CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 251 - 275 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21834 Headache symptom association score

The score related to symptoms consistently associated with headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22209 Chiari malformation neurological examination muscle strength bulk intact indicator

The indicator related to muscle strength and bulk being intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22774 Hoarseness assessment indicator

The indicator related to hoarseness which describes abnormal voice changes

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22571 Surgical procedure complication hematoma indicator

Indicator related to the complication of a hematoma

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22401 Spina bifida myelomeningocele diagnosis indicator

The indicator related to myelomeningocele which is when before birth, the baby's backbone, spinal cord and the structure they float in (spinal canal) do not form or close normally

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22254 Surgical procedure trigger point anatomic site

The anatomic site as related to trigger points in surgical procedure

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22514 Cerebrospinal fluid Magendie patency change measurement

Measurement related to the change in the patency of the foramen on Magendie

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22219 Chiari malformation neurological examination sensation intact indicator

The indicator related to sensation being intact to touch, vibration, position sense, pin and temperature

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21735 Imaging syrinx lowest level spinal segment number

The number as related to the lowest level of syrinx, reported in terms of most inferior spinal segment along syrinx

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22527 Shunt valve other text

The free-text related to shunt valve; specifying other text

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22041 Motor strength testing left quadricep scale

The amount of movement in the left quadricep

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C55647 Eye visual fixation primary position type

The type as related to the primary position during visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22409 Skin abnormality stretch mark indicator

The indicator related to evaluation of the presence of skin abnormality of stretch marks consistent with connective tissue disorders

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22522 Surgical procedure complication pseudomeningocele indicator

Indicator related to the presence of a pseudomeningocele complication post-surgery

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22262 Reflex deep tendon reflex finger flexor response score

The response score related to deep tendon reflex testing of finger flexor (median/ulnar:c6-t1)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21743 Imaging posterior cranial fossa basion dens interval measurement

The measurement as related to distance from basion to tip of odontoid

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22539 Shunt valve reservoir refill lying not collect reason

Reason the time to refill after compression with the subject/participant lying down was not collected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22775 Hereditary disorder connective tissue diagnosis type

The type related to hereditary disorder of connective tissues

Supplemental-Highly Recommended CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22049 Motor strength testing right ankle pf scale

The amount of movement in the right ankle pf

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C21685 Beighton Score - Motion finger bend back score

Score/Assessment of Motion to bend finger back as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55655 Nystagmus rebound indicator

The indicator related to nystagmus rebound or assessment for presence of nystagmus in primary after persistent eccentric gaze

Supplemental Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22417 Birth delivery breech indicator

The indicator related to birth presentation at delivery being a breech birth

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22313 Chiari malformation visual symptoms onset important symptom scale

The scale as related to visual symptoms at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22547 Symptom headache post surgical procedure score

Score related to the symptom scale of the subject's headache post-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
Displaying 251 - 275 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.