CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22459 Medical history Menieres disease indicator

The indicator related to medical history of Meniere's disease, an inner ear disease that causes vertigo, hearing problems, and a ringing sound in the ear

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22720 Tremor indicator

Indicator of whether the patient/participant has tremors

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21725 Strabismus assessment indicator

The indicator related to strabismus which is a condition that interferes with binocular vision because it prevents a person from directing both eyes simultaneously towards the same fixation point

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21872 Medical history visual impairment indicator

The indicator related to personal medical history of visual impairment or legally blind

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C22504 Cervical fusion indicator

The indicator related to cervical fusion

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22107 Modified Ashworth Scale - Limb tone testing left ankle scale

The scale of limb tone testing for the left ankle, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55637 Neck Disability Index - Personal care indicator

The pain indicator of personal care as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22768 Irregular menstrual period indicator

Indicator of whether the patient/participant has irregular menstrual periods

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22473 Anemia condition indicator

The indicator related to the blood condition anemia

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C21719 Sixth cranial nerve palsy assessment status

Status as related to assessment of 6th cranial nerve palsy

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22728 Frequent nausea indicator

Indicator of whether the patient/participant has experienced frequent nausea

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21696 Chiari I malformation headache strain activity worsen symptom indicator

The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation

Supplemental-Highly Recommended Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21882 Surgical history cataract removal indicator

The indicator related to surgical history of cataract removal

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Chiari I Malformation Chiari I Malformation
C22370 Imaging post surgical procedure type

Type of post surgical imaging

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22270 Reflex deep tendon reflex adductor response score

The response score related to deep tendon reflex testing of adductor (obturator:l2-4)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55645 Neck Disability Index - recreation indicator

The recreation indicator of the subject/participant as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22222 Sensory pain temperature deficit indicator

The indicator related to a sensory deficit related to pain and/or temperature

Supplemental Sensory Symptoms Chiari I Malformation Chiari I Malformation
C22481 Spinal cord tethered thick filum indicator

The indicator related to having thickened filum as the condition of tethered spinal cord (low lying conus medullaris)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22027 Motor strength testing left deltoid scale

The amount of movement in the left deltoid muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22030 Motor strength testing left iliopsoas scale

The amount of movement in the left iliopsoas

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C56966 Jugular compression type

Type of jugular compression

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22736 Extremity weakness indicator

Indicator of whether the patient/participant has experienced weakness of his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22433 Medical history aortic root enlargement indicator

The indicator related to any medical history of the enlargement of the subject's aortic root

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 26 - 50 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.