CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22575 Surgical procedure performed date

Date the surgical procedure was performed on the subject

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22405 Cutaneous stigmata occult tethered spinal cord capillary hemengioma indicator

The indicator related to skin abnormalities associated with spina bifida or cutaneous stigmata occult tethered spinal cord specific for capillary hemengioma

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C22518 Syrinx width measurement

Measurement of the maximum width of the patient's spinal syrinx after the operation

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22248 Reflex deep tendon reflex pectoralis response score

The response score related to deep tendon reflex testing of pectoralis (ant. thoracic: c5-t1)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21739 Imaging posterior cranial fossa pB-C2 measurement

The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22535 Shunt valve in place indicator

Shunt valve currenting in place

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21688 Beighton Score - Motion palm flat leg straight score

Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C22045 Motor strength testing fasciculation indicator

The indicator relating to fasciculations in a muscle

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C55651 Eye visual fixation vertical downgaze type

The type as related to vertical downgaze in visual fixation

Supplemental-Highly Recommended Nystagmus/Strabismus Chiari I Malformation Chiari I Malformation
C22413 Pneumothorax hernia organ prolapse indicator

The indicator related to any clinical history of pneumothorax, hernias, or organ prolapse

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22302 Chiari malformation headache onset important symptom scale

The scale as related to headache at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22530 Surgical procedure complication cerebrospinal fluid disorder type

Type of cerebrospinal fluid (CSF) disorder the patient has, if any

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22276 Reflex deep tendon reflex hamstring response score

The response score related to deep tendon reflex testing of hamstring (sciatic/tibial:l4-s2)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21747 Imaging posterior cranial fossa supraoccipital length measurement

The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22543 Shunt valve functional assessment type

Shunt valve functional assessment type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21765 Chiari malformation screening dental development poor enamel temporomandibular joint problem indicator

The indicator related to having any developmental problems with teeth, poor dental enamel or temporomandibular joint disorder in a screening diagnosis for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22176 Chiari malformation neurological examination alert orient indicator

The indicator related to patient being alert and oriented to person, place and time

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21689 Beighton Score - Total score

Total score as related to the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55659 Cervical posture type

The type as related to cervical posture

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22421 Gestation twin indicator

The indicator related to a twin gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22323 Chiari malformation cardiac onset important symptom scale

The scale as related to cardiac at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22551 Symptom general pain surgical procedure change score

Score related to the change in the subject's general pain scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22310 Reflex pyramidal frontal release sign sucking status

The response status as related to pyramidal/frontal release sign sucking reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21755 Imaging spine anomaly spinal dysraphism present indicator

In this context, we define spina bifida occulta as non-fusion of the posterior spinal elements without evidence of any other abnormality of the spinal cord or dura

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22263 Spine range of motion trunk extension degree value

The value in degrees related to range in motion of trunk extension (30) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
Displaying 1 - 25 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.