CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 276 - 300 of 855
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22343 Chiari malformation fatigue onset symptom severity scale

The scale as related to fatigue at onset severity in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22358 Chiari malformation identify specialty diagnosis type text

The free text field related to identifying the specialty of the individual responsible for diagnosis

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C01541 Weight measurement

Measurement of participant's weight

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22307 Chiari malformation Neck pain onset important symptom scale

The scale as related to neck pain at onset importance in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22324 Chiari malformation bowel bladder onset important symptom scale

The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22345 Chiari malformation brain fog onset symptom severity scale

The scale as related to brain fog at onset severity in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C01581 Weight unit of measure

Unit of measure for the weight numerical value

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22309 Chiari malformation numbness tingling onset important symptom scale

The scale as related to numbness/tingling at onset importance in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22328 Chiari malformation headache onset symptom severity scale

The scale as related to headache at onset severity in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22347 Chiari malformation cardiac onset symptom severity scale

The scale as related to cardiac at onset severity in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C01582 Height unit of measure

Unit of measure for the height numerical value for participant

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22311 Chiari malformation imbalance dizziness onset important symptom scale

The scale as related to imbalance/dizziness at onset importance in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22333 Chiari malformation neck pain onset symptom severity scale

The scale as related to neck pain at onset severity in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22351 Chiari malformation bowel bladder onset symptom severity scale

The scale as related to bowel/bladder at onset severity in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C08007 Diagnosis first given date and time

Date (and time if applicable and known) the participant/subject was initially diagnosed with the disease or disorder

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22313 Chiari malformation visual symptoms onset important symptom scale

The scale as related to visual symptoms at onset importance in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22334 Chiari malformation numbness tingling onset symptom severity scale

The scale as related to numbness/tingling at onset severity in Chiari malformation symptoms

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C22354 Imaging diagnostic method type

The type of imaging method utilized for diagnosis

 Supplemental Chiari Symptom Onset False Chiari I Malformation Chiari I Malformation
C21780 Headache primary laterality anatomic site

The location related to the lateral site of the primary headache

 Exploratory CMI - Headache Score False Chiari I Malformation Chiari I Malformation
C21833 Headache symptom association type

The type as related to symptoms consistently associated with headache

 Supplemental CMI - Headache Score False Chiari I Malformation Chiari I Malformation
C21842 Headache aggravating pain factor type

The type as related to factor aggravating headache pain

 Exploratory CMI - Headache Score False Chiari I Malformation Chiari I Malformation
C21782 Headache primary laterality anatomic site score

The score relating to the anatomic site of the primary headache

 Exploratory CMI - Headache Score False Chiari I Malformation Chiari I Malformation
C21834 Headache symptom association score

The score related to symptoms consistently associated with headache

 Supplemental CMI - Headache Score False Chiari I Malformation Chiari I Malformation
C21843 Headache aggravating pain factor score

The score related to factor aggravating headache pain

 Exploratory CMI - Headache Score False Chiari I Malformation Chiari I Malformation
C21783 Headache focal point extension radiation type

The type of extension from the focal point of the headache

 Supplemental CMI - Headache Score False Chiari I Malformation Chiari I Malformation
Displaying 276 - 300 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.