CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2156-C22724	C22724	Speech difficulty indicator	Indicator of whether the patient/participant has difficulty with speech	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2141-C21692	C21692	Chiari I malformation prickle tingle numb arm leg frequent occurrence symptom indicator	The indicator related to frequent prickling, tingling or numbness in your arms/legs in defining signs and symptoms for Chiari I malformation	Supplemental	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2149-C21876	C21876	Surgical history pacemaker indicator	The indicator related to surgical history of a pacemaker	Supplemental	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2183-C22508	C22508	Spinal deformity stabilization text	The free-text field related to the highest/lowest level of surgical stabilization of the spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2165-C22258	C22258	Reflex deep tendon reflex triceps response score	The response score related to deep tendon reflex testing of triceps (radial:c7-8)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2272-C55641	C55641	Neck Disability Index - Concentration	The pain indicator of the participant/subject's concentration as it relates to the Neck Disability Index	Supplemental	Neck Disability Index (NDI)	False	Chiari I Malformation	Chiari I Malformation
F2156-C22772	C22772	Precipitating cause test type	Type of test(s) performed to identify the precipitating cause of the neurological disorder	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2152-C22710	C22710	Medication prior or concomitant dose frequency other text	The free-text field related to 'Medication prior or concomitant dose frequency' specifying other text. Dosing frequency for the administration of the prior/concomitant medication	Supplemental	Medications (Prior and Current)	False	Chiari I Malformation	Chiari I Malformation
F2142-C21700	C21700	Coordination gait assessment scale	The scale related to assessment of manner of person's walking	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2138-C21673	C21673	Allergy medication antibiotic reaction type	Type related to allergic reaction to antibiotic medication	Supplemental	Allergy	False	Chiari I Malformation	Chiari I Malformation
F2157-C22227	C22227	Sensory abnormal burning pain indicator	The indicator related to abnormal burning pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2183-C22460	C22460	Suboccipital craniectomy size left right measurement range	The range of measurement related to the size of the suboccipital craniectomy left or right	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2153-C22031	C22031	Motor strength testing right triceps scale	The amount of movement in the right triceps muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2194-C56970	C56970	Muscle spasm type	Type of muscle spasm	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2156-C22740	C22740	Urination urge control difficulty indicator	Indicator of whether the patient/participant has experienced difficulty controlling the urge to urinate	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation
F2142-C21708	C21708	Coordination heel to shin right lower extremity assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (right lower extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2161-C22243	C22243	Surgical procedure hardware anatomic site	The anatomic site related to hardware of surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22397	C22397	Cerebrospinal fluid ventral space measurement	Measurement related to the minimal cerebrospinal fluid (CSF) space ventral to the spinal canal (SC) at the foramen magnum	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2148-C21839	C21839	Headache pain relief factor type	The type as related to pain relief factor for headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22216	C22216	Chiari malformation neurological examination tone normal indicator	The indicator related to tone being normal, no abnormal movements or tremors are noted	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2158-C22512	C22512	Shunt function valve anatomic site type	Site/location	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C10724	C10724	Echocardiogram perform date and time	Date (and time, if applicable and known) the echocardiography was performed	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22038	C22038	Motor strength testing left wrist flexion scale	The amount of movement in the flexion of the left wrist muscles	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22576	C22576	Parenchymal morphology post surgical procedure tonsil change measurement	Measurement related to the change in the patient's tonsil shape, if any	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2163-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.