CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22416 Birth delivery normal indicator

The indicator related to birth presentation at delivery being normal

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22311 Chiari malformation imbalance dizziness onset important symptom scale

The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22546 Symptom headache pre surgical procedure score

Score related to the symptom scale of the subject's headache pre-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22291 Reflex superficial reflex anal response status

The response status of superficial reflex testing of anal (inf. Hemorrhoidal: S2-S4)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C21750 Imaging posterior cranial fossa tentorial angle measurement

The measurement as related to the angle between line drawn along the tentorium with line drawn from the internal occipital protuberance to the opisthion; Alternative measurement: angle between line drawn paralell to clivus and line drawn paralell to tentorium, independent of orientation of occipital bone

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22255 Spine range of motion neck right rotation degree value

The value in degrees related to range in motion of neck to the right (80) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C21769 Chiari malformation screening orthopedic flat feet scoliosis chest deformity screen indicator

The indicator related to having flat feet, scoliosis (spinal curvature), or a chest deformity in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22181 Chiari malformation neurological examination speech fluent comprehension intact indicator

The indicator related to speech being fluent and comprehension intact

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21763 Temporal artery tenderness absent assessment text

The free text field related to not having any tenderness in temporal arteries which supply blood to the head and brain

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C56957 Cranio-cervical junction axial loading status

The status for cranio-cervical junction axial loading

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22424 Gestation other indicator

The indicator related to another form of gestation

Exploratory Co-Morbidities Chiari I Malformation Chiari I Malformation
C22333 Chiari malformation neck pain onset symptom severity scale

The scale as related to neck pain at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22554 Symptom sensory deficit surgical procedure change score

Score related to the change in the subject's sensory deficit scores

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22326 Reflex pyramidal frontal release sign foot grasp status

The response status as related to pyramidal/frontal release sign foot grasp reflex

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C58514 Empty sella turcica present indicator

The indicator related to presence of empty sella turcica

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C22267 Spine range of motion trunk right lateral bend degree value

The value in degrees related to range in motion of trunk right lateral bend (25) in assessment of spine

Exploratory Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C21780 Headache primary laterality anatomic site

The location related to the lateral site of the primary headache

Exploratory CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22189 Chiari malformation neurological examination facial sensation normal indicator

The indicator related to having normal facial sensation to touch and pin

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21784 Peripheral edema clubbing cyanosis absence text

The free text field related to identifying an absence of peripheral edema, clubbing or cyanosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22351 Chiari malformation bowel bladder onset symptom severity scale

The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22562 Symptom activity daily life post surgical procedure score

Score related to the symptom scale of the subject's activities of daily life (ADLs) post-surgery

Exploratory Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22390 Imaging post surgical procedure anatomical site

Anatomical site of the post operative imaging

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C21833 Headache symptom association type

The type as related to symptoms consistently associated with headache

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C22207 Chiari malformation neurological examination tandem standing walking not difficult indicator

The indicator related to not having difficulty with tandem standing and walking

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C22310 Reflex pyramidal frontal release sign sucking status

The response status as related to pyramidal/frontal release sign sucking reflex

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
Displaying 1 - 25 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.