CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 861

« first
‹ previous
…
2
3
4
5
6
7
8
9
10
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2160-C22234	C22234	Headache quality type	The type related to the quality of the subject's headache	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2148-C21788	C21788	Headache quality score	The score related to the quality of the patient's headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22203	C22203	Chiari malformation neurological examination dysarthria dysphonia absent indicator	The indicator related to not having dysarthria or dysphonia	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22276	C22276	Reflex deep tendon reflex hamstring response score	The response score related to deep tendon reflex testing of hamstring (sciatic/tibial:l4-s2)	Supplemental	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2157-C22225	C22225	Sensory abnormal tingling pain indicator	The indicator related to abnormal tingling pain	Supplemental	Sensory Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2145-C21795	C21795	TMJ intact indicator	The indicator related to an intact TMJ	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22567	C22567	Surgical procedure complication transdermal cerebrospinal fluid leak indicator	Indicator related to the complication of a trans-dermal cerebrospinal fluid (CSF) leak in the patient's brain	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2182-C21870	C21870	Medical history Lyme disease indicator	The indicator related to personal medical history of Lyme disease	Supplemental	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2161-C22241	C22241	Surgical procedure wound healing assessment other text	The free-text field related to other wound healing assessment from surgical procedure	Supplemental	Surgical Site Assessment	False	Chiari I Malformation	Chiari I Malformation
F2190-C22396	C22396	Cerebrospinal fluid dorsal space change measurement	Measurement related to the change in the width of the dorsal cerebrospinal fluid (CSF) spaces	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2154-C22215	C22215	Chiari malformation neurological examination plantar flexor response indicator	The indicator related to plantar responses are flexor	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2146-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22037	C22037	Motor strength testing gluteus left scale	The amount of movement in the left gluteus	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2144-C21727	C21727	Lansky modified performance status score	Score that best identifies your child's current level of functioning favoring the highest level estimate	Supplemental	Functional Status Lansky Score	False	Chiari I Malformation	Chiari I Malformation
F2190-C22575	C22575	Surgical procedure performed date	Date the surgical procedure was performed on the subject	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2163-C01522	C01522	Height measurement	Measurement of participant's height	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2172-C21739	C21739	Imaging posterior cranial fossa pB-C2 measurement	The measurement as related to distance from dura to the line drawn from the basion to the posterior inferior edge of the C2 vertebra	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22535	C22535	Shunt valve in place indicator	Shunt valve currenting in place	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2146-C21688	C21688	Beighton Score - Motion palm flat leg straight score	Score of ability of completing the motion palm flat and leg straight as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22045	C22045	Motor strength testing fasciculation indicator	The indicator relating to fasciculations in a muscle	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C01582	C01582	Height unit of measure	Unit of measure for the height numerical value for participant	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22302	C22302	Chiari malformation headache onset important symptom scale	The scale as related to headache at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2172-C21747	C21747	Imaging posterior cranial fossa supraoccipital length measurement	The measurement as related to distance from opisthion to internal occipital protuberance on midsagittal MRI	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22543	C22543	Shunt valve functional assessment type	Shunt valve functional assessment type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2147-C21765	C21765	Chiari malformation screening dental development poor enamel temporomandibular joint problem indicator	The indicator related to having any developmental problems with teeth, poor dental enamel or temporomandibular joint disorder in a screening diagnosis for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation

Displaying 126 - 150 of 861

« first
‹ previous
…
2
3
4
5
6
7
8
9
10
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.