CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 701 - 725 of 861
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C21734 Imaging syrinx highest level spinal segment number

The number as related to the highest level of syrinx, reported in terms of most superior spinal segment along syrinx

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21732 Imaging syrinx present indicator

The indicator related to presence of syrinx within the spinal cord measuring greater than 3 mm in axial plane T1 imaging

Supplemental-Highly Recommended Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21728 Imaging cerebellar tonsil lowest position measurement

The measurement related to lowest tonsillar position relative to foramen magnum

Core Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21729 Imaging cerebellar tonsil right position measurement

The measurement related to right tonsillar position relative to foramen magnum

Core Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21730 Imaging cerebellar tonsil left position measurement

The measurement related to left tonsillar position relative to foramen magnum

Core Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21731 Imaging cerebellar tonsil shape type

The type as related to the relative tonsil shape reported

Exploratory Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C21727 Lansky modified performance status score

Score that best identifies your child's current level of functioning favoring the highest level estimate

Supplemental Functional Status Lansky Score Chiari I Malformation Chiari I Malformation
C21726 Karnofsky modified performance status score

Score identifying current level of functioning favoring the highest level estimate

Supplemental Functional Status Karnofsky Score Chiari I Malformation Chiari I Malformation
C22774 Hoarseness assessment indicator

The indicator related to hoarseness which describes abnormal voice changes

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21725 Strabismus assessment indicator

The indicator related to strabismus which is a condition that interferes with binocular vision because it prevents a person from directing both eyes simultaneously towards the same fixation point

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21725 Strabismus assessment indicator

The indicator related to strabismus which is a condition that interferes with binocular vision because it prevents a person from directing both eyes simultaneously towards the same fixation point

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C22774 Hoarseness assessment indicator

The indicator related to hoarseness which describes abnormal voice changes

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21724 Nausea vomit assessment status

The status as related to nausea and vomiting

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21723 Coordination truncal instability assessment indicator

Indicator related to truncal instability or with a wide-based "drunken sailor" gait

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21722 Oculomotor saccadic pursuit assessment indicator

Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21722 Oculomotor saccadic pursuit assessment indicator

Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21720 Vertigo assessment indicator

Indicator as related to assessment of vertigo

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21719 Sixth cranial nerve palsy assessment status

Status as related to assessment of 6th cranial nerve palsy

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21719 Sixth cranial nerve palsy assessment status

Status as related to assessment of 6th cranial nerve palsy

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21718 Cardiac arrhythmia finding text

The free-text field to explain the findings of the cardiac arrhythmia

Exploratory Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21717 Sleep disorder finding type

Type as related to sleep disorder

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21716 Tongue function atrophy assessment status

Status as related to tongue function atrophy

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21715 Tongue function deviation assessment status

Status as related to tongue function deviation

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
C21715 Tongue function deviation assessment status

Status as related to tongue function deviation

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C21714 Gag reflect status

Status as related to gag reflex

Supplemental Brainstem Signs/Symptoms Chiari I Malformation Chiari I Malformation
Displaying 701 - 725 of 861

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.