CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C17402	Site name	The name of the site for the study	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
C13523	Dizziness or vertigo indicator	Indicator of whether the participant/subject experienced dizziness or vertigo	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
C13758	Imaging diagnosis stroke transient ischemic attack indicator	Indicator of the diagnosis of stroke/transient ischemic attack (TIA) for imaging positive	Supplemental-Highly Recommended	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C11063	Parity maternal value	Number of live born children the participant's/subject's mother has delivered	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C10515	Scoliosis diagnosis indicator	The indicator of whether the participant/subject has been diagnosed with scoliosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
C10709	Walking assistive device indicator	Indicator of whether the participant/subject uses an assistive device for walking	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
C17460	Cancer history indicator	Indicator as to whether the participant/subject has or had cancer	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C16046	Pregnancy labor delivery complication indicator	Indicator of whether there were complications during labor/delivery	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C15917	Headache typical pain intensity scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
C15917	Headache typical pain intensity scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
C06020	Urinary incontinence past three months indicator	Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
C18150	Thyroid disease indicator	Indicator for thyroid disease	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C18793	Medical history condition other text	The free-text field related to 'Medical history condition type' specifying other text. Pre-specified medical condition/disease asked about when collecting the medical history from the participant/subject or found documented in the medical record	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C18495	Protocol ID number	The designated number used to identify the protocol or study to which participants/subjects will be enrolled	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
C17277	Modified Romberg test result	The result of the Modified Romberg test	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
C05454	Hypertension indicator	Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
C05400	Injury date time	Date (and time, if applicable and known) of injury	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
C01058	Traumatic Brain Injury symptom indicator	Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign	Core	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
C01052	Loss of consciousness indicator	The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC)	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
C18035	Medication prior name	Name of the prior/concomitant agent or drug administered	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
C09580	Brief Pain Inventory (BPI) - current pain rating scale	Scale rating the pain the subject is feeling right now, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Chiari I Malformation	Chiari I Malformation
C09588	Brief Pain Inventory (BPI) - pain sleep interference scale	Scale assessing how much the pain has interfered with sleep, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Chiari I Malformation	Chiari I Malformation
C09581	Brief Pain Inventory (BPI) - treatment received text	Text of treatment/medication subject receives for the pain, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Chiari I Malformation	Chiari I Malformation
C09589	Brief Pain Inventory (BPI) - pain enjoyment interference scale	Scale assessing how much the pain has interfered with enjoyment of life, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Chiari I Malformation	Chiari I Malformation
C09582	Brief Pain Inventory (BPI) - relief received percentage number	Indicates the relief received from medication use, as part of the Brief Pain Inventory (BPI) form	Supplemental	Brief Pain Inventory (BPI) Short Form	True	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.