CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2165-C22058	C22058	Modified Ashworth Scale - Limb tone testing right shoulder scale	The scale of limb tone testing for the right shoulder, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22757	C22757	Short-term memory loss indicator	Indicator of whether the patient/participant is experiencing a loss of short-term memory	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22521	C22521	Assessment pre surgical procedure date	Date of the patient's pre-surgery evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21742	C21742	Imaging posterior cranial fossa basion axial interval flexion measurement	The measurement as related to distance from tip of basion to posterior axial line while in flexion	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2164-C22388	C22388	Chiari malformation tethered spinal cord knee bent sleep back pain indicator	The indicator related to knees bent at night to relieve back or leg discomfort	Supplemental	CMI - Tethered Cord Screening	False	Chiari I Malformation	Chiari I Malformation
F2156-C22717	C22717	Stand unsteady indicator	Indicator of whether the patient/participant feels unsteady when standing	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2193-C55654	C55654	Saccadic pursuit indicator	The indicator related to saccadic pursuit	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2182-C22416	C22416	Birth delivery normal indicator	The indicator related to birth presentation at delivery being normal	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22104	C22104	Modified Ashworth Scale - Limb tone testing right knee scale	The scale of limb tone testing for the right knee, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2156-C22765	C22765	Thyroid problem diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with a thyroid problem	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2190-C22546	C22546	Symptom headache pre surgical procedure score	Score related to the symptom scale of the subject's headache pre-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21750	C21750	Imaging posterior cranial fossa tentorial angle measurement	The measurement as related to the angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion; Alternative measurement: angle between line drawn paralell to clivus and line drawn paralell to tentorium, independent of orientation of occipital bone	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2165-C19500	C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21787	C21787	Scoliosis text	The free text field related to identifying scoliosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2154-C22188	C22188	Chiari malformation neurological examination facial asymmetry weakness absent indicator	The indicator related to not having facial asymmetry or weakness	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2183-C22503	C22503	Craniocervical fusion indicator	The indicator related to craniocervical fusion	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2149-C21872	C21872	Medical history visual impairment indicator	The indicator related to personal medical history of visual impairment or legally blind	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22328	C22328	Chiari malformation headache onset symptom severity scale	The scale as related to headache at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2141-C21696	C21696	Chiari I malformation headache strain activity worsen symptom indicator	The indicator related to headache worsened by straining activities in defining signs and symptoms for Chiari I malformation	Supplemental-Highly Recommended	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2182-C22472	C22472	Coagulopathy condition indicator	The indicator related to the condition coagulopathy, a condition in which the bloods ability to clot is impaired	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56973	C56973	Muscle spasm tenderness type	Type of muscle spasm tenderness	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2159-C22266	C22266	Spine range of motion trunk forward flexion estimate degree value	The value in degrees related to range in motion of trunk forward flexion (100) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Chiari I Malformation	Chiari I Malformation
F2148-C21834	C21834	Headache symptom association score	The score related to symptoms consistently associated with headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22206	C22206	Chiari malformation neurological examination heel toe walking normal indicator	The indicator related to heel and toe walking being normal	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.