CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2146-C22433	C22433	Medical history aortic root enlargement indicator	The indicator related to any medical history of the enlargement of the subject's aortic root	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22048	C22048	Motor strength testing left ankle df scale	The amount of movement in the left ankle df	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C21684	C21684	Beighton Score - Motion thumb forearm assessment score	Score/Assessment of the motion thumb to forearm as part of the Beighton Score	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2193-C55654	C55654	Saccadic pursuit indicator	The indicator related to saccadic pursuit	Supplemental-Highly Recommended	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2182-C22416	C22416	Birth delivery normal indicator	The indicator related to birth presentation at delivery being normal	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22311	C22311	Chiari malformation imbalance dizziness onset important symptom scale	The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22546	C22546	Symptom headache pre surgical procedure score	Score related to the symptom scale of the subject's headache pre-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22291	C22291	Reflex superficial reflex anal response status	The response status of superficial reflex testing of anal (inf. Hemorrhoidal: S2-S4)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21750	C21750	Imaging posterior cranial fossa tentorial angle measurement	The measurement as related to the angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion; Alternative measurement: angle between line drawn paralell to clivus and line drawn paralell to tentorium, independent of orientation of occipital bone	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2159-C22255	C22255	Spine range of motion neck right rotation degree value	The value in degrees related to range in motion of neck to the right (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2147-C21769	C21769	Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator	The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22181	C22181	Chiari malformation neurological examination speech fluent comprehension intact indicator	The indicator related to speech being fluent and comprehension intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21763	C21763	Temporal artery tenderness absent assessment text	The free text field related to not having any tenderness in temporal arteries which supply blood to the head and brain	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56957	C56957	Cranio-cervical junction axial loading status	The status for cranio-cervical junction axial loading	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22424	C22424	Gestation other indicator	The indicator related to another form of gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2163-C22333	C22333	Chiari malformation neck pain onset symptom severity scale	The scale as related to neck pain at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22554	C22554	Symptom sensory deficit surgical procedure change score	Score related to the change in the subject's sensory deficit scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22326	C22326	Reflex pyramidal frontal release sign foot grasp status	The response status as related to pyramidal/frontal release sign foot grasp reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C58514	C58514	Empty sella turcica present indicator	The indicator related to presence of empty sella turcica	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2159-C22267	C22267	Spine range of motion trunk right lateral bend degree value	The value in degrees related to range in motion of trunk right lateral bend (25) in assessment of spine	Exploratory	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2148-C21780	C21780	Headache primary laterality anatomic site	The location related to the lateral site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22189	C22189	Chiari malformation neurological examination facial sensation normal indicator	The indicator related to having normal facial sensation to touch and pin	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21784	C21784	Peripheral edema clubbing cyanosis absence text	The free text field related to identifying an absence of peripheral edema, clubbing or cyanosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22351	C22351	Chiari malformation bowel bladder onset symptom severity scale	The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22562	C22562	Symptom activity daily life post surgical procedure score	Score related to the symptom scale of the subject's activities of daily life (ADLs) post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.