CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 251 - 275 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21744 Imaging posterior cranial fossa basion dens interval extension measurement

The measurement as related to distance from basion to tip of odontoid in extension

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22540 Shunt valve reservoir resistance type

Resistance to reservoir compression

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22776 Hereditary disorder type

The type related to hereditary disorder of connective tissues

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22050 Motor strength testing left ankle pf scale

The amount of movement in the left ankle pf

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55656 Nystagmus valsalva emergence indicator

The indicator related to emergence or worsening of nystagmus with valsalva maneuver

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22418 Birth delivery forceps use indicator

The indicator related to birth presentation at delivery requiring the use of forceps

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22315 Chiari malformation auditory symptoms onset important symptom scale

The scale as related to auditory symptoms at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22548 Symptom headache surgical procedure change score

Score related to the change in the subject's headache scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22298 Reflex pyramidal frontal release sign glabellar status

The response status as related to pyramidal/frontal release sign glabellar reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21752 Imaging spine anomaly atlas assimilation present indicator

The indicator related to the atlas assimilation on the imaging spinal anomalies

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22257 Spine range of motion neck extension degree value

The value in degrees related to range in motion of neck extension (50) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C21771 Chiari malformation screening wound prolong heal separation indicator

The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22183 Chiari malformation neurological examination funduscopic exam benign indicator

The indicator related to funduscopic exam being benign and discs flat

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21772 Carotid radial pulse intact text

The free text field related to an intact carotid and radial pulse

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C56959 Truncal flexion type

The participant/subject's truncal flexion capability

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22426 Gestational diabetes condition indicator

The indicator related to the condition of gestational diabetes, which develops when women are not able to make enough insulin during pregnancy

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22335 Chiari malformation imbalance dizziness onset symptom severity scale

The scale as related to imbalance/dizziness at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22556 Symptom weakness post surgical procedure score

Score related to the symptom scale of the subject's weakness post-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22359 Reflex autonomic reflex lacrimate status

Describe observed response (the secretion of excess tears)

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C58516 Greatest transverse thecal sac diameter measurement

Greatest transverse diameter of thecal sac on T2-WI as measured on MRI in the axial plane (in mm)

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21783 Headache focal point extension radiation type

The type of extension from the focal point of the headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22199 Chiari malformation neurological examination tongue palate pharynx intact indicator

The indicator related to tongue, palate and pharynx being intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21789 Cutaneous stigma absent indicator

The indicator related to an absence of cutaneous stigma

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22356 Imaging diagnostic method type other text

The free text field related to the imaging method utilized for diagnosis

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
Displaying 251 - 275 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.