CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 101 - 125 of 861

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2145-C11131	C11131	Body mass index value	Value of the participant's body mass index, calculated from height and weight	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2158-C22536	C22536	Shunt valve set type	setting type (confirmation, mechanical, electronic)	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2153-C22046	C22046	Motor strength testing left hamstring scale	The amount of movement in the left hamstring	Supplemental	Motor Strength Testing	False	Chiari I Malformation	Chiari I Malformation
F2193-C55652	C55652	Eye visual fixation vertical upgaze type	The type as related to vertical upgaze in visual fixation	Supplemental	Nystagmus/Strabismus	False	Chiari I Malformation	Chiari I Malformation
F2147-C21767	C21767	Chiari malformation screening orthopedic joint hip dislocation unusual pain screen indicator	The indicator related to any kind of hip or any other joint dislocation, unusual joint pain, or susceptibility to joint injury in a screening for Chiari malformation	Supplemental	CMI - Hereditary Disorders of Connective Tissue Screening (2)	False	Chiari I Malformation	Chiari I Malformation
F2163-C22307	C22307	Chiari malformation Neck pain onset important symptom scale	The scale as related to neck pain at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2190-C22533	C22533	Surgical procedure complication fluid collection indicator	Indicator related to the complication of a fluid collection within the brain	Supplemental	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2145-C21762	C21762	Temporal artery tenderness absent assessment indicator	The indicator related to not having any tenderness in temporal arteries which supply blood to the head and brain	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2172-C21748	C21748	Imaging posterior cranial fossa foramen magnum diameter measurement	The measurement as related to distance from basion to opisthion	Supplemental	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22544	C22544	Shunt valve scan type	Shunt valve scan type	Supplemental	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2154-C22179	C22179	Chiari malformation neurological examination attention short-term memory intact indicator	The indicator related to attention and short-term memory being intact as part of neurological examination form made for Chiari Malformation	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C55660	C55660	Cervical compression surgical site status	The status of compression at the surgical site	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2163-C22324	C22324	Chiari malformation bowel bladder onset important symptom scale	The scale as related to bowel/bladder at onset importance in Chiari malformation symptoms	Supplemental	Chiari Symptom Onset	False	Chiari I Malformation	Chiari I Malformation
F2145-C21781	C21781	Peripheral edema clubbing cyanosis absence indicator	The indicator related to identifying an absence of peripheral edema, clubbing or cyanosis	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2159-C22265	C22265	Spine range of motion trunk forward flexion position anatomic site	The anatomic site relating to the position of range of motion of trunk forward flexion in assessment of spine	Supplemental	Spine: Range of Motion Assessment	False	Chiari I Malformation	Chiari I Malformation
F2183-C22507	C22507	Spinal deformity stabilization indicator	The indicator related to the surgical stabilization of spinal deformity	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2154-C22187	C22187	Chiari malformation I neurological examination nystagmus absent indicator	The indicator related to not having nystagmus	Supplemental	Neurological Exam	False	Chiari I Malformation	Chiari I Malformation
F2155-C22367	C22367	Reflex autonomic reflex cold pressor test status	The response status as related to autonomic reflexes cold pressor test status	Supplemental	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2145-C21797	C21797	Upper lower limb pulse intact indicator	The indicator related to intact upper and lower limbs	Supplemental	General Exam	False	Chiari I Malformation	Chiari I Malformation
F2142-C21710	C21710	Coordination heel to shin left lower extremity assessment scale	The scale related to assessment of the ability to complete the motion of heel to shin (lower extremity)	Supplemental	Coordination	False	Chiari I Malformation	Chiari I Malformation
F2150-C21931	C21931	Dizziness motion related indicator	The indicator related to motion related dizziness	Supplemental	Imbalance	False	Chiari I Malformation	Chiari I Malformation
F2183-C22461	C22461	Cervical laminectomy anatomic site	The anatomic site or location related to the cervical laminectomy	Supplemental	Chiari I Malformation Treatment	False	Chiari I Malformation	Chiari I Malformation
F2194-C56971	C56971	Phalens sign positive side type	The side of the body that the participant/subject's Phalen's signs read positive	Supplemental	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2148-C21839	C21839	Headache pain relief factor type	The type as related to pain relief factor for headache	Supplemental	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2156-C22741	C22741	Urination initiation difficulty indicator	Indicator of whether the patient/participant has experienced difficulty initiating urination	Supplemental	Self - Report Testing (On Intake)	False	Chiari I Malformation	Chiari I Malformation

Displaying 101 - 125 of 861

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.