CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 901
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C22103 Modified Ashworth Scale - Limb tone testing left hip scale

The scale of limb tone testing for the left hip, as part of the Modified Ashworth Scale

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
C21719 Sixth cranial nerve palsy assessment status

Status as related to assessment of 6th cranial nerve palsy

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22533 Surgical procedure complication fluid collection indicator

Indicator related to the complication of a fluid collection within the brain

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21748 Imaging posterior cranial fossa foramen magnum diameter measurement

The measurement as related to distance from basion to opisthion

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22544 Shunt valve scan type

Shunt valve scan type

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22499 Hydrocephalus diagnosis required intervention six month indicator

The indicator related to required intervention on a Hydrocephalus diagnosed six months post Chiari decompression

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22179 Chiari malformation neurological examination attention short-term memory intact indicator

The indicator related to attention and short-term memory being intact as part of neurological examination form made for Chiari Malformation

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22102 Modified Ashworth Scale - Limb tone testing right wrist scale

The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale

Exploratory Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C22763 Nipple discharge indicator

Indicator of whether the patient/participant is experiencing or exhibits discharge from one or both nipples

Exploratory Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21758 Normocephalic assessment indicator

The indicator related to person whose head and all major organs of the head are in a normal condition and without significant abnormalities

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C21691 Chiari I malformation neck pain stiff radiate shoulder symptom indicator

The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C22552 Symptom sensory deficit pre surgical procedure score

Score related to the symptom scale of the subject's sensory deficit pre-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21756 Imaging other incidental finding text

The free-text field related to report of any additional incidental findings (e.g.- Meniongioma, arachnoid cyst, tumor, stroke)

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22265 Spine range of motion trunk forward flexion position anatomic site

The anatomic site relating to the position of range of motion of trunk forward flexion in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C22507 Spinal deformity stabilization indicator

The indicator related to the surgical stabilization of spinal deformity

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22187 Chiari malformation I neurological examination nystagmus absent indicator

The indicator related to not having nystagmus

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22250 Reflex deep tendon reflex biceps response score

The response score related to deep tendon reflex testing of biceps (musculocutaneous:c5-6)

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C55640 Neck Disability Index - headaches type

The element related to the type of headaches the participant/subject has as part of the Neck Disability Index

Supplemental Neck Disability Index (NDI) Chiari I Malformation Chiari I Malformation
C22771 Snoring indicator

Indicator of whether the patient/participant snores during sleep

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22476 Spinal cord tethered none indicator

The indicator related to not having the condition of tethered spinal cord (low lying conus medullaris)

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C21779 Abdomen soft non tender text

The free text field related to identifying a soft and non-tender abdomen

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C19500 Assessment performed date

The date of assessment of the examination being performed

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C21699 Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator

The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C22376 Tonsil lowest position measurement

Measurement of the lowest position of the patient's tonsils

Supplemental-Highly Recommended Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22204 Chiari malformation neurological examination gait station normal indicator

The indicator related to gait and station being normal

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
Displaying 1 - 25 of 901

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.