CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2163-C22343	C22343	Chiari malformation fatigue onset symptom severity scale	The scale as related to fatigue at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22317	C22317	Chiari malformation fatigue onset important symptom scale	The scale as related to fatigue at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22347	C22347	Chiari malformation cardiac onset symptom severity scale	The scale as related to cardiac at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22323	C22323	Chiari malformation cardiac onset important symptom scale	The scale as related to cardiac at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22345	C22345	Chiari malformation brain fog onset symptom severity scale	The scale as related to brain fog at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22320	C22320	Chiari malformation brain fog onset important symptom scale	The scale as related to brain fog at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22351	C22351	Chiari malformation bowel bladder onset symptom severity scale	The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22324	C22324	Chiari malformation bowel bladder onset important symptom scale	The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22340	C22340	Chiari malformation auditory symptoms onset symptom severity scale	The scale as related to auditory symptoms at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22315	C22315	Chiari malformation auditory symptoms onset important symptom scale	The scale as related to auditory symptoms at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2194-C56979	C56979	Knee patella exam result type	The result of the participant/subject's knee/patella exam	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2150-C17277	C17277	Modified Romberg test result	The result of the Modified Romberg test	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2194-C56981	C56981	Range of motion at hip result type	The result and findings from the participant/subject's range of motion at his/her hips	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22289	C22289	Reflex superficial reflex plantar response status	The response status of superficial reflex testing of plantar (tibial: S1)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22283	C22283	Reflex superficial reflex cremasteri response status	The response status of superficial reflex testing of cremasteric (ilioinguinal/genitofemoral: L1-L2)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22296	C22296	Reflex superficial reflex bulbocavernosus response status	The response status of superficial reflex testing of bulbocavernosus (pudendal: S3-S4)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22291	C22291	Reflex superficial reflex anal response status	The response status of superficial reflex testing of anal (inf. Hemorrhoidal: S2-S4)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22368	C22368	Reflex superficial reflex abdominal response status	The response status of superficial reflex testing of abdominal (intercostal: T7-T12)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22310	C22310	Reflex pyramidal frontal release sign sucking status	The response status as related to pyramidal/frontal release sign sucking reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22310	C22310	Reflex pyramidal frontal release sign sucking status	The response status as related to pyramidal/frontal release sign sucking reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2155-C22301	C22301	Reflex pyramidal frontal release sign snout status	The response status as related to pyramidal/frontal release sign snout reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22301	C22301	Reflex pyramidal frontal release sign snout status	The response status as related to pyramidal/frontal release sign snout reflex	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2155-C22321	C22321	Reflex pyramidal frontal release sign palmomental status	The response status as related to pyramidal/frontal release sign palmomental reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22318	C22318	Reflex pyramidal frontal release sign Hoffman status	The response status as related to pyramidal/frontal release sign hoffman reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22303	C22303	Reflex pyramidal frontal release sign hand grasp status	The response status as related to pyramidal/frontal release sign hand grasp reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.