CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22047 Motor strength testing right ankle df scale

The amount of movement in the right ankle df

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56981 Range of motion at hip result type

The result and findings from the participant/subject's range of motion at his/her hips

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22751 Crohns disease colitis diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with Crohn's disease or colitis

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22450 Hydrocephalus family history aqueductal stenosis indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically aqueductal stenosis, or the narrowing of the aqueducts in the brain causing the blockage of the flow of cerebrospinal fluid (CSF)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22099 Modified Ashworth Scale - Limb tone testing left elbow scale

The scale of limb tone testing for the left elbow, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22382 Chiari malformation tethered spinal cord decrease pelvic sensation indicator

The indicator related to a decrease of sensation in the pelvic region

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22711 Pain pressure behind eyes indicator

Indicator of whether the patient/participant feels pressure or pain behind his or her eyes

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21715 Tongue function deviation assessment status

Status as related to tongue function deviation

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22495 Surgical procedure syrinx performed type

The type of direct surgical treatment of syrinx (if any)

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22071 Modified Ashworth Scale - Limb tone testing right elbow scale

The scale of limb tone testing for the right elbow, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56989 Heel walking type

Type of heel walking

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22759 Indecisiveness indicator

Indicator of whether the patient/participant is experiencing or exhibits difficulty making decisions

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22458 Birth delivery anesthesia type

The type of anesthesia used to deliver the offspring

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22107 Modified Ashworth Scale - Limb tone testing left ankle scale

The scale of limb tone testing for the left ankle, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C22391 Chiari malformation tethered spinal cord history severe growing pain indicator

The indicator related to a history of growing pains during childhood and adolescence

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22719 Tinnitus indicator

Indicator of whether the patient/participant has tinnitus or a high-pitched ringing in his or her ears

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21724 Nausea vomit assessment status

The status as related to nausea and vomiting

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21871 Medical history chronic obstructive pulmonary disease indicator

The indicator related to personal medical history of chronic obstructive pulmonary disease (COPD)

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22503 Craniocervical fusion indicator

The indicator related to craniocervical fusion

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22106 Modified Ashworth Scale - Limb tone testing right ankle scale

The scale of limb tone testing for the right ankle, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55627 Neck Disability Index (NDI) - Pain intensity type

The element related to the intensity of the participant/subject's pain as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22767 Bleeding clotting disorder indicator

Indicator of whether the patient/participant has ever had a bleeding or blood clotting disorder

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22472 Coagulopathy condition indicator

The indicator related to the condition coagulopathy, a condition in which the bloods ability to clot is impaired

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C21715 Tongue function deviation assessment status

Status as related to tongue function deviation

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
Displaying 301 - 325 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.