CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2150-C21925	C21925	Balance falls frequency	The frequency as related to falls	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2156-C21577	C21577	Respiration stop during sleep indicator	The indicator related to stopping of transport of oxygen from the outside air to the cells within tissues during sleep	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2161-C22239	C22239	Surgical procedure wound healing status	The status related to wound healing after surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2154-C22214	C22214	Chiari malformation neurological examination abdominal reflex present indicator	The indicator related to abdominal reflexes being present	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2148-C21838	C21838	Headache duration score	The score related to type of duration of headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2193-C55651	C55651	Eye visual fixation vertical downgaze type	The type as related to vertical downgaze in visual fixation	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2158-C22510	C22510	Shunt valve present indicator	Valve present	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2182-C22413	C22413	Pneumothorax hernia organ prolapse indicator	The indicator related to any clinical history of pneumothorax, hernias, or organ prolapse	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22530	C22530	Surgical procedure complication cerebrospinal fluid disorder type	Type of cerebrospinal fluid (CSF) disorder the patient has, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21747	C21747	Imaging posterior cranial fossa supraoccipital length measurement	The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2151-C22058	C22058	Modified Ashworth Scale - Limb tone testing right shoulder scale	The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22213	C22213	Reflex deep tendon reflex jaw response score	The response score related to deep tendon reflex testing of jaw (trigeminal: cn v)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C55659	C55659	Cervical posture type	The type as related to cervical posture	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22532	C22532	Shunt valve removal date	Date shunt valve was removed	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2182-C22421	C22421	Gestation twin indicator	The indicator related to a twin gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2153-C22044	C22044	Motor strength testing atrophy indicator	The indicator relating to atrophy in a muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2146-C21688	C21688	Beighton Score - Motion palm flat leg straight score	Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22551	C22551	Symptom general pain surgical procedure change score	Score related to the change in the subject's general pain scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21755	C21755	Imaging spine anomaly spinal dysraphism present indicator	In this context, we define spina bifida occulta as non-fusion of the posterior spinal elements without evidence of any other abnormality of the spinal cord or dura	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2151-C22104	C22104	Modified Ashworth Scale - Limb tone testing right knee scale	The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale	Supplemental	Modified Ashworth Scale - Limb Tone Testing	False	Chiari I Malformation	Chiari I Malformation
F2149-C19806	C19806	Medical history endocrine diabetes indicator	Indicator of diabetes	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22295	C22295	Chiari malformation precipitate factor type	The type related to any precipitating factors that may have contributed to the patient's Chiari Malformation	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2155-C22272	C22272	Reflex deep tendon reflex achilles response score	The response score related to deep tendon reflex testing of achilles (tibial:s1)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22542	C22542	Shunt valve manometric pressure type	Provide the shunt value for the manometric pressure	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2182-C22429	C22429	Motor vehicle accident injury indicator	The indicator relating to any previous or current injuries due to a motor vehicle accident (MVA)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.