CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 276 - 300 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Chiari I Malformation Chiari I Malformation
C22276 Reflex deep tendon reflex hamstring response score

The response score related to deep tendon reflex testing of hamstring (sciatic/tibial:l4-s2)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22225 Sensory abnormal tingling pain indicator

The indicator related to abnormal tingling pain

Supplemental Sensory Symptoms Chiari I Malformation Chiari I Malformation
C22434 Chiari malformation conservative management duration

Duration of conservative management from time of initial imaging diagnosis

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22029 Motor strength testing left bicep scale

The amount of movement in the left bicep muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22032 Motor strength testing left triceps scale

The amount of movement in the left triceps muscle

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56968 Tinels sign negative side type

The side on which the participant/subject's Tinel's signs read negative

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22738 Precision grip difficulty indicator

Indicator of whether the patient/participant has experienced difficulty with his or her precision grip

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22436 Inferior vena caval pressure abnormality indicator

The indicator related to the presence of any abnormality in the value of the subject's inferior vena caval (IVC) pressure

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C21706 Coordination finger to nose left upper extremity assessment scale

The scale related to assessment of the ability to complete the motion of finger to nose (left upper extremity)

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21679 Allergy reaction plastic tape indicator

Indicator related to allergic reaction to plastic tape

Exploratory Allergy Chiari I Malformation Chiari I Malformation
C22482 Surgical procedure tonsillar reduction type

The type of tonsillar reduction utilized

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22574 Surgical procedure complication mechanic displacement type

Type of mechanical displacement the subject has, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22404 Cutaneous stigmata occult tethered spinal cord dimple indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for skin dimple

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22517 Syrinx length change measurement

Measurement of the change in the longitudinal length of the patient's spinal syrinx

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22213 Reflex deep tendon reflex jaw response score

The response score related to deep tendon reflex testing of jaw (trigeminal: cn v)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C21738 Imaging posterior cranial fossa bone clivo-axial angle (CXA) measurement

The measurement as related to bone clivo-axial angle (CXA)

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22532 Shunt valve removal date

Date shunt valve was removed

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21687 Beighton Score - Motion knee hyperextend score

Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22044 Motor strength testing atrophy indicator

The indicator relating to atrophy in a muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C55650 Eye visual fixation left lateral gaze type

The type as related to left lateral gaze in visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22412 Arachnodactyly presence indicator

The indicator for arachnodactyly ("spider fingers") or achromachia is a condition in which the fingers and toes are abnormally long and slender, in comparison to the palm of the hand and arch of the foot

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22295 Chiari malformation precipitate factor type

The type related to any precipitating factors that may have contributed to the patient's Chiari Malformation

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22528 Surgical procedure complication cerebrospinal fluid disorder indicator

Indicator related to the complication of a cerebrospinal fluid (CSF) disorder

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22272 Reflex deep tendon reflex achilles response score

The response score related to deep tendon reflex testing of achilles (tibial:s1)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
Displaying 276 - 300 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.