CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 151 - 175 of 855
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C22545 Shunt valve scan date

Date of shunt valve scan

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C21767 Chiari malformation screening orthopedic joint hip dislocation unusual pain screen indicator

The indicator related to any kind of hip or any other joint dislocation, unusual joint pain, or susceptibility to joint injury in a screening for Chiari malformation

Supplemental CMI - Hereditary Disorders of Connective Tissue Screening (2) Chiari I Malformation Chiari I Malformation
C22180 Chiari malformation neurological examination normal mood indicator

The indicator related to mood and affect being normal

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21762 Temporal artery tenderness absent assessment indicator

The indicator related to not having any tenderness in temporal arteries which supply blood to the head and brain

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C55661 Cervical compression surgical site tenderness anatomic site

The anatomic site related to cervical compression at surgical site

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22328 Chiari malformation headache onset symptom severity scale

The scale as related to headache at onset severity in Chiari malformation symptoms

Supplemental Chiari Symptom Onset Chiari I Malformation Chiari I Malformation
C22266 Spine range of motion trunk forward flexion estimate degree value

The value in degrees related to range in motion of trunk forward flexion (100) in assessment of spine

Supplemental Spine: Range of Motion Assessment Chiari I Malformation Chiari I Malformation
C22188 Chiari malformation neurological examination facial asymmetry weakness absent indicator

The indicator related to not having facial asymmetry or weakness

Supplemental Neurological Exam Chiari I Malformation Chiari I Malformation
C21781 Peripheral edema clubbing cyanosis absence indicator

The indicator related to identifying an absence of peripheral edema, clubbing or cyanosis

Supplemental General Exam Chiari I Malformation Chiari I Malformation
C22025 Motor strength testing iliopsoas right scale

The amount of movement in the right iliopsoas

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22734 Skin change indicator

Indicator of whether the patient/participant has experienced a skin change

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21702 Coordination stance assessment scale

The scale related to assessment of way someone stands

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21675 Allergy medication name

Name related to the medication causing allergic reaction

Supplemental Allergy Chiari I Malformation Chiari I Malformation
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Assessment of Shunt Function Chiari I Malformation Chiari I Malformation
C22462 Cervical laminotomy indicator

The indicator related to cervical laminotomy performed

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C22033 Motor strength testing right gluteus scale

The amount of movement in the right gluteus

Supplemental Motor Strength Testing Chiari I Malformation Chiari I Malformation
C22742 Excessive urination frequency indicator

Indicator of whether the patient/participant's urination frequency has been excessive

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C21710 Coordination heel to shin left lower extremity assessment scale

The scale related to assessment of the ability to complete the motion of heel to shin (lower extremity)

Supplemental Coordination Chiari I Malformation Chiari I Malformation
C21931 Dizziness motion related indicator

The indicator related to motion related dizziness

Supplemental Imbalance Chiari I Malformation Chiari I Malformation
C22366 Chiari malformation tethered spinal cord urine hold trouble indicator

The indicator related to trouble holding your urine

Supplemental CMI - Tethered Cord Screening Chiari I Malformation Chiari I Malformation
C21693 Chiari I malformation position change dizzy symptom indicator

The indicator related to dizziness with position changes in defining signs and symptoms for Chiari I malformation

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22486 Surgical procedure arachnoid veil finding type

The type of finding in context of the arachnoid veil

Supplemental Chiari I Malformation Treatment Chiari I Malformation Chiari I Malformation
C56980 Trigger point suboccipital type

Type of suboccipital trigger point

Supplemental Provocative-Other Testing Chiari I Malformation Chiari I Malformation
C22750 Celiac disease gluten sensitivity diagnosis ever indicator

Indicator of whether the patient/participant has ever been diagnosed with celiac disease or gluten sensitivity

Supplemental Self - Report Testing (On Intake) Chiari I Malformation Chiari I Malformation
C22449 Hydrocephalus family history slit ventricle indicator

The indicator related to personal or immediate family history of hydrocephalus, specifically slit ventricle syndrome

Supplemental Co-Morbidities Chiari I Malformation Chiari I Malformation
Displaying 151 - 175 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.