CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 1 - 25 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C22410	Skin abnormality hyperextensiblilty indicator	The indicator related to evaluation of the presence of skin abnormality of hyperextensiblilty consistent with connective tissue disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22290	Chiari malformation information source	The source that provided information about Chiari Malformation to the patient	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
C22524	Surgical procedure complication pseudomeningocele type	Type of pseudomeningocele found in the patient's brain, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C21875	Surgical history cardiac bypass stent indicator	The indicator related to surgical history of cardiac bypass/stent	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C22260	Reflex deep tendon reflex brachioradialis response score	The response score related to deep tendon reflex testing of brachioradialis (radial:c5-6)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
C21744	Imaging posterior cranial fossa basion dens interval extension measurement	The measurement as related to distance from basion to tip of odontoid in extension	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
C22540	Shunt valve reservoir resistance type	Resistance to reservoir compression	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22048	Motor strength testing left ankle df scale	The amount of movement in the left ankle df	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
C21691	Chiari I malformation neck pain stiff radiate shoulder symptom indicator	The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
C55656	Nystagmus valsalva emergence indicator	The indicator related to emergence or worsening of nystagmus with valsalva maneuver	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
C19500	Assessment performed date	The date of assessment of the examination being performed	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
C22418	Birth delivery forceps use indicator	The indicator related to birth presentation at delivery requiring the use of forceps	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22315	Chiari malformation auditory symptoms onset important symptom scale	The scale as related to auditory symptoms at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
C22548	Symptom headache surgical procedure change score	Score related to the change in the subject's headache scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C21885	Pain general leg indicator	The indicator relating to general leg pain	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C22291	Reflex superficial reflex anal response status	The response status of superficial reflex testing of anal (inf. Hemorrhoidal: S2-S4)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
C21752	Imaging spine anomaly atlas assimilation present indicator	The indicator related to the atlas assimilation on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
C22257	Spine range of motion neck extension degree value	The value in degrees related to range in motion of neck extension (50) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
C22181	Chiari malformation neurological examination speech fluent comprehension intact indicator	The indicator related to speech being fluent and comprehension intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
C21699	Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator	The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
C56959	Truncal flexion type	The participant/subject's truncal flexion capability	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
C22030	Motor strength testing left iliopsoas scale	The amount of movement in the left iliopsoas	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
C22426	Gestational diabetes condition indicator	The indicator related to the condition of gestational diabetes, which develops when women are not able to make enough insulin during pregnancy	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C22335	Chiari malformation imbalance dizziness onset symptom severity scale	The scale as related to imbalance/dizziness at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
C22556	Symptom weakness post surgical procedure score	Score related to the symptom scale of the subject's weakness post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.