CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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CRF Name

Displaying 301 - 325 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22452	C22452	Klippel Feil Anomaly diagnosis indicator	The indicator related to the clinical diagnosis of Klippel Feil Anomaly, or fused cervical vertebrae	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22451	C22451	Hydrocephalus family history ventricle variant indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically any ventricular variants, such as cavum septum pellucidum and cavum vergi	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22450	C22450	Hydrocephalus family history aqueductal stenosis indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically aqueductal stenosis, or the narrowing of the aqueducts in the brain causing the blockage of the flow of cerebrospinal fluid (CSF)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22449	C22449	Hydrocephalus family history slit ventricle indicator	The indicator related to personal or immediate family history of hydrocephalus, specifically slit ventricle syndrome	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22447	C22447	Hydrocephalus family history untreated indicator	The indicator related to any personal or immediate family history of untreated hydrocephalus	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22448	C22448	Hydrocephalus family history treated indicator	The indicator related to any personal or immediate family history of treated hydrocephalus	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22446	C22446	Malar hypoplasia condition indicator	The indicator related to the condition of malar hypoplasia, in which the subject has an underdeveloped maxilla	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22445	C22445	Micrognathia condition indicator	The indicator related to the condition of micrognathia, in which the subject has a small receding jaw	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22443	C22443	Medical history correction cleft palate abnormality indicator	The indicator related to medical history of or correction of an abnormality in the subject's cleft palate	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22444	C22444	Medical history correction bifid uvula abnormality indicator	The indicator related to medical history of or correction of an abnormality in the subject's bifid uvula	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22442	C22442	Medical history correction high arched palate abnormality indicator	The indicator related to medical history of or correction of an abnormality in the subject's high arched palate	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22441	C22441	Medical history cranial vault remodel indicator	The indicator related to medical history in which the subject has any history of cranial vault remodeling	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22440	C22440	Head shape trigonocephaly indicator	The indicator related to head shape trigonocephaly, in which the subject has a triangular shaped forehead	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22439	C22439	Head shape dolichocephaly indicator	The indicator related to head shape dolicocephaly, in which the subject's head is longer that would be expected, relative to its width	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22438	C22438	Head shape plagiocephaly indicator	The indicator related to head shape plagiocephaly, in which one side of the subject's head is flat	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22436	C22436	Inferior vena caval pressure abnormality indicator	The indicator related to the presence of any abnormality in the value of the subject's inferior vena caval (IVC) pressure	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2183-C22437	C22437	Suboccipital craniectomy size superior inferior measurement	The measurement related to the size of the suboccipital craniectomy superiorly or inferiorly	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2182-C22435	C22435	Medical history valvular stenosis indicator	The indicator related to any medical history of valvular stenosis, in which there is narrowing, stiffening, thickening, fusion, or blockage of one or more of the valves in the subject's heart	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22433	C22433	Medical history aortic root enlargement indicator	The indicator related to any medical history of the enlargement of the subject's aortic root	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2146-C22433	C22433	Medical history aortic root enlargement indicator	The indicator related to any medical history of the enlargement of the subject's aortic root	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22434	C22434	Chiari malformation conservative management duration	Duration of conservative management from time of initial imaging diagnosis	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22432	C22432	Chiari malformation conservative management indicator	The indicator related to conservative management with no surgical treatment offered	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2182-C22430	C22430	Brain injury unspecified indicator	The indicator relating to any unspecified brain injuries the subject has had	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22431	C22431	Neck injury unspecified indicator	The indicator relating to any unspecified neck injuries the subject has had	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2182-C22429	C22429	Motor vehicle accident injury indicator	The indicator relating to any previous or current injuries due to a motor vehicle accident (MVA)	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.