CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2193-C55653	C55653	Head shake thrust status	The status related to head shake/thrust	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2182-C22415	C22415	Chiari malformation family history indicator	The indicator relating to any family history of Chiari Malformation I, syringomelia, or any related disorders	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22309	C22309	Chiari malformation numbness tingling onset important symptom scale	The scale as related to numbness/tingling at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22534	C22534	Surgical procedure complication fluid collection type	Type of fluid collection in the patient's brain post operation, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22289	C22289	Reflex superficial reflex plantar response status	The response status of superficial reflex testing of plantar (tibial: S1)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21749	C21749	Imaging posterior cranial fossa superior posterior fossa length measurement	The measurement as related to distance from dorsum sella to internal occipital protuberance	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22545	C22545	Shunt valve scan date	Date of shunt valve scan	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21767	C21767	Chiari malformation screening orthopedic joint hip dislocation unusual pain screen indicator	The indicator related to any kind of hip or any other joint dislocation, unusual joint pain, or susceptibility to joint injury in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22180	C22180	Chiari malformation neurological examination normal mood indicator	The indicator related to mood and affect being normal	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21762	C21762	Temporal artery tenderness absent assessment indicator	The indicator related to not having any tenderness in temporal arteries which supply blood to the head and brain	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2182-C22423	C22423	Gestation triplet indicator	The indicator related to a triplet gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22328	C22328	Chiari malformation headache onset symptom severity scale	The scale as related to headache at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22553	C22553	Symptom sensory deficit post surgical procedure score	Score related to the symptom scale of the subject's sensory deficit post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22321	C22321	Reflex pyramidal frontal release sign palmomental status	The response status as related to pyramidal/frontal release sign palmomental reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21757	C21757	Imaging hydrocephalus ventriculomegaly finding indicator	The indicator related to presence of hydrocephalus/ventriculomegaly	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2159-C22266	C22266	Spine range of motion trunk forward flexion estimate degree value	The value in degrees related to range in motion of trunk forward flexion (100) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22508	C22508	Spinal deformity stabilization text	The free-text field related to the highest/lowest level of surgical stabilization of the spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21778	C21778	Headache primary anatomic site	The location related to the anatomic site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22188	C22188	Chiari malformation neurological examination facial asymmetry weakness absent indicator	The indicator related to not having facial asymmetry or weakness	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21781	C21781	Peripheral edema clubbing cyanosis absence indicator	The indicator related to identifying an absence of peripheral edema, clubbing or cyanosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22561	C22561	Symptom activity daily life pre surgical procedure score	Score related to the symptom scale of the subject's activities of daily life (ADLs) pre-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2160-C22238	C22238	Headache associate symptom type	The type related to the associated symptoms that the subject is experiencing during his/her headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2190-C22377	C22377	Tonsil right cerebellar measurement	Measurement related to the lowest position of the patient's right cerebellar tonsil	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21791	C21791	Headache frequency score	The score relating to the rate at which the patient's headache occurs over a period of time	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22206	C22206	Chiari malformation neurological examination heel toe walking normal indicator	The indicator related to heel and toe walking being normal	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.