CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F2165-C22107	C22107	Modified Ashworth Scale - Limb tone testing left ankle scale	The scale of limb tone testing for the left ankle, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2140-C21718	C21718	Cardiac arrhythmia finding text	The free-text field to explain the findings of the cardiac arrhythmia	Exploratory	Brainstem Signs/Symptoms	False	Chiari I Malformation	Chiari I Malformation
F2182-C22425	C22425	Gestation other text	Text describing the other form of gestation	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56968	C56968	Tinels sign negative side type	The side on which the participant/subject's Tinel's signs read negative	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C12875	C12875	Echocardiogram mitral valve prolapse indicator	Indicator of the absence or presence of prolapse of the mitral valve, often with regurgitation, associated with myxomatous proliferation of the leaflets of the mitral valve as assessed by echocardiography	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56976	C56976	Adsons maneuver internal side type	The side on which the participant/subject lost his/her pulse in internal rotation	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22401	C22401	Spina bifida myelomeningocele diagnosis indicator	The indicator related to myelomeningocele which is when before birth, the baby's backbone, spinal cord and the structure they float in (spinal canal) do not form or close normally	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2194-C56992	C56992	Toe walking weakness type	Type of toe walking weakness	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2172-C21743	C21743	Imaging posterior cranial fossa basion dens interval measurement	The measurement as related to distance from basion to tip of odontoid	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2182-C22417	C22417	Birth delivery breech indicator	The indicator related to birth presentation at delivery being a breech birth	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2172-C21751	C21751	Imaging spine anomaly congenital fusion cervical vertebrae present indicator	The indicator related to the congenital fusion of cervical vertebrate on the imaging spinal anomalies	Exploratory	Chiari I Malformation Imaging	False	Chiari I Malformation	Chiari I Malformation
F2194-C56961	C56961	Straight leg raising pain type	The participant/subject's capability of straight leg raising	Exploratory	Provocative-Other Testing	False	Chiari I Malformation	Chiari I Malformation
F2190-C22558	C22558	Symptom cranial nerve pre surgical procedure score	Score related to the symptom scale of the subject's cranial nerves pre surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22260	C22260	Reflex deep tendon reflex brachioradialis response score	The response score related to deep tendon reflex testing of brachioradialis (radial:c5-6)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22031	C22031	Motor strength testing right triceps scale	The amount of movement in the right triceps muscle	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2141-C21691	C21691	Chiari I malformation neck pain stiff radiate shoulder symptom indicator	The indicator related to neck pain/stiffness radiating in your shoulders in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2190-C22566	C22566	Symptom depression surgical procedure change score	Score related to the change in the subject's depression scores	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation
F2155-C22291	C22291	Reflex superficial reflex anal response status	The response status of superficial reflex testing of anal (inf. Hemorrhoidal: S2-S4)	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2182-C22433	C22433	Medical history aortic root enlargement indicator	The indicator related to any medical history of the enlargement of the subject's aortic root	Exploratory	Co-Morbidities	False	Chiari I Malformation	Chiari I Malformation
F2165-C22039	C22039	Motor strength testing right quadricep scale	The amount of movement in the right quadricep	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2141-C21699	C21699	Chiari I malformation shortness breath blur vision ring ear urinary urgency heart palpitation symptom indicator	The indicator related to complaints of shortness of breath, blurred vision, ringing in your ears, urinary ugency, or heart palpitations in defining signs and symptoms for Chiari I malformation	Exploratory	Chiari List of 10	False	Chiari I Malformation	Chiari I Malformation
F2155-C22326	C22326	Reflex pyramidal frontal release sign foot grasp status	The response status as related to pyramidal/frontal release sign foot grasp reflex	Exploratory	Reflex Testing	False	Chiari I Malformation	Chiari I Malformation
F2165-C22049	C22049	Motor strength testing right ankle pf scale	The amount of movement in the right ankle pf	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2165-C22100	C22100	Modified Ashworth Scale - Limb tone testing right hip scale	The scale of limb tone testing for the right hip, as part of the Modified Ashworth Scale	Exploratory	Chiari I Malformation Presentation Exam	False	Chiari I Malformation	Chiari I Malformation
F2190-C22550	C22550	Symptom general pain post surgical procedure score	Score related to the symptom scale of the subject's general pain post-surgery	Exploratory	Chiari I Malformation Treatment Outcomes	False	Chiari I Malformation	Chiari I Malformation

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.