CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 855
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22736 Extremity weakness indicator

Indicator of whether the patient/participant has experienced weakness of his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22745 Interstitial cystitis diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with interstitial cystitis

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22753 Sexual arousal difficulty maintain indicator

Indicator of whether the patient/participant is experiencing difficulty maintaining sexual arousal

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22713 Vision blurred indicator

Indicator of whether the patient/participant has blurred vision

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22761 Irritability indicator

Indicator of whether the patient/participant is experiencing or exhibits irritability

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22721 Hearing very sensitive indicator

Indicator of whether the patient/participant has very sensitive hearing

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22769 Unexpected breast milk production indicator

Indicator of whether the patient/participant is experiencing unexpected breast milk production

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22729 Pain touch sensitivity increase indicator

Indicator of whether the patient/participant has experienced an increase in sensitivity to pain or touch

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22737 Muscle tone loss indicator

Indicator of whether the patient/participant has experienced a loss of muscle tone

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22746 Urethral stricture prostate problem diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with a urethral stricture or prostate problem

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22754 Attain orgasm difficulty indicator

Indicator of whether the patient/participant experiences difficulty attaining orgasm

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22714 Vision doubled indicator

Indicator of whether the patient/participant has double vision

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22762 Chronic fatigue indicator

Indicator of whether the patient/participant is experiencing or exhibits chronic fatigue

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22722 Swallow difficulty indicator

Indicator of whether the patient/participant has difficulty swallowing

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22770 Need urinate multiple times while sleep indicator

Indicator of whether the patient/participant experiences the need to urinate more than once while sleeping

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22730 Pain sensitivity decrease indicator

Indicator of whether the patient/participant has experienced a decrease in sensitivity to pain

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22738 Precision grip difficulty indicator

Indicator of whether the patient/participant has experienced difficulty with his or her precision grip

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22739 Extremity stiffness indicator

Indicator of whether the patient/participant has experienced stiffness in his or her extremities

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22747 Current diarrhea indicator

Indicator of whether the patient/participant currently experiences diarrhea

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22755 Sexual dysfunction indicator

Indicator of whether the patient/participant experiences sexual dysfunction such as inability to attain orgasm, erectile dysfunction, inability to ejaculate

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22715 Visual field reduced look straight ahead indicator

Indicator of whether the patient/participant's visual field is reduced or missing a portion when looking straight ahead with either or both eyes

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22763 Nipple discharge indicator

Indicator of whether the patient/participant is experiencing or exhibits discharge from one or both nipples

Exploratory Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22723 Throat tight indicator

Indicator of whether the patient/participant has throat tightness

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22771 Snoring indicator

Indicator of whether the patient/participant snores during sleep

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22731 Sensation loss extremities indicator

Indicator of whether the patient/participant has experienced a partial or complete loss of sensation in his or her extremities

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
Displaying 126 - 150 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.