CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C13523 Dizziness or vertigo indicator

Indicator of whether the participant/subject experienced dizziness or vertigo

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C17402 Site name

The name of the site for the study

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C13758 Imaging diagnosis stroke transient ischemic attack indicator

Indicator of the diagnosis of stroke/transient ischemic attack (TIA) for imaging positive

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C17460 Cancer history indicator

Indicator as to whether the participant/subject has or had cancer

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C16046 Pregnancy labor delivery complication indicator

Indicator of whether there were complications during labor/delivery

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C18150 Thyroid disease indicator

Indicator for thyroid disease

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C06020 Urinary incontinence past three months indicator

Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C18495 Protocol ID number

The designated number used to identify the protocol or study to which participants/subjects will be enrolled

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C01052 Loss of consciousness indicator

The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC)

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C17277 Modified Romberg test result

The result of the Modified Romberg test

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C05454 Hypertension indicator

Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C05400 Injury date time

Date (and time, if applicable and known) of injury

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C01058 Traumatic Brain Injury symptom indicator

Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C18035 Medication prior name

Name of the prior/concomitant agent or drug administered

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C22368 Reflex superficial reflex abdominal response status

The response status of superficial reflex testing of abdominal (intercostal: T7-T12)

Exploratory Reflex Testing Chiari I Malformation Chiari I Malformation
C11061 Gait assessment result

Result of the gait assessment

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Chiari I Malformation Chiari I Malformation
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C01520 Head circumference measurement

Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Reflex Testing Chiari I Malformation Chiari I Malformation
C06005 Data collected date and time

Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed

Supplemental Modified Ashworth Scale - Limb Tone Testing Chiari I Malformation Chiari I Malformation
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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.