CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2156-C22722	C22722	Swallow difficulty indicator	Indicator of whether the patient/participant has difficulty swallowing	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2159-C22255	C22255	Spine range of motion neck right rotation degree value	The value in degrees related to range in motion of neck to the right (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2153-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2149-C21887	C21887	Injury whiplash indicator	The indicator relating to injury in the form of whiplash	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2148-C21835	C21835	Headache temporal association type	The type as related to time of occurrence of consistent headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2194-C56957	C56957	Cranio-cervical junction axial loading status	The status for cranio-cervical junction axial loading	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22424	C22424	Gestation other indicator	The indicator related to another form of gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2156-C22770	C22770	Need urinate multiple times while sleep indicator	Indicator of whether the patient/participant experiences the need to urinate more than once while sleeping	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22333	C22333	Chiari malformation neck pain onset symptom severity scale	The scale as related to neck pain at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22554	C22554	Symptom sensory deficit surgical procedure change score	Score related to the change in the subject's sensory deficit scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C58514	C58514	Empty sella turcica present indicator	The indicator related to presence of empty sella turcica	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2156-C22730	C22730	Pain sensitivity decrease indicator	Indicator of whether the patient/participant has experienced a decrease in sensitivity to pain	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2159-C22267	C22267	Spine range of motion trunk right lateral bend degree value	The value in degrees related to range in motion of trunk right lateral bend (25) in assessment of spine	Exploratory	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22032	C22032	Motor strength testing left triceps scale	The amount of movement in the left triceps muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2150-C21926	C21926	Mobility assistive device use type	The type as related to use of a mobility assistance device	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2154-C22211	C22211	Chiari malformation neurological examination pronator drift absent indicator	The indicator related to not having pronator drift	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2140-C22774	C22774	Hoarseness assessment indicator	The indicator related to hoarseness which describes abnormal voice changes	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22463	C22463	Imaging intra-operative type	The type of intra-operative imaging utilized (if any)	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22037	C22037	Motor strength testing gluteus left scale	The amount of movement in the left gluteus	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56973	C56973	Muscle spasm tenderness type	Type of muscle spasm tenderness	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22442	C22442	Medical history correction high arched palate abnormality indicator	The indicator related to medical history of or correction of an abnormality in the subject's high arched palate	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2164-C22369	C22369	Chiari malformation tethered spinal cord frequent urinate indicator	Indicator related to frequency of urination	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2154-C22221	C22221	Chiari malformation neurological examination secondary sensory modalities intact indicator	The indicator related to secondary sensory modalities being intact (e.g. limb localization, DSS, graphesthesia)	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2153-C22042	C22042	Motor strength testing intrinsic left hand scale	The amount of movement in the intrinsic muscles of the left hand	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2141-C21697	C21697	Chiari I malformation chronic fatigue short-term memory loss irritable symptom indicator	The indicator related to complaints of chronic fatigue, short-term memory loss or irritability in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.