CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 201 - 225 of 901

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C22519	Syrinx width change measurement	Measurement of the change in the maximum width of the patient's spinal syrinx after the operation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22518	Syrinx width measurement	Measurement of the maximum width of the patient's spinal syrinx after the operation	Supplemental-Highly Recommended	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22517	Syrinx length change measurement	Measurement of the change in the longitudinal length of the patient's spinal syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22516	Syrinx length measurement	Measurement of the longitudinal length of the subject's spinal syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22515	Syrinx anatomic change indicator	Indicator related to the anatomic change in the syrinx	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22514	Cerebrospinal fluid Magendie patency change measurement	Measurement related to the change in the patency of the foramen on Magendie	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22513	Cerebrospinal fluid Magendie patency measurement	Measurement of the foramen of Magendie, which drains cerebrospinal fluid (CSF) from the fourth ventrical to the cistema magna	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22512	Shunt function valve anatomic site type	Site/location	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22511	Shunt valve manufacturer type	Manufacturer of valve	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22510	Shunt valve present indicator	Valve present	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22538	Shunt valve reservoir refill sit time	Shunt valve reservoir refill sitting time	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22539	Shunt valve reservoir refill lying not collect reason	Reason the time to refill after compression with the subject/participant lying down was not collected	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22541	Shunt valve reservoir refill lying duration	Time to refill after compression, with the subject/participant lying down	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22509	Shunt type	Shunt type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22508	Spinal deformity stabilization text	The free-text field related to the highest/lowest level of surgical stabilization of the spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
C22507	Spinal deformity stabilization indicator	The indicator related to the surgical stabilization of spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
C22506	Thoracolumbar brace text	The free-text field related to how long the brace was utilized	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
C22505	Thoracolumbar brace indicator	The indicator related to the implementation of a thoracolumbar brace	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
C22504	Cervical fusion indicator	The indicator related to cervical fusion	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
C22503	Craniocervical fusion indicator	The indicator related to craniocervical fusion	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
C22502	Spinal deformity indicator	The indicator related to a new spinal deformity or progression of an existing deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
C22501	Cranioplasty cerebelloplasty performed six month plus type	The type of cranioplasty/cerebelloplasty perfomed at 6 months plus post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
C22500	Surgical procedure wound revision requirement six month indicator	The indicator related to a surgical wound revision required at 6 months post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
C22499	Hydrocephalus diagnosis required intervention six month indicator	The indicator related to required intervention on a Hydrocephalus diagnosed six months post Chiari decompression	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
C22498	Cranioplasty cerebelloplasty performed six month type	The type of cranioplasty/ cerebelloplasty performed post Chiari decompression at the 6 month point	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.