CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 901
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C22555 Symptom weakness pre surgical procedure score

Score related to the symptom scale of the subject's weakness pre-surgery.

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22355 Reflex autonomic reflex sweat status

The response status as related to autonomic reflexes sweating status.

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21782 Headache primary laterality anatomic site score

The score relating to the anatomic site of the primary headache.

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C21715 Tongue function deviation assessment status

Status as related to tongue function deviation.

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C56967 Tinels sign positive side type

The side of the body that the participant/subject's Tinel's signs read positive

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22435 Medical history valvular stenosis indicator

The indicator related to any medical history of valvular stenosis, in which there is narrowing, stiffening, thickening, fusion, or blockage of one or more of the valves in the subject's heart.

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22354 Imaging diagnostic method type

The type of imaging method utilized for diagnosis.

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22563 Symptom activity daily life surgical procedure change score

Score related to the change in the subject's activities of daily life (ADLs) scores.

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21686 Beighton Score - Motion elbow hyperextend score

Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C21834 Headache symptom association score

The score related to symptoms consistently associated with headache.

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22209 Chiari malformation neurological examination muscle strength bulk intact indicator

The indicator related to muscle strength and bulk being intact.

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21724 Nausea vomit assessment status

The status as related to nausea and vomiting.

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C56975 Adsons maneuver type

The type of Adson's maneuver seen in the participant/subject

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22444 Medical history correction bifid uvula abnormality indicator

The indicator related to medical history of or correction of an abnormality in the subject's bifid uvula.

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C22374 Chiari malformation tethered spinal cord urinary dribble incontinence indicator

The indicator related to dribbling (in the context of urinary incontinence).

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C22571 Surgical procedure complication hematoma indicator

Indicator related to the complication of a hematoma.

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22195 Base head pressure indicator

The indicator related to pressure at the base of head.

Core Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22401 Spina bifida myelomeningocele diagnosis indicator

The indicator related to myelomeningocele which is when before birth, the baby's backbone, spinal cord and the structure they float in (spinal canal) do not form or close normally.

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C21772 Carotid radial pulse intact text

The free text field related to an intact carotid and radial pulse.

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C21843 Headache aggravating pain factor score

The score related to factor aggravating headache pain.

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22254 Surgical procedure trigger point anatomic site

The anatomic site as related to trigger points in surgical procedure.

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C22219 Chiari malformation neurological examination sensation intact indicator

The indicator related to sensation being intact to touch, vibration, position sense, pin and temperature.

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21695 Chiari I malformation headache pressure eye ear light sensitive symptom indicator

The indicator related to any feeling of pressure in your eyes/ears or sensitivity to light in defining signs and symptoms for Chiari I malformation.

Exploratory Chiari List of 10 Chiari I Malformation Chiari I Malformation
C21684 Beighton Score - Motion thumb forearm assessment score

Score/Assessment of the motion thumb to forearm as part of the Beighton Score

Supplemental CMI - Hereditary Disorder of Connective Tissue Screening (1) Chiari I Malformation Chiari I Malformation
C56983 Range of motion at hip internal side type

The hip that the participant/subject feels pain on during internal range of motion.

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
Displaying 1 - 25 of 901

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.