CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 126 - 150 of 901
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C22738 Precision grip difficulty indicator

Indicator of whether the patient/participant has experienced difficulty with his or her precision grip

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22746 Urethral stricture prostate problem diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with a urethral stricture or prostate problem

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22716 Ear pressure indicator

Indicator of whether the patient/participant has pressure in his or her ears

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22724 Speech difficulty indicator

Indicator of whether the patient/participant has difficulty with speech

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22732 Burning pain abnormal extremity indicator

Indicator of whether the patient/participant has experienced an abnormal burning pain in his or her extremeties

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22755 Sexual dysfunction indicator

Indicator of whether the patient/participant experiences sexual dysfunction such as inability to attain orgasm, erectile dysfunction, inability to ejaculate

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22763 Nipple discharge indicator

Indicator of whether the patient/participant is experiencing or exhibits discharge from one or both nipples

Exploratory Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22771 Snoring indicator

Indicator of whether the patient/participant snores during sleep

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22739 Extremity stiffness indicator

Indicator of whether the patient/participant has experienced stiffness in his or her extremities

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22747 Current diarrhea indicator

Indicator of whether the patient/participant currently experiences diarrhea

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22717 Stand unsteady indicator

Indicator of whether the patient/participant feels unsteady when standing

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22725 Vocal hoarseness increase indicator

Indicator of whether the patient/participant has experienced an increase in vocal hoarseness

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22733 Extremity specific area pain decreased sensation indicator

Indicator of whether the patient/participant has experienced pain or decreased sensation in a specific area of his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22748 Occasional bowel incontinence current indicator

Indicator of whether the patient/participant currently experiences occasional bowel incontinence

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22756 Genital pelvic sensation loss indicator

Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22764 Joint hypermobility indicator

Indicator of whether the patient/participant is experiencing or exhibits hypermobility of one or more joints

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22772 Precipitating cause test type

Type of test(s) performed to identify the precipitating cause of the neurological disorder

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22740 Urination urge control difficulty indicator

Indicator of whether the patient/participant has experienced difficulty controlling the urge to urinate

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22710 Medication prior or concomitant dose frequency other text

The free-text field related to 'Medication prior or concomitant dose frequency' specifying other text. Dosing frequency for the administration of the prior/concomitant medication

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C22665 Medical history chronic constipation indicator

Indicator of whether the participant/subject has/had chronic constipation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22576 Parenchymal morphology post surgical procedure tonsil change measurement

Measurement related to the change in the patient's tonsil shape, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22577 Parenchymal morphology post surgical procedure brainstem change measurement

Measurement of the change in the patient's brainstem shape, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22575 Surgical procedure performed date

Date the surgical procedure was performed on the subject

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22574 Surgical procedure complication mechanic displacement type

Type of mechanical displacement the subject has, if any

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
C22573 Surgical procedure complication mechanic displacement indicator

Indicator related to the complication of mechanical displacement

Supplemental Chiari I Malformation Treatment Outcomes Chiari I Malformation Chiari I Malformation
Displaying 126 - 150 of 901

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.