CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 855

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2146-C21685	C21685	Beighton Score - Motion finger bend back score	Score/Assessment of Motion to bend finger back as part of the Beighton Score	Supplemental	CMI - Hereditary Disorder of Connective Tissue Screening (1)	False	Chiari I Malformation	Chiari I Malformation
F2153-C22042	C22042	Motor strength testing intrinsic left hand scale	The amount of movement in the intrinsic muscles of the left hand	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C01541	C01541	Weight measurement	Measurement of participant's weight	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2193-C55648	C55648	Eye absent visual fixation primary position type	The type as related to the primary position in absence of visual fixation	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2163-C22290	C22290	Chiari malformation information source	The source that provided information about Chiari Malformation to the patient	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2155-C22264	C22264	Reflex deep tendon reflex patellar response score	The response score related to deep tendon reflex testing of patellar (femoral:l2-4)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2158-C22540	C22540	Shunt valve reservoir resistance type	Resistance to reservoir compression	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22050	C22050	Motor strength testing left ankle pf scale	The amount of movement in the left ankle pf	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C21686	C21686	Beighton Score - Motion elbow hyperextend score	Score/assessment of ability to complete the motion hyperextended elbow as part of the Beighton Score	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2193-C55656	C55656	Nystagmus valsalva emergence indicator	The indicator related to emergence or worsening of nystagmus with valsalva maneuver	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2163-C22315	C22315	Chiari malformation auditory symptoms onset important symptom scale	The scale as related to auditory symptoms at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2159-C22257	C22257	Spine range of motion neck extension degree value	The value in degrees related to range in motion of neck extension (50) in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2147-C21771	C21771	Chiari malformation screening wound prolong heal separation indicator	The indicator related to experiencing prolonged wound healing or separation in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2154-C22183	C22183	Chiari malformation neurological examination funduscopic exam benign indicator	The indicator related to funduscopic exam being benign and discs flat	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21772	C21772	Carotid radial pulse intact text	The free text field related to an intact carotid and radial pulse	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56959	C56959	Truncal flexion type	The participant/subject's truncal flexion capability	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22335	C22335	Chiari malformation imbalance dizziness onset symptom severity scale	The scale as related to imbalance/dizziness at onset severity in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2155-C22359	C22359	Reflex autonomic reflex lacrimate status	Describe observed response (the secretion of excess tears)	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C58516	C58516	Greatest transverse thecal sac diameter measurement	Greatest transverse diameter of thecal sac on T2-WI as measured on MRI in the axial plane (in mm)	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2160-C15917	C15917	Headache typical pain intensity rate scale	Rating scale for the pain of this headache on a scale of 0 -10	Supplemental	Strain - Related Headache	False	Chiari I Malformation	Chiari I Malformation
F2148-C21783	C21783	Headache focal point extension radiation type	The type of extension from the focal point of the headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2154-C22199	C22199	Chiari malformation neurological examination tongue palate pharynx intact indicator	The indicator related to tongue, palate and pharynx being intact	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2145-C21789	C21789	Cutaneous stigma absent indicator	The indicator related to an absence of cutaneous stigma	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2163-C22356	C22356	Imaging diagnostic method type other text	The free text field related to the imaging method utilized for diagnosis	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2156-C13523	C13523	Dizziness or vertigo indicator	Indicator of whether the participant/subject experienced dizziness or vertigo	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.