CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 1 - 25 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity rate scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C05106 Surgical therapeutic procedure start date and time

Date (and time, if applicable and known) on which the surgical or therapeutic procedure started

Supplemental Surgical Site Assessment Chiari I Malformation Chiari I Malformation
C02008 Medication prior or concomitant end date and time

The date (and time, if applicable and known) the administration of the prior/concomitant medication ended

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C02016 Medication prior or concomitant start date and time

The date (and time, if applicable and known) on which the prior/concomitant medication usage began

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C18737 Medication prior or concomitant route type other text

The free-text field related to 'Medication prior or concomitant route type', specifying other text. Type of access route for the administration of the prior/concomitant medication

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C02015 Medication prior or concomitant route type

Type of access route for the administration of the prior/concomitant medication

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C02022 Medication prior or concomitant dose unit of measure

Dosage unit of measure of the prior or concomitant medication administered

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C02006 Medication prior or concomitant dose

Dose of prior/concomitant medication taken per administration

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C18736 Medication prior or concomitant dose unit of measure other text

The free-text field related to 'Medication prior or concomitant dose unit of measure', specifying other text. Dosage unit of measure of the prior or concomitant medication administered

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Chiari I Malformation Chiari I Malformation
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental Demographics Chiari I Malformation Chiari I Malformation
C58780 Birth sex assigned type other text

The free-text field related to 'Birth sex assigned type', specifying other text

Supplemental General Core Chiari I Malformation Chiari I Malformation
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core Demographics Chiari I Malformation Chiari I Malformation
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

Core General Core Chiari I Malformation Chiari I Malformation
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core Demographics Chiari I Malformation Chiari I Malformation
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

Core General Core Chiari I Malformation Chiari I Malformation
C58515 Greatest transverse spinal cord diameter measurement

Greatest transverse diameter of spinal cord on T2-WI as measured on MRI in the axial plane (in mm)

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C58516 Greatest transverse thecal sac diameter measurement

Greatest transverse diameter of thecal sac on T2-WI as measured on MRI in the axial plane (in mm)

Supplemental Chiari I Malformation Imaging Chiari I Malformation Chiari I Malformation
C56996 Palpitation SI joint local pain text

Text field related to local pain within palpitation of SI joints

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56995 Sacroiliac joint dysfunction palpitation pain type

Type of palpitation in sacroiliac joint dysfunction pain

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56994 Spinal percussion local pain text

Text field related to the spinal percussion local pain

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56993 Spinal percussion type

Type of spinal percussion

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C56992 Toe walking weakness type

Type of toe walking weakness

Exploratory Provocative-Other Testing Chiari I Malformation Chiari I Malformation
Displaying 1 - 25 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.