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22039 Motor strength testing right quadricep scale

The amount of movement in the right quadricep

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22577 Parenchymal morphology post surgical procedure brainstem change measurement

Measurement of the change in the patient's brainstem shape, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22407 Cutaneous stigmata occult thread spinal cord appendage indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for appendage

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22520 Parenchymal morphology post surgical procedure tonsil shape type

Type of the shape of the patient's cerebellar tonsils post surgery

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22258 Reflex deep tendon reflex triceps response score

The response score related to deep tendon reflex testing of triceps (radial:c7-8)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C21741 Imaging posterior cranial fossa basion axial interval extension measurement

The measurement as related to distance from tip of basion to posterior axial line while in extension

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22537 Shunt valve reservoir refill sit not collect reason

Reason the time to refill after compression with the subject/participant sitting down was not collected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22402 Hereditary disorder connective tissue diagnosis indicator

The indicator related to personal or family history of double-jointedness or excessive joint flexibility or dislocations, also known as Hereditary Disorder of Connective Tissue (HDCT)

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22047 Motor strength testing right ankle df scale

The amount of movement in the right ankle df

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C55653 Head shake thrust status

The status related to head shake/thrust

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22415 Chiari malformation family history indicator

The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22309 Chiari malformation numbness tingling onset important symptom scale

The scale as related to numbness/tingling at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22534 Surgical procedure complication fluid collection type

Type of fluid collection in the patient's brain post operation, if any

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22289 Reflex superficial reflex plantar response status

The response status of superficial reflex testing of plantar (tibial: S1)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C21749 Imaging posterior cranial fossa superior posterior fossa length measurement

The measurement as related to distance from dorsum sella to internal occipital protuberance

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22545 Shunt valve scan date

Date of shunt valve scan

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21767 Chiari malformation screening orthopedic joint hip dislocation unusual pain screen indicator

The indicator related to any kind of hip or any other joint dislocation, unusual joint pain, or susceptibility to joint injury in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22180 Chiari malformation neurological examination normal mood indicator

The indicator related to mood and affect being normal

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21762 Temporal artery tenderness absent assessment indicator

The indicator related to not having any tenderness in temporal arteries which supply blood to the head and brain

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22423 Gestation triplet indicator

The indicator related to a triplet gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 301 - 325 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.