CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 726 - 750 of 855

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2182-C22438	C22438	Head shape plagiocephaly indicator	The indicator related to head shape plagiocephaly, in which one side of the subject's head is flat	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22041	C22041	Motor strength testing left quadricep scale	The amount of movement in the left quadricep	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2155-C22262	C22262	Reflex deep tendon reflex finger flexor response score	The response score related to deep tendon reflex testing of finger flexor (median/ulnar:c6-t1)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22446	C22446	Malar hypoplasia condition indicator	The indicator related to the condition of malar hypoplasia, in which the subject has an underdeveloped maxilla	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2140-C21719	C21719	Sixth cranial nerve palsy assessment status	Status as related to assessment of 6th cranial nerve palsy	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2165-C22051	C22051	Motor strength testing right ehl scale	The amount of movement in the right ehl	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2155-C22296	C22296	Reflex superficial reflex bulbocavernosus response status	The response status of superficial reflex testing of bulbocavernosus (pudendal: S3-S4)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2141-C21691	C21691	Chiari I malformation neck pain stiff radiate shoulder symptom indicator	The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2165-C22102	C22102	Modified Ashworth Scale - Limb tone testing right wrist scale	The scale of limb tone testing for the right wrist, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2194-C56993	C56993	Spinal percussion type	Type of spinal percussion	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2155-C22355	C22355	Reflex autonomic reflex sweat status	The response status as related to autonomic reflexes sweating status	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22467	C22467	Medical history sarcoidosis condition indicator	The indicator related to medical history of the condition sarcoidosis, the growth of many tiny inflammatory cells throughout the body	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2148-C21782	C21782	Headache primary laterality anatomic site score	The score relating to the anatomic site of the primary headache	Exploratory	CMI - Headache Score	False	Chiari I Malformation	Chiari I Malformation
F2141-C21699	C21699	Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator	The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2165-C22025	C22025	Motor strength testing iliopsoas right scale	The amount of movement in the right iliopsoas	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22559	C22559	Symptom cranial nerve post surgical procedure score	Score related to the symptom scale of the subject's cranial nerves post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21731	C21731	Imaging cerebellar tonsil shape type	The type as related to the relative tonsil shape reported	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2158-C22511	C22511	Shunt valve manufacturer type	Manufacturer of valve	Exploratory	Assessment of Shunt Function	False	Chiari I Malformation	Chiari I Malformation
F2182-C22413	C22413	Pneumothorax hernia organ prolapse indicator	The indicator related to any clinical history of pneumothorax, hernias, or organ prolapse	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22530	C22530	Surgical procedure complication cerebrospinal fluid disorder type	Type of cerebrospinal fluid (CSF) disorder the patient has, if any	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2182-C22421	C22421	Gestation twin indicator	The indicator related to a twin gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2190-C22551	C22551	Symptom general pain surgical procedure change score	Score related to the change in the subject's general pain scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2172-C21755	C21755	Imaging spine anomaly spinal dysraphism present indicator	In this context, we define spina bifida occulta as non-fusion of the posterior spinal elements without evidence of any other abnormality of the spinal cord or dura	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2149-C21890	C21890	Medical history test sedation require indicator	The indicator relating to the requirement of sedation for testing	Exploratory	Past History (on intake)	False	Chiari I Malformation	Chiari I Malformation
F2138-C21681	C21681	Allergy reaction acrylic indicator	Indicator related to allergic reaction to acrylic	Exploratory	Allergy	False	Chiari I Malformation	Chiari I Malformation

Displaying 726 - 750 of 855

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.