CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C11065	C11065	Gravida maternal value	Total number of times the participant's/subject's mother has been pregnant, regardless of whether these pregnancies were carried to term	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2158-C22541	C22541	Shunt valve reservoir refill lying duration	Time to refill after compression, with the subject/participant lying down	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2182-C00001	C00001	Gestational age value	Time elapsed in weeks between the first day of the last normal menstrual period and the day of delivery of the participant/subject	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2272-C55642	C55642	Neck Disability Index - work indicator	The work pain indicator of the subject/participant as part of the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2159-C22267	C22267	Spine range of motion trunk right lateral bend degree value	The value in degrees related to range in motion of trunk right lateral bend (25) in assessment of spine	Exploratory	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22268	C22268	Spine range of motion trunk left lateral bend degree value	The value in degrees related to range in motion of trunk left lateral bend (25) in assessment of spine	Exploratory	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22266	C22266	Spine range of motion trunk forward flexion estimate degree value	The value in degrees related to range in motion of trunk forward flexion (100) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22263	C22263	Spine range of motion trunk extension degree value	The value in degrees related to range in motion of trunk extension (30) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22255	C22255	Spine range of motion neck right rotation degree value	The value in degrees related to range in motion of neck to the right (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22256	C22256	Spine range of motion neck left rotation degree value	The value in degrees related to range in motion of neck to the left (80) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22259	C22259	Spine range of motion flexion degree value	The value in degrees related to range in motion of neck flexion (60) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22257	C22257	Spine range of motion neck extension degree value	The value in degrees related to range in motion of neck extension (50) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2160-C22236	C22236	Headaches factor aggravate type	The type related to what aggravates the subject's headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2160-C22234	C22234	Headache quality type	The type related to the quality of the subject's headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2160-C22238	C22238	Headache associate symptom type	The type related to the associated symptoms that the subject is experiencing during his/her headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2182-C22455	C22455	Family history cranial synostosis condition type	The type related to personal or family history of the condition of cranial synostosis	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2146-C22775	C22775	Hereditary disorder connective tissue diagnosis type	The type related to hereditary disorder of connective tissues	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2146-C22776	C22776	Hereditary disorder type	The type related to hereditary disorder of connective tissues	Supplemental-Highly Recommended	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22295	C22295	Chiari malformation precipitate factor type	The type related to any precipitating factors that may have contributed to the patient's Chiari Malformation	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2163-C22292	C22292	Chiari malformation associate problem diagnosis type	The type related to any associated problems found at the patient's diagnosis of Chiari Malformation	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2183-C22494	C22494	Ventral decompression type	The type of ventral decompression utilitized (if any)	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22482	C22482	Surgical procedure tonsillar reduction type	The type of tonsillar reduction utilized	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22468	C22468	Surgical procedure arachnoid manuever type	The type of surgical procedure performed on arachnoid	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2161-C22274	C22274	Surgical procedure type	The type of surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2163-C22357	C22357	Chiari malformation identify speciality diagnosis type	The type of specialty of the individual responsible for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.