CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 26 - 50 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2159-C22259	C22259	Spine range of motion flexion degree value	The value in degrees related to range in motion of neck flexion (60) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22261	C22261	Spine range of motion Lhermitte's sign evoke type	The type of range of motion in which Lhermitte's sign was evoked in the patient's spine	Exploratory	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2159-C22263	C22263	Spine range of motion trunk extension degree value	The value in degrees related to range in motion of trunk extension (30) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F0001-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Chiari I Malformation	Chiari I Malformation
F0001-C00207	C00207	Marital or partner status	Status of participant/subject's current domestic relationship, whether marital or partnered	Supplemental	Social Status	False	Chiari I Malformation	Chiari I Malformation
F2157-C22227	C22227	Sensory abnormal burning pain indicator	The indicator related to abnormal burning pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2157-C22228	C22228	Sensory abnormal dull ache pain indicator	The indicator related to abnormal dull ache pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2157-C22210	C22210	Sensory upper extremity numbness tingling symptom indicator	The indicator related to numbness/tingling in the upper extremities	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2157-C22220	C22220	Sensory lower extremity numbness tingling symptom indicator	The indicator related to numbness/tingling in the lower extremities	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2157-C22222	C22222	Sensory pain temperature deficit indicator	The indicator related to a sensory deficit related to pain and/or temperature	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2157-C22223	C22223	Sensory point sensory vibration deficit indicator	The indicator related to sensory deficits in point sensory and/or vibrations	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2157-C22225	C22225	Sensory abnormal tingling pain indicator	The indicator related to abnormal tingling pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2157-C22226	C22226	Sensory abnormal stabbing pain indicator	The indicator related to abnormal stabbing pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2156-C22740	C22740	Urination urge control difficulty indicator	Indicator of whether the patient/participant has experienced difficulty controlling the urge to urinate	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22748	C22748	Occasional bowel incontinence current indicator	Indicator of whether the patient/participant currently experiences occasional bowel incontinence	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22205	C22205	Cough cry laugh sneeze pain worse indicator	The indicator related to pain worsened by coughing, crying, laughing, sneezing, orgasms, bowel movements	Core	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22756	C22756	Genital pelvic sensation loss indicator	Indicator of whether the patient/participant has experienced a loss of sensation in his or her genital or pelvic area	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22716	C22716	Ear pressure indicator	Indicator of whether the patient/participant has pressure in his or her ears	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22764	C22764	Joint hypermobility indicator	Indicator of whether the patient/participant is experiencing or exhibits hypermobility of one or more joints	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22724	C22724	Speech difficulty indicator	Indicator of whether the patient/participant has difficulty with speech	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22772	C22772	Precipitating cause test type	Type of test(s) performed to identify the precipitating cause of the neurological disorder	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22732	C22732	Burning pain abnormal extremity indicator	Indicator of whether the patient/participant has experienced an abnormal burning pain in his or her extremeties	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22741	C22741	Urination initiation difficulty indicator	Indicator of whether the patient/participant has experienced difficulty initiating urination	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22749	C22749	Irritable bowel syndrome diagnosis ever indicator	Indicator of whether the patient/participant has ever been diagnosed with Irritable Bowel Syndrome (IBS)	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22208	C22208	Stiffness pain general indicator	The indicator related to general neck pain/stiffness	Supplemental-Highly Recommended	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.