CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2156-C22760	C22760	Word selection anomia indicator	Indicator of whether the patient/participant is experiencing or exhibits problems with recalling words	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22720	C22720	Tremor indicator	Indicator of whether the patient/participant has tremors	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22768	C22768	Irregular menstrual period indicator	Indicator of whether the patient/participant has irregular menstrual periods	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22728	C22728	Frequent nausea indicator	Indicator of whether the patient/participant has experienced frequent nausea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22737	C22737	Muscle tone loss indicator	Indicator of whether the patient/participant has experienced a loss of muscle tone	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22745	C22745	Interstitial cystitis diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with interstitial cystitis	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22753	C22753	Sexual arousal difficulty maintain indicator	Indicator of whether the patient/participant is experiencing difficulty maintaining sexual arousal	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22713	C22713	Vision blurred indicator	Indicator of whether the patient/participant has blurred vision	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22761	C22761	Irritability indicator	Indicator of whether the patient/participant is experiencing or exhibits irritability	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22721	C22721	Hearing very sensitive indicator	Indicator of whether the patient/participant has very sensitive hearing	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22769	C22769	Unexpected breast milk production indicator	Indicator of whether the patient/participant is experiencing unexpected breast milk production	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22729	C22729	Pain touch sensitivity increase indicator	Indicator of whether the patient/participant has experienced an increase in sensitivity to pain or touch	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22738	C22738	Precision grip difficulty indicator	Indicator of whether the patient/participant has experienced difficulty with his or her precision grip	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22746	C22746	Urethral stricture prostate problem diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with a urethral stricture or prostate problem	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22754	C22754	Attain orgasm difficulty indicator	Indicator of whether the patient/participant experiences difficulty attaining orgasm	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22714	C22714	Vision doubled indicator	Indicator of whether the patient/participant has double vision	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22762	C22762	Chronic fatigue indicator	Indicator of whether the patient/participant is experiencing or exhibits chronic fatigue	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22722	C22722	Swallow difficulty indicator	Indicator of whether the patient/participant has difficulty swallowing	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22770	C22770	Need urinate multiple times while sleep indicator	Indicator of whether the patient/participant experiences the need to urinate more than once while sleeping	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22730	C22730	Pain sensitivity decrease indicator	Indicator of whether the patient/participant has experienced a decrease in sensitivity to pain	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22739	C22739	Extremity stiffness indicator	Indicator of whether the patient/participant has experienced stiffness in his or her extremities	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22747	C22747	Current diarrhea indicator	Indicator of whether the patient/participant currently experiences diarrhea	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22755	C22755	Sexual dysfunction indicator	Indicator of whether the patient/participant experiences sexual dysfunction such as inability to attain orgasm, erectile dysfunction, inability to ejaculate	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22715	C22715	Visual field reduced look straight ahead indicator	Indicator of whether the patient/participant's visual field is reduced or missing a portion when looking straight ahead with either or both eyes	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22763	C22763	Nipple discharge indicator	Indicator of whether the patient/participant is experiencing or exhibits discharge from one or both nipples	Exploratory	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.