CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 176 - 200 of 901

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C22547	Symptom headache post surgical procedure score	Score related to the symptom scale of the subject's headache post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22548	Symptom headache surgical procedure change score	Score related to the change in the subject's headache scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22545	Shunt valve scan date	Date of shunt valve scan	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22544	Shunt valve scan type	Shunt valve scan type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22543	Shunt valve functional assessment type	Shunt valve functional assessment type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22542	Shunt valve manometric pressure type	Provide the shunt value for the manometric pressure	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22537	Shunt valve reservoir refill sit not collect reason	Reason the time to refill after compression with the subject/participant sitting down was not collected	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22540	Shunt valve reservoir resistance type	Resistance to reservoir compression	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22536	Shunt valve set type	setting type (confirmation, mechanical, electronic)	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22535	Shunt valve in place indicator	Shunt valve currenting in place	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22534	Surgical procedure complication fluid collection type	Type of fluid collection in the patient's brain post operation, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22533	Surgical procedure complication fluid collection indicator	Indicator related to the complication of a fluid collection within the brain	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22532	Shunt valve removal date	Date shunt valve was removed	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22531	Shunt valve surgical site status	Shunt valve surgical site status	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22530	Surgical procedure complication cerebrospinal fluid disorder type	Type of cerebrospinal fluid (CSF) disorder the patient has, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22529	Shunt valve surgical implantation date	Date of surgical implantation	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22528	Surgical procedure complication cerebrospinal fluid disorder indicator	Indicator related to the complication of a cerebrospinal fluid (CSF) disorder	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22527	Shunt valve other text	The free-text related to shunt valve; specifying other text	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22526	Shunt valve type	Type of Shunt Valve	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22525	Parenchymal morphology post surgical procedure brainstem shape type	Type of the shape of the patient's brainstem post surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22524	Surgical procedure complication pseudomeningocele type	Type of pseudomeningocele found in the patient's brain, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22523	Shunt valve manufacturer other text	The free-text related to shunt valve manufacturer; specifying other text	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
C22521	Assessment pre surgical procedure date	Date of the patient's pre-surgery evaluation	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22522	Surgical procedure complication pseudomeningocele indicator	Indicator related to the presence of a pseudomeningocele complication post-surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
C22520	Parenchymal morphology post surgical procedure tonsil shape type	Type of the shape of the patient's cerebellar tonsils post surgery	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.