CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 901
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C13758 Imaging diagnosis stroke transient ischemic attack indicator

Indicator of the diagnosis of stroke/transient ischemic attack (TIA) for imaging positive

Supplemental-Highly Recommended Past History (on intake) Chiari I Malformation Chiari I Malformation
C17402 Site name

The name of the site for the study

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C13523 Dizziness or vertigo indicator

Indicator of whether the participant/subject experienced dizziness or vertigo.

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C11063 Parity maternal value

Number of live born children the participant's/subject's mother has delivered

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C10515 Scoliosis diagnosis indicator

The indicator of whether the participant/subject has been diagnosed with scoliosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C10709 Walking assistive device indicator

Indicator of whether the participant/subject uses an assistive device for walking

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C17460 Cancer history indicator

Indicator as to whether the participant/subject has or had cancer

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C15917 Headache typical pain intensity scale

Rating scale for the pain of this headache on a scale of 0 -10

Supplemental Strain - Related Headache Chiari I Malformation Chiari I Malformation
C16046 Pregnancy labor delivery complication indicator

Indicator of whether there were complications during labor/delivery

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
C18150 Thyroid disease indicator

Indicator for thyroid disease

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C18793 Medical history condition other text

The free-text field related to 'Medical history condition type' specifying other text. Pre-specified medical condition/disease asked about when collecting the medical history from the participant/subject or found documented in the medical record.

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C06020 Urinary incontinence past three months indicator

Indicator of involuntary urine leakage (incontinence) within the last three months. Urinary incontinence is defined by International Continence Society (Abrams et al. 2002) as the complaint of any involuntary leakage of urine.

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C18495 Protocol ID number

The designated number used to identify the protocol or study to which participants/subjects will be enrolled.

Supplemental Chiari I Malformation Presentation Exam Chiari I Malformation Chiari I Malformation
C05454 Hypertension indicator

Indicator of hypertension. In adults, hypertension is defined as a systolic pressure >= 140 and a diastolic >= 90. In children, it is defined as systolic blood pressure >95th percentile for age.

Supplemental Past History (on intake) Chiari I Malformation Chiari I Malformation
C05400 Injury date time

Date (and time, if applicable and known) of injury

Supplemental CMI - Headache Score Chiari I Malformation Chiari I Malformation
C01058 Traumatic Brain Injury symptom indicator

Indicator of whether the participant/subject exhibited the specific TBI physical symptom/sign

Core Co-Morbidities Chiari I Malformation Chiari I Malformation
C01052 Loss of consciousness indicator

The indicator for whether the participant/subject experienced any period of loss of consciousness (LOC).

Supplemental-Highly Recommended Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C17277 Modified Romberg test result

The result of the Modified Romberg test

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C18035 Medication prior name

Name of the prior/concomitant agent or drug administered

Supplemental Medications (Prior and Current) Chiari I Malformation Chiari I Malformation
C09582 Brief Pain Inventory (BPI) - relief received percentage number

Indicates the relief received from medication use, as part of the Brief Pain Inventory (BPI) form.

Supplemental Brief Pain Inventory (Short Form) Chiari I Malformation Chiari I Malformation
C09575 Brief Pain Inventory (BPI) - other pain indicator

Indicates if the subject had pain other than everyday kinds of pain, as part of the Brief Pain Inventory (BPI) form.

Supplemental Brief Pain Inventory (Short Form) Chiari I Malformation Chiari I Malformation
C09583 Brief Pain Inventory (BPI) - pain general activity interference scale

Scale assessing how much the pain has interfered with general activity, as part of the Brief Pain Inventory (BPI) form.

Supplemental Brief Pain Inventory (Short Form) Chiari I Malformation Chiari I Malformation
C09576 Brief Pain Inventory (BPI) - pain area indicator

On the diagram, shade in the areas where you feel pain. Put an X on the area that hurts the most, as part of the Brief Pain Inventory (BPI) form.

Supplemental Brief Pain Inventory (Short Form) Chiari I Malformation Chiari I Malformation
C09584 Brief Pain Inventory (BPI) - pain mood interference scale

Scale assessing how much the pain has interfered with mood, as part of the Brief Pain Inventory (BPI) form.

Supplemental Brief Pain Inventory (Short Form) Chiari I Malformation Chiari I Malformation
Displaying 1 - 25 of 901

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.