CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 801 - 825 of 855

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2172-C21739	C21739	Imaging posterior cranial fossa pB-C2 measurement	The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2140-C21719	C21719	Sixth cranial nerve palsy assessment status	Status as related to assessment of 6th cranial nerve palsy	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21720	C21720	Vertigo assessment indicator	Indicator as related to assessment of vertigo	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21713	C21713	Swallow function problem type	Type as related to problem with function of swallowing	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21722	C21722	Oculomotor saccadic pursuit assessment indicator	Indicator related to if there are saccades (quick movements of eye in same direction toward) and smooth pursuit (tracking object) eye movements which are two different types of oculomotor control	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21714	C21714	Gag reflect status	Status as related to gag reflex	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21723	C21723	Coordination truncal instability assessment indicator	Indicator related to truncal instability or with a wide-based "drunken sailor" gait	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21715	C21715	Tongue function deviation assessment status	Status as related to tongue function deviation	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21724	C21724	Nausea vomit assessment status	The status as related to nausea and vomiting	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21716	C21716	Tongue function atrophy assessment status	Status as related to tongue function atrophy	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21725	C21725	Strabismus assessment indicator	The indicator related to strabismus which is a condition that interferes with binocular vision because it prevents a person from directing both eyes simultaneously towards the same fixation point	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21717	C21717	Sleep disorder finding type	Type as related to sleep disorder	Supplemental	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C22774	C22774	Hoarseness assessment indicator	The indicator related to hoarseness which describes abnormal voice changes	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2140-C21718	C21718	Cardiac arrhythmia finding text	The free-text field to explain the findings of the cardiac arrhythmia	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2139-C21688	C21688	Beighton Score - Motion palm flat leg straight score	Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2139-C21689	C21689	Beighton Score - Total score	Total score as related to the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2139-C21684	C21684	Beighton Score - Motion thumb forearm assessment score	Score/Assessment of the motion thumb to forearm as part of the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2139-C21685	C21685	Beighton Score - Motion finger bend back score	Score/Assessment of Motion to bend finger back as part of the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2139-C21686	C21686	Beighton Score - Motion elbow hyperextend score	Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2139-C21687	C21687	Beighton Score - Motion knee hyperextend score	Score/assessment of ability to complete the Motion hyperextended knee as part of Beighton Score	Supplemental-Highly Recommended	Beighton Score	False	Chiari I Malformation	Chiari I Malformation
F2158-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2158-C22529	C22529	Shunt valve surgical implantation date	Date of surgical implantation	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2158-C22540	C22540	Shunt valve reservoir resistance type	Resistance to reservoir compression	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2158-C22509	C22509	Shunt type	Shunt type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2158-C22531	C22531	Shunt valve surgical site status	Shunt valve surgical site status	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation

Displaying 801 - 825 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.